| Literature DB >> 29761095 |
Karen McPhail-Bell1,2, Veronica Matthews2, Roxanne Bainbridge3, Michelle Louise Redman-MacLaren3,4, Deborah Askew5,6, Shanthi Ramanathan7, Jodie Bailie2, Ross Bailie2.
Abstract
In Australia, Indigenous people experience poor access to health care and the highest rates of morbidity and mortality of any population group. Despite modest improvements in recent years, concerns remains that Indigenous people have been over-researched without corresponding health improvements. Embedding Indigenous leadership, participation, and priorities in health research is an essential strategy for meaningful change for Indigenous people. To centralize Indigenous perspectives in research processes, a transformative shift away from traditional approaches that have benefited researchers and non-Indigenous agendas is required. This shift must involve concomitant strengthening of the research capacity of Indigenous and non-Indigenous researchers and research translators-all must teach and all must learn. However, there is limited evidence about how to strengthen systems and stakeholder capacity to participate in and lead continuous quality improvement (CQI) research in Indigenous primary health care, to the benefit of Indigenous people. This paper describes the collaborative development of, and principles underpinning, a research capacity strengthening (RCS) model in a national Indigenous primary health care CQI research network. The development process identified the need to address power imbalances, cultural contexts, relationships, systems requirements and existing knowledge, skills, and experience of all parties. Taking a strengths-based perspective, we harnessed existing knowledge, skills and experiences; hence our emphasis on capacity "strengthening". New insights are provided into the complex processes of RCS within the context of CQI in Indigenous primary health care.Entities:
Keywords: Aboriginal and Torres Strait Islander health; Indigenous health; Indigenous leadership; collaborative leadership; continuous quality improvement; primary health-care services; research capacity strengthening; research translation
Year: 2018 PMID: 29761095 PMCID: PMC5936797 DOI: 10.3389/fpubh.2018.00107
Source DB: PubMed Journal: Front Public Health ISSN: 2296-2565
Values and ethics protocol for continuous quality improvement (CQI) research capacity strengthening (RCS).
| This protocol for operation was endorsed in January 2017 |
| Reflecting feedback at the Centre 2016 network meeting in Darwin and the 2016 Lowitja Conference statement ( |
| Reciprocity requires the Centre CQI-RCS Program to demonstrate a return or benefit to users that is valued and which contributes to inclusion, cohesion and survival of Aboriginal and Torres Strait Islander people. |
| Inclusion: |
draw from and prioritize Indigenous scholarship to shape the Centre RCS Program. seek to establish relationships and mechanisms to ensure Aboriginal and Torres Strait Islander leadership and direction of the Centre CQI-RCS Program, including the RCS Lead Group. establish and nurture relationships with Aboriginal and Torres Strait Islander Centre members and partners (including potential) for involvement in the Centre CQI-RCS Program. |
| Benefit: |
through the 2017 CQI-RCS program logic workshop, clarify the potential benefit of the Centre CQI-RCS program. collaboratively develop a research grant application to developmentally assess CQI-RCS in the Centre, using existing indicators and those emerging through the CQI-RCS activities. prioritize Aboriginal and Torres Strait Islander researchers for Centre scholarships. |
| Respect acknowledges the individual and collective contribution, interests, and aspirations of Aboriginal and Torres Strait Islander people, researchers, and other partners in the research process. |
| Respect people and their contribution: |
acknowledge Aboriginal and Torres Strait Islander people involved in the CQI-RCS Program as co-generators of knowledge regarding CQI-RCS, including authorship on materials produced. |
| Minimize difference blindness: |
create mechanisms through the Centre CQI-RCS program that draw attention to decisions by and engagement of Aboriginal and Torres Strait Islander people in the Centre. utilize or build upon existing Aboriginal and Torres Strait Islander structures where they exist, including by engaging with peak representative bodies. |
| Recognize the consequences of research: |
seek to establish agreement within the Centre regarding CQI-RCS program deliverables, including consideration to the pre-existing program and potential future proposals. Include discussion regarding who needs to be involved, how and when in the processes, from the beginning, including “getting the research question right.” respect that there are some boundaries beyond which non-Indigenous researchers cannot go and that Aboriginal and Torres Strait Islander researchers and partners may choose at any time, for any reason without consequence, to cease their involvement with the Centre CQI-RCS program. |
| To enact equality: |
| Value knowledge and wisdom: |
seek multiple input points for Aboriginal and Torres Strait Islander researchers and partners into the Centre CQI-RCS program design processes, delivery and outcomes. following the Centre principle, Respect the past and present experiences of Aboriginal and Torres Strait Islander people, appreciate Aboriginal and Torres Strait Islander peoples’ collective memory and shared experience in data collection and analysis. |
| Seek equality of partners: |
| seek to establish mechanisms in the Centre CQI-RCS program that ensure Indigenous leadership and direction of research, such as the RCS Lead Group. |
provide regular updates on the Centre CQI-RCS Program, which can include sharing information, documents, tools, and presentations generated through the Centre CQI-RCS Program. adjust research processes and directions as seen necessary for equality. For example, should there be an Aboriginal and Torres Strait Islander researcher/s interested to co-lead the Centre CQI-RCS Program, seek to enable this partnership. acknowledge that Aboriginal and Torres Strait Islander autonomy and participation are core to ethical research in Indigenous studies ( |
| Distribute the benefits: |
seek to ensure that the Centre CQI-RCS program delivers benefits that are of equal value to Aboriginal and Torres Strait Islander researchers just as much as to Centre Chief Investigators and lead researchers. pending interest, negotiate co-authorship with Aboriginal and Torres Strait Islander people involved, where the opportunity arises to co-publish. |
| Responsibility involves doing no harm and establishing processes for accountability, for which the Centre CQI-RCS Program and its team will: |
seek to attend Centre and other meetings (upon invitation) to provide opportunity for partners to discuss and query the Centre CQI-RCS program. regularly update on Centre CQI-RCS Program progress (e.g., monthly email update, RCS Lead group meetings), ensuring scope for Aboriginal and Torres Strait Islander to correct and influence activities and priorities. abide by the ethics approval for the Centre, when the Centre CQI-RCS Program involves research activity. where there is intention to publish in relation to the Centre CQI-RCS program, ensure that agreement has been reached by obtaining formal approval by the Centre for publication. draw on scholarship and transformative agendas advocated for by Aboriginal and Torres Strait Islander scholars, to inform the Centre CQI-RCS Program ( |
| Survival and protection acknowledges the importance of values based solidarity to Aboriginal and Torres Strait Islander peoples; respect for social cohesion; and commitment to cultural distinctiveness. The Centre CQI-RCS Program will endeavour to enact this by the following strategies |
Seek to safeguard against discrimination or derision of Aboriginal and Torres Strait Islander identity and cultural diversity, including consultation with Aboriginal and Torres Strait Islander researchers involved in the Centre in identifying CQI-RCS needs, as well as to identify threats and ways to eliminate those threats. Work according to a strengths-based approach ( Utilize the RCS Lead Group, advisors, mentors, and critical friends for guidance to work in a way that progresses the jointly identified CQI-RCS agenda. |
| Protecting the spirit and integrity of Aboriginal and Torres Strait Islander communities and individuals is an obligation for Centre researchers, which in the Centre CQI-RCS Program involves: |
motivation and action: through the above-mentioned mechanisms, seek to remain transparent and consistent with Aboriginal and Torres Strait Islander values, such as those outlined here. intent and process: seek to negotiate proposal designs for CQI-RCS activities and implementation of the CQI-RCS Program with Aboriginal and Torres Strait Islander researchers, including using workable timeframes and decision-making processes. |
respect the past and present experiences of Indigenous people. work in partnership. ensure Indigenous leadership and direction of research. ethical conduct. get the research question right. design research that will be feasible, produce outcomes and build capacity. identify and provide the right resources and training. establish systems and practices to support the application of evidence to improve Indigenous primary health care and health outcomes. |
.
Figure 1An overarching program logic “map” of the Centre’s Continuous Quality Improvement Research Capacity Strengthening Program.