Literature DB >> 27883930

Reconciling community-based Indigenous research and academic practices: Knowing principles is not always enough.

Melody E Morton Ninomiya1, Nathaniel J Pollock2.   

Abstract

Historically, Indigenous health research in Canada has failed to engage Indigenous peoples and communities as primary stakeholders of research evidence. Increasingly, research ethics and methodologies are being positioned as tools for Indigenous self-determination. In response, mainstream institutions have developed new ethical principles for research involving Indigenous people. While these transformations are necessary steps towards re-orienting research practices, they are not prescriptive. In this paper, we make visible three dilemmas from a case study in which Indigenous health research frameworks provided limited guidance or were unclear about how to balance community priorities with Indigenous research principles. We also discuss the strategies used to resolve each of these dilemmas. We draw examples from a project that examined the lived experiences of children and youth living with FASD and their caregivers. This project was conducted in collaboration with Sheshatshiu Innu First Nation, an Indigenous community in Labrador, Canada. In doing so, we argue that knowing the key guiding principles in Indigenous health research is not always enough, and that the 'real-world' context of practices and relationships can lead to conflicts that are not easily resolved with adherence to these principles.
Copyright © 2016 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Aboriginal health; Circumpolar health; Community-based participatory research; Decolonizing methodologies; Fetal alcohol spectrum disorder; Indigenous health; Qualitative

Mesh:

Year:  2016        PMID: 27883930     DOI: 10.1016/j.socscimed.2016.11.007

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  12 in total

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Authors:  Sarah Hyett; Stacey Marjerrison; Chelsea Gabel
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Review 2.  Who is research serving? A systematic realist review of circumpolar environment-related Indigenous health literature.

Authors:  Jen Jones; Ashlee Cunsolo; Sherilee L Harper
Journal:  PLoS One       Date:  2018-05-24       Impact factor: 3.240

3.  Managerial leadership for research use in nursing and allied health care professions: a systematic review.

Authors:  Wendy A Gifford; Janet E Squires; Douglas E Angus; Lisa A Ashley; Lucie Brosseau; Janet M Craik; Marie-Cécile Domecq; Mary Egan; Paul Holyoke; Linda Juergensen; Lars Wallin; Liquaa Wazni; Ian D Graham
Journal:  Implement Sci       Date:  2018-09-27       Impact factor: 7.327

Review 4.  Connecting knowledge with action for health equity: a critical interpretive synthesis of promising practices.

Authors:  Katrina M Plamondon; C Susana Caxaj; Ian D Graham; Joan L Bottorff
Journal:  Int J Equity Health       Date:  2019-12-26

5.  Reciprocal Inuit and Western research training: facilitating research capacity and community agency in Arctic research partnerships.

Authors:  Priscilla Ferrazzi; Peter Christie; Djenana Jalovcic; Shirley Tagalik; Alanna Grogan
Journal:  Int J Circumpolar Health       Date:  2018-12       Impact factor: 1.228

6.  An "All Teach, All Learn" Approach to Research Capacity Strengthening in Indigenous Primary Health Care Continuous Quality Improvement.

Authors:  Karen McPhail-Bell; Veronica Matthews; Roxanne Bainbridge; Michelle Louise Redman-MacLaren; Deborah Askew; Shanthi Ramanathan; Jodie Bailie; Ross Bailie
Journal:  Front Public Health       Date:  2018-04-30

7.  Tracking progress in suicide prevention in Indigenous communities: a challenge for public health surveillance in Canada.

Authors:  Nathaniel J Pollock; Gwen K Healey; Michael Jong; James E Valcour; Shree Mulay
Journal:  BMC Public Health       Date:  2018-11-27       Impact factor: 3.295

8.  Fostering the conduct of ethical and equitable research practices: the imperative for integrated knowledge translation in research conducted by and with indigenous community members.

Authors:  Janet Jull; Melody Morton-Ninomiya; Irene Compton; Annie Picard
Journal:  Res Involv Engagem       Date:  2018-11-26

9.  What does it mean to conduct participatory research with Indigenous peoples? A lexical review.

Authors:  Ann Dadich; Loretta Moore; Valsamma Eapen
Journal:  BMC Public Health       Date:  2019-10-29       Impact factor: 3.295

Review 10.  Community engagement approaches for Indigenous health research: recommendations based on an integrative review.

Authors:  Chu Yang Lin; Adalberto Loyola-Sanchez; Elaine Boyling; Cheryl Barnabe
Journal:  BMJ Open       Date:  2020-11-27       Impact factor: 2.692

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