Emma Kemp1,2, Bogda Koczwara3,4, Phyllis Butow5, Jane Turner6, Afaf Girgis7, Penelope Schofield8, Nicholas Hulbert-Williams9, Janelle Levesque7, Danielle Spence10, Sina Vatandoust3,4, Ganessan Kichenadasse3,4, Amitesh Roy3,4, Shawgi Sukumaran3,4, Christos S Karapetis3,4, Caroline Richards4, Michael Fitzgerald4, Lisa Beatty3,4. 1. College of Medicine and Public Health, Flinders University, GPO Box 2100, Adelaide, South Australia, 5001, Australia. emma.kemp@flinders.edu.au. 2. Flinders Centre for Innovation in Cancer, Bedford Park, South Australia, Australia. emma.kemp@flinders.edu.au. 3. College of Medicine and Public Health, Flinders University, GPO Box 2100, Adelaide, South Australia, 5001, Australia. 4. Flinders Centre for Innovation in Cancer, Bedford Park, South Australia, Australia. 5. School of Psychology, University of Sydney, Camperdown, New South Wales, Australia. 6. School of Medicine, University of Queensland, Herston, New South Wales, Australia. 7. Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, University of New South Wales, Liverpool, New South Wales, Australia. 8. Department of Psychology, Swinburne University of Technology, Hawthorn, Victoria, Australia. 9. Chester Research Unit for the Psychology of Health, Department of Psychology, University of Chester, Chester, UK. 10. Breast Cancer Network Australia, Camberwell, Victoria, Australia.
Abstract
PURPOSE: Women with advanced breast cancer (ABC) face significant adjustment challenges, yet few resources provide them with information and support, and attendance barriers can preclude access to face-to-face psychosocial support. This paper reports on two qualitative studies examining (i) whether information and support-seeking preferences of women with ABC could be addressed in an online intervention, and (ii) how an existing intervention for patients with early stage cancer could be adapted for women with ABC. METHODS: Women with ABC participated in telephone interviews about their information and support-seeking preferences (N = 21) and evaluated an online intervention focused on early-stage cancer (N = 15). Interviews were transcribed and underwent thematic analysis using the framework method to identify salient themes. RESULTS: Participants most commonly sought medical, lifestyle-related, and practical information/support; however, when presented with an online intervention, participants most commonly gave positive feedback on content on coping with emotional distress. Difficulty finding information and barriers to using common sources of information/support including health professionals, family and friends, and peers were reported; however, some women also reported not wanting information or support. All participants evaluating the existing intervention gave positive feedback on various components, with results suggesting an online intervention could be an effective means of providing information/support to women with ABC, given improved specificity/relevance to ABC and increased tailoring to individual circumstances and preferences. CONCLUSIONS: Adaptation of an existing online intervention for early stage cancer appears to be a promising avenue to address the information and support needs of women with ABC.
PURPOSE:Women with advanced breast cancer (ABC) face significant adjustment challenges, yet few resources provide them with information and support, and attendance barriers can preclude access to face-to-face psychosocial support. This paper reports on two qualitative studies examining (i) whether information and support-seeking preferences of women with ABC could be addressed in an online intervention, and (ii) how an existing intervention for patients with early stage cancer could be adapted for women with ABC. METHODS:Women with ABC participated in telephone interviews about their information and support-seeking preferences (N = 21) and evaluated an online intervention focused on early-stage cancer (N = 15). Interviews were transcribed and underwent thematic analysis using the framework method to identify salient themes. RESULTS:Participants most commonly sought medical, lifestyle-related, and practical information/support; however, when presented with an online intervention, participants most commonly gave positive feedback on content on coping with emotional distress. Difficulty finding information and barriers to using common sources of information/support including health professionals, family and friends, and peers were reported; however, some women also reported not wanting information or support. All participants evaluating the existing intervention gave positive feedback on various components, with results suggesting an online intervention could be an effective means of providing information/support to women with ABC, given improved specificity/relevance to ABC and increased tailoring to individual circumstances and preferences. CONCLUSIONS: Adaptation of an existing online intervention for early stage cancer appears to be a promising avenue to address the information and support needs of women with ABC.
Entities:
Keywords:
Advanced breast cancer; Information and support needs; Internet use; eHealth intervention
Authors: Joshua Fogel; Steven M Albert; Freya Schnabel; Beth Ann Ditkoff; Alfred I Neugut Journal: J Med Internet Res Date: 2002 Apr-Nov Impact factor: 5.428
Authors: Josemari T Feliciano; Liz Salmi; Charlie Blotner; Adam Hayden; Edjah K Nduom; Bethany M Kwan; Matthew S Katz; Elizabeth B Claus Journal: J Med Internet Res Date: 2020-10-08 Impact factor: 5.428
Authors: Noorsuzana Mohd Shariff; Nizuwan Azman; Rohayu Hami; Noor Mastura Mohd Mujar; Mohammad Farris Iman Leong Bin Abdullah Journal: BMJ Open Date: 2021-03-15 Impact factor: 2.692
Authors: Saima N Hossain; Susan B Jaglal; John Shepherd; Laure Perrier; Jennifer R Tomasone; Shane N Sweet; Dorothy Luong; Sonya Allin; Michelle L A Nelson; Sarah E P Munce; Sara J T Guilcher Journal: JMIR Rehabil Assist Technol Date: 2021-05-25
Authors: Tao Wang; Alex Molassiotis; Betty Pui Man Chung; Si-Lin Zheng; Hou-Qiang Huang; Jing-Yu Benjamin Tan Journal: BMC Palliat Care Date: 2021-06-07 Impact factor: 3.234