Literature DB >> 29632227

A Community Engagement Method to Design Patient Engagement Materials for Cardiovascular Health.

Aimee F English1, L Miriam Dickinson2, Linda Zittleman2, Donald E Nease2, Alisha Herrick3, John M Westfall2, Matthew J Simpson2, Douglas H Fernald2, Robert L Rhyne3, W Perry Dickinson2.   

Abstract

PURPOSE: EvidenceNOW Southwest is a cluster-randomized trial evaluating the differential impact on cardiovascular disease (CVD) care of engaging patients and communities in practice transformation in addition to standard practice facilitation support. The trial included development of locally tailored CVD patient engagement materials through Boot Camp Translation (BCT), a community engagement process that occurred before practice recruitment but after cluster randomization.
METHODS: We introduce a cluster randomization method performed before recruitment of small to medium-size primary care practices in Colorado and New Mexico, which allowed for balanced study arms while minimizing contamination. Engagement materials for the enhanced study arm were developed by means of BCT, which included community members, practice members, and public health professionals from (1) metropolitan Denver, (2) rural northeast Colorado, (3) Albuquerque, and (4) rural southeast New Mexico. Outcome measures were messages and materials from BCTs and population characteristics of study arms after using geographic-based covariate constrained randomization.
RESULTS: The 4 BCTs' messages and materials developed by the BCT groups uniquely reflected each community and ranged from family or spiritual values to early prevention or adding relevance to CVD risk. The geographic-based covariate of a cluster randomization method constrained randomization-assigned regions to study arms, allowing BCTs to precede practice recruitment, reduce contamination, and balance populations.
CONCLUSIONS: Cluster-randomized trials with community-based interventions present study design and implementation challenges. The BCTs elicited unique contextual messages and materials, suggesting that interventions designed to help primary care practices decrease CVD risk may not be one size fits all.
© 2018 Annals of Family Medicine, Inc.

Entities:  

Keywords:  cardiovascular disease risk reduction; community engagement; patient engagement; practice transformation; primary health care

Mesh:

Year:  2018        PMID: 29632227      PMCID: PMC5891315          DOI: 10.1370/afm.2173

Source DB:  PubMed          Journal:  Ann Fam Med        ISSN: 1544-1709            Impact factor:   5.166


  18 in total

1.  Psychometric properties of the patient activation measure among multimorbid older adults.

Authors:  Richard L Skolasky; Ariel Frank Green; Daniel Scharfstein; Chad Boult; Lisa Reider; Stephen T Wegener
Journal:  Health Serv Res       Date:  2010-11-19       Impact factor: 3.402

2.  Is patient activation associated with outcomes of care for adults with chronic conditions?

Authors:  David M Mosen; Julie Schmittdiel; Judith Hibbard; David Sobel; Carol Remmers; Jim Bellows
Journal:  J Ambul Care Manage       Date:  2007 Jan-Mar

3.  Hospital admissions, emergency department utilisation and patient activation for self-management among people with diabetes.

Authors:  Nelufa Begum; Maria Donald; Ieva Z Ozolins; Jo Dower
Journal:  Diabetes Res Clin Pract       Date:  2011-06-17       Impact factor: 5.602

4.  Activation among chronically ill older adults with complex medical needs: challenges to supporting effective self-management.

Authors:  Linda M Gerber; Yolanda Barrón; Jennifer Mongoven; Margaret McDonald; Ernesto Henriquez; Evie Andreopoulos; Penny H Feldman
Journal:  J Ambul Care Manage       Date:  2011 Jul-Sep

5.  Validation of the patient activation measure in a multiple sclerosis clinic sample and implications for care.

Authors:  Lara Stepleman; Marie-Christine Rutter; Judith Hibbard; Lisa Johns; Dustin Wright; Mary Hughes
Journal:  Disabil Rehabil       Date:  2010       Impact factor: 3.033

6.  Pragmatic Cluster Randomized Trials Using Covariate Constrained Randomization: A Method for Practice-based Research Networks (PBRNs).

Authors:  L Miriam Dickinson; Brenda Beaty; Chet Fox; Wilson Pace; W Perry Dickinson; Caroline Emsermann; Allison Kempe
Journal:  J Am Board Fam Med       Date:  2015 Sep-Oct       Impact factor: 2.657

7.  An evaluation of constrained randomization for the design and analysis of group-randomized trials.

Authors:  Fan Li; Yuliya Lokhnygina; David M Murray; Patrick J Heagerty; Elizabeth R DeLong
Journal:  Stat Med       Date:  2015-11-23       Impact factor: 2.373

8.  Engaging patients in primary care practice transformation: theory, evidence and practice.

Authors:  Anjana E Sharma; Kevin Grumbach
Journal:  Fam Pract       Date:  2017-06-01       Impact factor: 2.267

Review 9.  Allocation techniques for balance at baseline in cluster randomized trials: a methodological review.

Authors:  Noah M Ivers; Ilana J Halperin; Jan Barnsley; Jeremy M Grimshaw; Baiju R Shah; Karen Tu; Ross Upshur; Merrick Zwarenstein
Journal:  Trials       Date:  2012-08-01       Impact factor: 2.279

10.  Involving patients in setting priorities for healthcare improvement: a cluster randomized trial.

Authors:  Antoine Boivin; Pascale Lehoux; Réal Lacombe; Jako Burgers; Richard Grol
Journal:  Implement Sci       Date:  2014-02-20       Impact factor: 7.327

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  9 in total

1.  It's time for a change!: The appreciative inquiry/bootcamp translation to address disparities in the Latino community with autism spectrum disorders.

Authors:  Eric J Moody; Bryn Harris; Linda Zittleman; Donald E Nease; John M Westfall
Journal:  Cultur Divers Ethnic Minor Psychol       Date:  2019-01

2.  A Telehealth Diabetes Intervention for Rural Populations: Protocol for a Randomized Controlled Trial.

Authors:  Michelle L Litchman; Bethany M Kwan; Linda Zittleman; Juliana Simonetti; Eli Iacob; Kristen Curcija; Julie Neuberger; Gwen Latendress; Tamara K Oser
Journal:  JMIR Res Protoc       Date:  2022-06-14

3.  Informing a Randomized Control Trial in Rural Populations: Adaptation of a Diabetes Self-Management Education and Support Intervention.

Authors:  Tamara K Oser; Linda Zittleman; Kristen Curcija; Bethany Kwan; Shawnecca Burke; Sindy Gonzalez; Kelsey Huss; Marilee Johnson; Norah Sanchez; Julie Neuberger; Eli Iacob; Juliana Simonetti; Michelle Litchman
Journal:  JMIR Diabetes       Date:  2022-06-10

4.  Practice Transformation Support and Patient Engagement to Improve Cardiovascular Care: From EvidenceNOW Southwest (ENSW).

Authors:  W Perry Dickinson; Donald E Nease; Robert L Rhyne; Kyle E Knierim; Douglas H Fernald; Dionisia R de la Cerda; L Miriam Dickinson
Journal:  J Am Board Fam Med       Date:  2020 Sep-Oct       Impact factor: 2.657

5.  Exemplary Practices in Cardiovascular Care: Results on Clinical Quality Measures from the EvidenceNOW Southwest Cooperative.

Authors:  Douglas H Fernald; Rebecca Mullen; Tristen Hall; Andrew Bienstock; Stephanie Kirchner; Kyle Knierim; Dionisia de la Cerda; Danelle Callan; Robert L Rhyne; L Miriam Dickinson; W Perry Dickinson
Journal:  J Gen Intern Med       Date:  2020-08-17       Impact factor: 5.128

Review 6.  T4 Translational Moonshot: Making Cardiovascular Discoveries Work for Everyone.

Authors:  John M Westfall; George A Mensah
Journal:  Circ Res       Date:  2018-01-19       Impact factor: 17.367

Review 7.  Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation.

Authors:  Dianne Lowe; Rebecca Ryan; Lina Schonfeld; Bronwen Merner; Louisa Walsh; Lisa Graham-Wisener; Sophie Hill
Journal:  Cochrane Database Syst Rev       Date:  2021-09-15

8.  Primary Care Practices' Ability to Report Electronic Clinical Quality Measures in the EvidenceNOW Southwest Initiative to Improve Heart Health.

Authors:  Kyle E Knierim; Tristen L Hall; L Miriam Dickinson; Donald E Nease; Dionisia R de la Cerda; Douglas Fernald; Molly J Bleecker; Robert L Rhyne; W Perry Dickinson
Journal:  JAMA Netw Open       Date:  2019-08-02

9.  Engaging practices and communities in the development of interventions to promote HPV vaccine uptake: a protocol for implementing Boot Camp Translation in the private practice setting.

Authors:  Sarah E Brewer; Matthew J Simpson; John D Rice; Amanda Skenadore; Sean T O'Leary
Journal:  BMJ Open       Date:  2020-12-12       Impact factor: 2.692

  9 in total

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