Literature DB >> 29634391

Collaborating with Adolescents and Young Adults with Cancer as Advisors.

Meghan E McGrady1,2, Robin E Norris2,3, Ahna L H Pai1,2.   

Abstract

There is a growing interest by both pediatric and medical oncologists to develop adolescent and young adult (AYA)-specific cancer programs. Input from AYA patients is critical to the successful design of these programs and to ensuring that patient needs are met. As traditional in-person advisory groups may not be the most appropriate means for engaging AYAs, this article describes the creation and implementation of a novel, developmentally appropriate, and efficient Young Adult Advisory Program. Reach, uptake, and participant demographic and clinical characteristics are presented alongside lessons learned. The findings are offered to assist others seeking to engage AYAs in program development and quality improvement efforts.

Entities:  

Keywords:  Advisory Committee; healthcare systems; patient engagement; patient participation

Mesh:

Year:  2018        PMID: 29634391      PMCID: PMC6083210          DOI: 10.1089/jayao.2018.0013

Source DB:  PubMed          Journal:  J Adolesc Young Adult Oncol        ISSN: 2156-5333            Impact factor:   2.223


  6 in total

1.  Building the business case for patient-centered care.

Authors:  Patrick A Charmel; Susan B Frampton
Journal:  Healthc Financ Manage       Date:  2008-03

2.  Starting an adolescent and young adult program: some success stories and some obstacles to overcome.

Authors:  Andrea Ferrari; David Thomas; Anna R K Franklin; Brandon M Hayes-Lattin; Maurizio Mascarin; Winette van der Graaf; Karen H Albritton
Journal:  J Clin Oncol       Date:  2010-05-17       Impact factor: 44.544

Review 3.  Cancer in Adolescents and Young Adults: A Narrative Review of the Current Status and a View of the Future.

Authors:  Ronald D Barr; Andrea Ferrari; Lynn Ries; Jeremy Whelan; W Archie Bleyer
Journal:  JAMA Pediatr       Date:  2016-05-01       Impact factor: 16.193

4.  How to develop a patient and carer advisory group in a quality improvement study.

Authors:  Fiona Loud; Neerja Jain; Nicola Thomas
Journal:  J Ren Care       Date:  2013-09

5.  (I Can't Get No) Saturation: A simulation and guidelines for sample sizes in qualitative research.

Authors:  Frank J van Rijnsoever
Journal:  PLoS One       Date:  2017-07-26       Impact factor: 3.240

6.  How to develop a patient and carer advisory group in stroke care research.

Authors:  Sarah Sims; Sally Brearley; Gillian Hewitt; Nan Greenwood; Fiona Jones; Fiona Ross; Ruth Harris
Journal:  Nurse Res       Date:  2013-01
  6 in total
  1 in total

1.  Active and Protected: Developing a "Safer Sex" Handout for Adolescents and Young Adults with Cancer.

Authors:  Meghan E McGrady; Donna Lemaster Bredenberg; Lara Danziger-Isakov; Julie Rios; Olivia Frias; Michelle Y West; Paula Fisher; Ralph Salloum; Joseph G Pressey; Robin E Norris
Journal:  J Adolesc Young Adult Oncol       Date:  2020-10-20       Impact factor: 1.757

  1 in total

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