Literature DB >> 29700707

Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample.

Katharine E Zuckerman1,2, Olivia J Lindly3,4, Nuri M Reyes5, Alison E Chavez3,6, Maritza Cobian3,7, Kristy Macias8,9, Ann M Reynolds10, Kathryn A Smith8,9.   

Abstract

In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a single factor solution with 8 items showing good internal consistency. Regression modeling suggested that stigma score was associated with unmet ASD care needs but not therapy hours or therapy types. Child public insurance, parent nativity, number of children with ASD in the household, parent-reported ASD severity, and family structure, were associated with higher stigma score. The scale and the scale's associations with service use may be useful to those attempting to measure or reduce ASD stigma.

Entities:  

Keywords:  Autism spectrum disorder; Developmental disability; Health care surveys; Healthcare disparities; Mental health services; Stigma

Mesh:

Year:  2018        PMID: 29700707     DOI: 10.1007/s10803-018-3586-x

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  29 in total

1.  How stigma interferes with mental health care.

Authors:  Patrick Corrigan
Journal:  Am Psychol       Date:  2004-10

2.  Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability?

Authors:  S Werner; C Shulman
Journal:  J Intellect Disabil Res       Date:  2014-04-24

3.  Latino parents' perspectives on barriers to autism diagnosis.

Authors:  Katharine E Zuckerman; Brianna Sinche; Angie Mejia; Martiza Cobian; Thomas Becker; Christina Nicolaidis
Journal:  Acad Pediatr       Date:  2014 May-Jun       Impact factor: 3.107

4.  Access to care for autism-related services.

Authors:  Kathleen C Thomas; Alan R Ellis; Carolyn McLaurin; Julie Daniels; Joseph P Morrissey
Journal:  J Autism Dev Disord       Date:  2007-03-19

5.  Mental patient status, work, and income: an examination of the effects of a psychiatric label.

Authors:  B Link
Journal:  Am Sociol Rev       Date:  1982-04

6.  The stigma of psychiatric disorders and the gender, ethnicity, and education of the perceiver.

Authors:  Patrick W Corrigan; Amy C Watson
Journal:  Community Ment Health J       Date:  2007-09-18

7.  Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families' Lives.

Authors:  Sydney H Kinnear; Bruce G Link; Michelle S Ballan; Ruth L Fischbach
Journal:  J Autism Dev Disord       Date:  2016-03

8.  Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children's Health.

Authors:  Gregory S Liptak; Lauren B Benzoni; Daniel W Mruzek; Karen W Nolan; Melissa A Thingvoll; Christine M Wade; G Edgar Fryer
Journal:  J Dev Behav Pediatr       Date:  2008-06       Impact factor: 2.225

9.  Family impacts among children with autism spectrum disorder: the role of health care quality.

Authors:  Katharine E Zuckerman; Olivia J Lindly; Christina D Bethell; Karen Kuhlthau
Journal:  Acad Pediatr       Date:  2014 Jul-Aug       Impact factor: 3.107

10.  Spending by California's Department of Developmental Services for Persons with Autism across Demographic and Expenditure Categories.

Authors:  J Paul Leigh; Scott D Grosse; Diana Cassady; Joy Melnikow; Irva Hertz-Picciotto
Journal:  PLoS One       Date:  2016-03-25       Impact factor: 3.240

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  10 in total

1.  Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review.

Authors:  Karla Rivera-Figueroa; Nana Yaa A Marfo; Inge-Marie Eigsti
Journal:  Am J Intellect Dev Disabil       Date:  2022-01-01

Review 2.  Understanding the Barriers to Receiving Autism Diagnoses for Hispanic and Latinx Families.

Authors:  Maria Gabriela Balsa Guerrero; Sarah A Sobotka
Journal:  Pediatr Ann       Date:  2022-04-01       Impact factor: 1.523

3.  Parents' Use of Complementary Health Approaches for Young Children with Autism Spectrum Disorder.

Authors:  Olivia J Lindly; Sheryl Thorburn; Karen Heisler; Nuri M Reyes; Katharine E Zuckerman
Journal:  J Autism Dev Disord       Date:  2018-05

4.  Perceived Stigma Among Serbian Parents of Children with Autism Spectrum Disorder and Children with Physical Disabilities: Validation of a New Instrument.

Authors:  Marija Čolić; Ivona Milačić-Vidojević
Journal:  J Autism Dev Disord       Date:  2021-02

5.  Externalizing Behaviors are Associated with Increased Parenting Stress in Caregivers of Young Children with Autism.

Authors:  Lindsay Olson; Bosi Chen; Cynthia Ibarra; Tiffany Wang; Lisa Mash; Annika Linke; Mikaela Kinnear; Inna Fishman
Journal:  J Autism Dev Disord       Date:  2021-04-10

6.  Prevalence of perceived stigma and associated factors among primary caregivers of children and adolescents with mental illness, Addis Ababa, Ethiopia: Cross-sectional study.

Authors:  Woredaw Minichil; Wondale Getinet; Tilahun Kassew
Journal:  PLoS One       Date:  2021-12-20       Impact factor: 3.240

7.  Children of Parents With a Mental Illness-Stigma Questionnaire: Development and Piloting.

Authors:  Lisa-Marie Dobener; Markus Stracke; Kathrin Viehl; Hanna Christiansen
Journal:  Front Psychiatry       Date:  2022-04-08       Impact factor: 5.435

8.  Analysis of Spanish Parents' Knowledge about ASD and Their Attitudes towards Inclusive Education.

Authors:  Irene Gómez-Marí; Raúl Tárraga-Mínguez; Gemma Pastor-Cerezuela
Journal:  Eur J Investig Health Psychol Educ       Date:  2022-07-21

Review 9.  Barriers to access and utilization of healthcare services for minority-language speakers with neurodevelopmental disorders: A scoping review.

Authors:  Myriam L H Beauchamp; Kaela Amorim; Samantha N Wunderlich; Jonathan Lai; Julie Scorah; Mayada Elsabbagh
Journal:  Front Psychiatry       Date:  2022-08-25       Impact factor: 5.435

10.  Perceived community disability stigma in multicultural, low-income populations: Measure development and validation.

Authors:  Monica M Abdul-Chani; Christopher P Moreno; Julie A Reeder; Katharine E Zuckerman; Olivia J Lindly
Journal:  Res Dev Disabil       Date:  2021-05-29
  10 in total

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