BACKGROUND: This paper explores how a group of people with renal or other vascular conditions collaborated with renal practitioners in undertaking a quality improvement project, the aim of which was to reduce variation in care for people with Stages 3-4 chronic kidney disease. DEVELOPMENT AND ROLE OF THE GROUP: The patient advisory group supporting the project took a decisive and leading role in the creation of self-management materials and subsequent training for healthcare professionals and patients. The role of the patient advisory group was evaluated informally throughout the project. Confidence amongst the patient advisory group members grew as the project developed. CONCLUSION: Clinicians are often unclear on how to involve patients and carers in quality improvement projects, yet it is increasingly recognised as important. In practice, patients with experience of long-term conditions can co-lead quality improvement projects. It is recommended that further evaluation of the role of advisory groups is warranted.
BACKGROUND: This paper explores how a group of people with renal or other vascular conditions collaborated with renal practitioners in undertaking a quality improvement project, the aim of which was to reduce variation in care for people with Stages 3-4 chronic kidney disease. DEVELOPMENT AND ROLE OF THE GROUP: The patient advisory group supporting the project took a decisive and leading role in the creation of self-management materials and subsequent training for healthcare professionals and patients. The role of the patient advisory group was evaluated informally throughout the project. Confidence amongst the patient advisory group members grew as the project developed. CONCLUSION: Clinicians are often unclear on how to involve patients and carers in quality improvement projects, yet it is increasingly recognised as important. In practice, patients with experience of long-term conditions can co-lead quality improvement projects. It is recommended that further evaluation of the role of advisory groups is warranted.
Authors: Claire E O'Hanlon; Karleen F Giannitrapani; Charlotta Lindvall; Raziel C Gamboa; Mark Canning; Steven M Asch; Melissa M Garrido; Anne M Walling; Karl A Lorenz Journal: J Gen Intern Med Date: 2021-08-17 Impact factor: 6.473
Authors: Karin E Johnson; Tracy M Mroz; Marie Abraham; Marlaine Figueroa Gray; Mary Minniti; Wendy Nickel; Robert Reid; Jennifer Sweeney; Dominick L Frosch; Debra L Ness; Clarissa Hsu Journal: Adv Ther Date: 2016-06-28 Impact factor: 3.845
Authors: Hugh Gallagher; Shona Methven; Anna Casula; Nicola Thomas; Charles R V Tomson; Fergus J Caskey; Tracey Rose; Stephen J Walters; David Kennedy; Anne Dawnay; Martin Cassidy; Richard Fluck; Hugh C Rayner; Michael Nation Journal: BMC Nephrol Date: 2017-04-11 Impact factor: 2.388