Literature DB >> 29736794

Quality, Readability, and Understandability of German Booklets Addressing Melanoma Patients.

Julia Brütting1, Lydia Reinhardt2, Maike Bergmann2, Dirk Schadendorf3, Christiane Weber4, Wolfgang Tilgen5, Carola Berking6, Friedegund Meier2.   

Abstract

Booklets are the preferably used form among patient education materials and are often handed out during medical consultations in dermatological oncology settings. However, little is known about how beneficial they are and whether they correspond to essential quality characteristics. To assess the quality, readability, and understandability of currently freely available booklets written in German addressing melanoma patients (MP). Melanoma booklets in accordance with predefined criteria were searched and analyzed. Three reviewers independently assessed their quality and understandability by applying the DISCERN tool and PEMAT-P. The Flesch Reading Ease Score (FRES) was calculated to determine readability. Nine booklets addressing MP were analyzed. The overall median DISCERN score was 3.6 (interquartile range (IQR) 2.9-4.1), median PEMAT-P score was 91% (IQR 83-94.5), and median FRES was 43 (IQR 33.5-47.5), indicating a medium quality, a high application of understandability elements, but low readability in at least half of the booklets. Incomplete reporting on treatments and insufficient meta-information caused the main quality deficits. There is a need of content and didactic revision of German booklets for MP to raise their quality and to make them beneficial and understandable for more patients. An adaption in accordance with evidence-based criteria and an even stronger involvement of MP in assessment and development of patient education material are considered to be the best approaches.

Entities:  

Keywords:  Booklets; Health communication; Information dissemination; Melanoma; Patient education; Qualitative evaluation; Readability

Year:  2019        PMID: 29736794     DOI: 10.1007/s13187-018-1369-x

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  19 in total

1.  Influences, usage, and outcomes of Internet health information searching: multivariate results from the Pew surveys.

Authors:  Ronald E Rice
Journal:  Int J Med Inform       Date:  2005-08-24       Impact factor: 4.046

2.  DISCERN: an instrument for judging the quality of written consumer health information on treatment choices.

Authors:  D Charnock; S Shepperd; G Needham; R Gann
Journal:  J Epidemiol Community Health       Date:  1999-02       Impact factor: 3.710

3.  Patient, companion, and oncologist agreement regarding information discussed during triadic oncology clinical interactions.

Authors:  Susan Eggly; Louis A Penner; Nao Hagiwara; Richard Gonzalez; Felicity W K Harper; Elisabeth I Heath; Terrance L Albrecht
Journal:  Psychooncology       Date:  2012-02-15       Impact factor: 3.894

4.  Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.

Authors:  Glyn Elwyn; Annette O'Connor; Dawn Stacey; Robert Volk; Adrian Edwards; Angela Coulter; Richard Thomson; Alexandra Barratt; Michael Barry; Steven Bernstein; Phyllis Butow; Aileen Clarke; Vikki Entwistle; Deb Feldman-Stewart; Margaret Holmes-Rovner; Hilary Llewellyn-Thomas; Nora Moumjid; Al Mulley; Cornelia Ruland; Karen Sepucha; Alan Sykes; Tim Whelan
Journal:  BMJ       Date:  2006-08-14

Review 5.  Health literacy and cancer communication.

Authors:  Terry C Davis; Mark V Williams; Estela Marin; Ruth M Parker; Jonathan Glass
Journal:  CA Cancer J Clin       Date:  2002 May-Jun       Impact factor: 508.702

Review 6.  The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence.

Authors:  Peter S Houts; Cecilia C Doak; Leonard G Doak; Matthew J Loscalzo
Journal:  Patient Educ Couns       Date:  2005-08-24

Review 7.  Ensuring quality information for patients: development and preliminary validation of a new instrument to improve the quality of written health care information.

Authors:  Beki Moult; Linda S Franck; Helen Brady
Journal:  Health Expect       Date:  2004-06       Impact factor: 3.377

8.  Improving the usability of patient information leaflets.

Authors:  Henk Pander Maat; Leo Lentz
Journal:  Patient Educ Couns       Date:  2009-10-23

9.  Online information needs of cancer patients and their organizations.

Authors:  C Maddock; I Lewis; K Ahmad; R Sullivan
Journal:  Ecancermedicalscience       Date:  2011-11-09

10.  Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi).

Authors:  Glyn Elwyn; Annette M O'Connor; Carol Bennett; Robert G Newcombe; Mary Politi; Marie-Anne Durand; Elizabeth Drake; Natalie Joseph-Williams; Sara Khangura; Anton Saarimaki; Stephanie Sivell; Mareike Stiel; Steven J Bernstein; Nananda Col; Angela Coulter; Karen Eden; Martin Härter; Margaret Holmes Rovner; Nora Moumjid; Dawn Stacey; Richard Thomson; Tim Whelan; Trudy van der Weijden; Adrian Edwards
Journal:  PLoS One       Date:  2009-03-04       Impact factor: 3.240

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  4 in total

1.  "I Feel I'm in Best Hands with You!": A Survey of Patient Satisfac-tion in a German University Skin Cancer Centre.

Authors:  Theresa Steeb; Anja Wessely; Heike Merkl; Michael C Kirchberger; Caroline Voskens; Michael Erdmann; Lucie Heinzerling; Carola Berking; Markus V Heppt
Journal:  Acta Derm Venereol       Date:  2021-06-28       Impact factor: 3.875

2.  Experiences of In-Patients with Skin Cancer in a German University Hospital Setting: A Cross-Sectional Survey.

Authors:  Theresa Steeb; Anja Wessely; Heike Merkl; Caroline Voskens; Michael Erdmann; Lucie Heinzerling; Carola Berking; Markus V Heppt
Journal:  Patient Prefer Adherence       Date:  2021-01-12       Impact factor: 2.711

3.  Parental Cancer: Acceptance and Usability of an Information Booklet for Affected Parents.

Authors:  Leslie Melchiors; Wiebke Geertz; Laura Inhestern
Journal:  Front Psychol       Date:  2022-02-24

4.  Assessment of the Quality, Understandability, and Reliability of YouTube Videos as a Source of Information on Basal Cell Carcinoma: Web-Based Analysis.

Authors:  Theresa Steeb; Lydia Reinhardt; Matthias Harlaß; Markus Vincent Heppt; Friedegund Meier; Carola Berking
Journal:  JMIR Cancer       Date:  2022-03-11
  4 in total

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