Literature DB >> 29649404

Development of Valid and Reliable Measures of Patient and Family Experiences of Hospice Care for Public Reporting.

Rebecca Anhang Price1, Brian Stucky2, Layla Parast3, Marc N Elliott3, Ann Haas4, Melissa Bradley1, Joan M Teno5.   

Abstract

BACKGROUND: Increasingly, dying patients and their families have a choice of hospice providers. Care quality varies considerably across providers; informing consumers of these differences may help to improve their selection of hospices.
OBJECTIVE: To develop and evaluate standardized survey measures of hospice care experiences for the purpose of comparing and publicly reporting hospice performance.
DESIGN: We assessed item performance and constructed composite measures by factor analysis, evaluating item-scale correlations and estimating reliability. To assess key drivers of overall experiences, we regressed overall rating and willingness to recommend the hospice on each composite. SETTING/
SUBJECTS: Data submitted by 2500 hospices participating in national implementation of the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Hospice Survey for April through September 2015. MEASUREMENTS: Composite measures of Hospice Team Communication, Getting Timely Care, Treating Family Member with Respect, Getting Emotional and Religious Support, Getting Help for Symptoms, and Getting Hospice Care Training.
RESULTS: Cronbach's alpha estimates for the composite measures range from 0.61 to 0.85; hospice-level reliability for the measures range from 0.67 to 0.81 assuming 200 completed surveys per hospice. Together, the composites are responsible for 48% of the variance in caregivers' overall ratings of hospices. Hospice Team Communication is the strongest predictor of overall rating of care.
CONCLUSION: Our analyses provide evidence of the reliability and validity of CAHPS Hospice Survey measure scores. Results also highlight important opportunities to improve the quality of hospice care, particularly with regard to addressing symptoms of anxiety and sadness, discussing side effects of pain medicine, and keeping family informed of the patient's condition.

Entities:  

Keywords:  CAHPS; bereaved family survey; hospice care; patient and family care experiences; quality measurement

Mesh:

Year:  2018        PMID: 29649404     DOI: 10.1089/jpm.2017.0594

Source DB:  PubMed          Journal:  J Palliat Med        ISSN: 1557-7740            Impact factor:   2.947


  15 in total

1.  The effect of different sampling and recall periods in the CAHPS Clinician & Group (CG-CAHPS) survey.

Authors:  J Lee Hargraves; Carol Cosenza; Marc N Elliott; Paul D Cleary
Journal:  Health Serv Res       Date:  2019-05-27       Impact factor: 3.402

2.  Family Perceptions of Quality of End-of-Life Care for Veterans with Advanced CKD.

Authors:  Claire A Richards; Chuan-Fen Liu; Paul L Hebert; Mary Ersek; Melissa W Wachterman; Lynn F Reinke; Leslie L Taylor; Ann M O'Hare
Journal:  Clin J Am Soc Nephrol       Date:  2019-08-29       Impact factor: 8.237

3.  Do Caregiver Experiences Shape End-of-Life Care Perceptions? Burden, Benefits, and Care Quality Assessment.

Authors:  Elizabeth A Luth; Teja Pristavec
Journal:  J Pain Symptom Manage       Date:  2019-08-13       Impact factor: 3.612

4.  Late Transitions and Bereaved Family Member Perceptions of Quality of End-of-Life Care.

Authors:  Lena K Makaroun; Joan M Teno; Vicki A Freedman; Judith D Kasper; Pedro Gozalo; Vincent Mor
Journal:  J Am Geriatr Soc       Date:  2018-07-04       Impact factor: 5.562

5.  Selecting Outcomes to Ensure Pragmatic Trials Are Relevant to People Living with Dementia.

Authors:  Laura C Hanson; Antonia V Bennett; Mattias Jonsson; Amy Kelley; Christine Ritchie; Debra Saliba; Joan Teno; Sheryl Zimmerman
Journal:  J Am Geriatr Soc       Date:  2020-07       Impact factor: 5.562

6.  Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer.

Authors:  Prasanna Ananth; Sophia Mun; Noora Reffat; Soo Jung Kang; Sarah Pitafi; Xiaomei Ma; Cary P Gross; Joanne Wolfe
Journal:  JCO Oncol Pract       Date:  2021-10-06

7.  Is every day at home a good day?

Authors:  Claire K Ankuda; David C Grabowski
Journal:  J Am Geriatr Soc       Date:  2022-08-02       Impact factor: 7.538

8.  Improving Care Experiences for Patients and Caregivers at End of Life: A Systematic Review.

Authors:  Denise D Quigley; Sara G McCleskey
Journal:  Am J Hosp Palliat Care       Date:  2020-06-19       Impact factor: 2.500

9.  Hospice Care Experiences Among Cancer Patients and Their Caregivers.

Authors:  Layla Parast; Anagha A Tolpadi; Joan M Teno; Marc N Elliott; Rebecca Anhang Price
Journal:  J Gen Intern Med       Date:  2021-01-19       Impact factor: 5.128

Review 10.  High-Quality Nursing Home and Palliative Care-One and the Same.

Authors:  Mary Ersek; Kathleen T Unroe; Joan G Carpenter; John G Cagle; Caroline E Stephens; David G Stevenson
Journal:  J Am Med Dir Assoc       Date:  2021-12-23       Impact factor: 4.669

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