Literature DB >> 29766264

[Registry-based research in ophthalmology].

J Li1, C Heinz2,3, R P Finger4.   

Abstract

Medical registries and registry studies are frequently used for health services research as they represent a valuable means of capturing real-life data. Registry studies are particularly suitable for rare diseases for which epidemiological population-based or randomized controlled clinical studies are difficult. The are many examples of successful medical registries that have not only contributed to both epidemiological and clinical research, but which have also improved health service delivery. Only few ophthalmological medical registries are currently available. For non-infectious uveitis in children and adolescents with juvenile idiopathic arthritis (JIA), a rare disease entity, there is a need for data on, e.g., treatment, long-term outcomes, and risk factors for progression. The advantages for this disease of a registry with uveitis module from which numerous scientific publications and guidelines have been derived has been proven. Thus, we use the example of non-infectious uveitis to discuss the benefits of registries for other areas of ophthalmology.

Entities:  

Keywords:  Health care research; Juvenile idiopathic arthritis; Rare diseases; Registries; Uveitis

Mesh:

Year:  2018        PMID: 29766264     DOI: 10.1007/s00347-018-0719-8

Source DB:  PubMed          Journal:  Ophthalmologe        ISSN: 0941-293X            Impact factor:   1.059


  30 in total

1.  Risk of Ocular Hypertension in Adults with Noninfectious Uveitis.

Authors:  Ebenezer Daniel; Maxwell Pistilli; Srishti Kothari; Naira Khachatryan; R Oktay Kaçmaz; Sapna S Gangaputra; H Nida Sen; Eric B Suhler; Jennifer E Thorne; C Stephen Foster; Douglas A Jabs; Robert B Nussenblatt; James T Rosenbaum; Grace A Levy-Clarke; Nirali P Bhatt; John H Kempen
Journal:  Ophthalmology       Date:  2017-04-19       Impact factor: 12.079

Review 2.  [What can and cannot be achieved by registries : Perspective of the registry working group of the German Network of Health Services Research].

Authors:  E A M Neugebauer; J Stausberg
Journal:  Unfallchirurg       Date:  2016-06       Impact factor: 1.000

3.  Prevalence and complications of uveitis in juvenile idiopathic arthritis in a population-based nation-wide study in Germany: suggested modification of the current screening guidelines.

Authors:  A Heiligenhaus; M Niewerth; G Ganser; C Heinz; K Minden
Journal:  Rheumatology (Oxford)       Date:  2007-04-02       Impact factor: 7.580

4.  Cyclophosphamide for ocular inflammatory diseases.

Authors:  Siddharth S Pujari; John H Kempen; Craig W Newcomb; Sapna Gangaputra; Ebenezer Daniel; Eric B Suhler; Jennifer E Thorne; Douglas A Jabs; Grace A Levy-Clarke; Robert B Nussenblatt; James T Rosenbaum; C Stephen Foster
Journal:  Ophthalmology       Date:  2009-12-06       Impact factor: 12.079

5.  The German ROP Registry: data from 90 infants treated for retinopathy of prematurity.

Authors:  Johanna M Walz; Sebastian Bemme; Amelie Pielen; Sabine Aisenbrey; Helge Breuß; Anne F Alex; Lars Wagenfeld; Susanne Schiedel; Tim U Krohne; Andreas Stahl
Journal:  Acta Ophthalmol       Date:  2016-05-20       Impact factor: 3.761

6.  Methods for identifying long-term adverse effects of treatment in patients with eye diseases: the Systemic Immunosuppressive Therapy for Eye Diseases (SITE) Cohort Study.

Authors:  John H Kempen; Ebenezer Daniel; Sapna Gangaputra; Kurt Dreger; Douglas A Jabs; R Oktay Kaçmaz; Siddharth S Pujari; Fahd Anzaar; C Stephen Foster; Kathy J Helzlsouer; Grace A Levy-Clarke; Robert B Nussenblatt; Teresa Liesegang; James T Rosenbaum; Eric B Suhler
Journal:  Ophthalmic Epidemiol       Date:  2008 Jan-Feb       Impact factor: 1.648

7.  Malignant Neoplasms in Patients With Rheumatoid Arthritis Treated With Tumor Necrosis Factor Inhibitors, Tocilizumab, Abatacept, or Rituximab in Clinical Practice: A Nationwide Cohort Study From Sweden.

Authors:  Hjalmar Wadström; Thomas Frisell; Johan Askling
Journal:  JAMA Intern Med       Date:  2017-11-01       Impact factor: 21.873

8.  A study of the correlation between patient-reported outcomes and clinical outcomes after cataract surgery in ophthalmic clinics.

Authors:  Kaziwe Mollazadegan; Mats Lundström
Journal:  Acta Ophthalmol       Date:  2014-06-29       Impact factor: 3.761

Review 9.  The Danish National Patient Registry: a review of content, data quality, and research potential.

Authors:  Morten Schmidt; Sigrun Alba Johannesdottir Schmidt; Jakob Lynge Sandegaard; Vera Ehrenstein; Lars Pedersen; Henrik Toft Sørensen
Journal:  Clin Epidemiol       Date:  2015-11-17       Impact factor: 4.790

10.  Impact of Antiinflammatory Treatment on the Onset of Uveitis in Juvenile Idiopathic Arthritis: Longitudinal Analysis From a Nationwide Pediatric Rheumatology Database.

Authors:  Christoph Tappeiner; Sandra Schenck; Martina Niewerth; Arnd Heiligenhaus; Kirsten Minden; Jens Klotsche
Journal:  Arthritis Care Res (Hoboken)       Date:  2016-01       Impact factor: 4.794

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  2 in total

1.  [Status and perspectives of registry-based studies in German ophthalmology].

Authors:  M Roth; C Holtmann; D Böhringer; R P Finger; N Eter; B Seitz; G Geerling
Journal:  Ophthalmologe       Date:  2020-01       Impact factor: 1.059

Review 2.  Ophthalmic registries for rare eye diseases.

Authors:  Mohita Sharma; Neha Jain; Vibha Singh; Silkee Singla; Insha Aftab
Journal:  Indian J Ophthalmol       Date:  2022-07       Impact factor: 2.969

  2 in total

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