Literature DB >> 29776191

Tricky teens: are they really tricky or do genetic health professionals simply require more training in adolescent health?

Rony E Duncan1,2, Mary-Anne Young3.   

Abstract

Providing health services to young people poses specific challenges as a consequence of their unique developmental stage. In the field of genetics, providing developmentally appropriate care can be further complicated by the familial nature of genetic information. Several fields of medicine have developed specific guidance around how best to work with adolescent patients. No such advice exists in the field of clinical genetics or genetic counseling. It is time for the field of genetics to address this aspect of practice through development of a specific adolescent-friendly model of care. Without such a model, the field risks falling behind other medical specialties and adolescents who visit genetic health professionals are at risk of missing out on best possible care.

Entities:  

Keywords:  adolescent; ethics; genetic counseling; genetic testing; genetics; guidelines; minors; policy; professional practice

Year:  2013        PMID: 29776191     DOI: 10.2217/pme.13.49

Source DB:  PubMed          Journal:  Per Med        ISSN: 1741-0541            Impact factor:   2.512


  7 in total

1.  A framework for youth-friendly genetic counseling.

Authors:  Mary-Anne Young; Kate Thompson; Jeremy Lewin; Lucy Holland
Journal:  J Community Genet       Date:  2019-11-05

2.  The ethics of genetic testing for kidney diseases.

Authors:  Maya Sabatello; Hila Milo Rasouly
Journal:  Nat Rev Nephrol       Date:  2020-05-01       Impact factor: 28.314

3.  Psychiatric Genomics and Public Mental Health in the Young Mind.

Authors:  Maya Sabatello
Journal:  Am J Bioeth       Date:  2017-04       Impact factor: 11.229

4.  The Precision Medicine Nation.

Authors:  Maya Sabatello; Paul S Appelbaum
Journal:  Hastings Cent Rep       Date:  2017-07       Impact factor: 2.683

5.  Teenagers and Precision Psychiatry: A Window of Opportunity.

Authors:  Maya Sabatello; Ying Chen; Carmen Fiorella Herrera; Erika Brockhoff; Jehannine Austin; Paul S Appelbaum
Journal:  Public Health Genomics       Date:  2021-01-27       Impact factor: 2.000

6.  Families with complex needs: an inside perspective from young people, their carers, and healthcare providers.

Authors:  Mădălina Radu; Ramona Moldovan; Adriana Băban
Journal:  J Community Genet       Date:  2022-03-18

Review 7.  Genomic Health Literacy Interventions in Pediatrics: Scoping Review.

Authors:  Aarushi Gupta; Joseph A Cafazzo; Maarten J IJzerman; Joost F Swart; Sebastiaan Vastert; Nico M Wulffraat; Susanne Benseler; Deborah Marshall; Rae Yeung; Marinka Twilt
Journal:  J Med Internet Res       Date:  2021-12-24       Impact factor: 5.428

  7 in total

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