Literature DB >> 29776236

Your genes in insurance: from genetic discrimination to genomic solidarity.

Ine Van Hoyweghen1, Lisa Rebert2.   

Abstract

Advances in genomics and postgenomics have renewed interest in the impact of genomic health information on private life insurance across Europe. These developments reopen the issue of how genes - apart from being the object of discrimination (exclusion) - also operate as generators of solidarity (inclusion). This article traces several developments in regulating genetics and life insurance and its social implications in the European context. At first, genes were viewed as a source of differentiation, which led to fears of 'genetic discrimination' in life insurance. In response, genetic nondiscrimination regulations were enacted across Europe. Current debates on the use of genomic health information in life insurance have actually opened up possibilities for a form of genomic solidarity between 'all of us'. The introduction of genes and genomes appears to turn private life insurance practices of actuarial risk discrimination increasingly into 'discriminatory' practices by challenging the larger fundamental 'right to underwrite'.

Keywords:  ethics; genetic discrimination; genetic nondiscrimination regulations; life insurance; nondiscrimination; social impact of personalized medicine; solidarity

Year:  2012        PMID: 29776236     DOI: 10.2217/pme.12.96

Source DB:  PubMed          Journal:  Per Med        ISSN: 1741-0541            Impact factor:   2.512


  2 in total

1.  Diagnostic and Therapeutic Misconception: Parental Expectations and Perspectives Regarding Genetic Testing for Developmental Disorders.

Authors:  Isabelle Tremblay; Steffany Grondin; Anne-Marie Laberge; Dominique Cousineau; Lionel Carmant; Anita Rowan; Annie Janvier
Journal:  J Autism Dev Disord       Date:  2019-01

2.  Life insurance: genomic stratification and risk classification.

Authors:  Yann Joly; Hilary Burton; Bartha Maria Knoppers; Ida Ngueng Feze; Tom Dent; Nora Pashayan; Susmita Chowdhury; William Foulkes; Alison Hall; Pavel Hamet; Nick Kirwan; Angus Macdonald; Jacques Simard; Ine Van Hoyweghen
Journal:  Eur J Hum Genet       Date:  2013-10-16       Impact factor: 4.246

  2 in total

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