Literature DB >> 29610402

"A Guide to Gutsy Living": Patient-Driven Development of a Pediatric Ostomy Toolkit.

Jennie G David1, Alexander Jofriet2, Michael Seid3, Peter A Margolis3.   

Abstract

Entities:  

Mesh：

Year:  2018        PMID： 29610402      PMCID： PMC5914495          DOI： 10.1542/peds.2017-2789

Source DB:  PubMed          Journal:  Pediatrics        ISSN： 0031-4005            Impact factor:   7.124


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  12 in total

1.  Pediatric ostomy surgery.

Authors:  Amy Schaffner
Journal:  J Wound Ostomy Continence Nurs       Date:  2010 Sep-Oct       Impact factor: 1.741

2.  Traditional nurse instruction versus 2 session nurse instruction plus DVD for teaching ostomy care: a multisite randomized controlled trial.

Authors:  Debra Crawford; Tracy Texter; Kristin Hurt; Randy VanAelst; Leslie Glaza; Karen J Vander Laan
Journal:  J Wound Ostomy Continence Nurs       Date:  2012 Sep-Oct       Impact factor: 1.741

3.  Discharge planning for a patient with a new ostomy: best practice for clinicians.

Authors:  Anita Prinz; Janice C Colwell; Heidi H Cross; Janet Mantel; Jacqueline Perkins; Cynthia A Walker
Journal:  J Wound Ostomy Continence Nurs       Date:  2015 Jan-Feb       Impact factor: 1.741

Review 4.  Systematic review of educational interventions for ostomates.

Authors:  Uma R Phatak; Linda T Li; Burzeen Karanjawala; George J Chang; Lillian S Kao
Journal:  Dis Colon Rectum       Date:  2014-04       Impact factor: 4.585

Review 5.  ImproveCareNow: The development of a pediatric inflammatory bowel disease improvement network.

Authors:  Wallace Crandall; Michael D Kappelman; Richard B Colletti; Ian Leibowitz; John E Grunow; Sabina Ali; Howard I Baron; James H Berman; Brendan Boyle; Stanley Cohen; Fernando del Rosario; Lee A Denson; Lynn Duffy; Mark J Integlia; Sandra C Kim; David Milov; Ashish S Patel; Bess T Schoen; Dorota Walkiewicz; Peter Margolis
Journal:  Inflamm Bowel Dis       Date:  2011-01       Impact factor: 5.325

Review 6.  Teaching the adult ostomy patient.

Authors:  H S O'Shea
Journal:  J Wound Ostomy Continence Nurs       Date:  2001-01       Impact factor: 1.741

7.  Collaborative Chronic Care Networks (C3Ns) to transform chronic illness care.

Authors:  Peter A Margolis; Laura E Peterson; Michael Seid
Journal:  Pediatrics       Date:  2013-06       Impact factor: 7.124

8.  Coproduction of healthcare service.

Authors:  Maren Batalden; Paul Batalden; Peter Margolis; Michael Seid; Gail Armstrong; Lisa Opipari-Arrigan; Hans Hartung
Journal:  BMJ Qual Saf       Date:  2015-09-16       Impact factor: 7.035

9.  Struggles, strengths, and strategies: an ethnographic study exploring the experiences of adolescents living with an ostomy.

Authors:  David B Nicholas; Sylvia R Swan; Ted J Gerstle; Theresa Allan; Anne Marie Griffiths
Journal:  Health Qual Life Outcomes       Date:  2008-12-17       Impact factor: 3.186

10.  Using goal-directed design to create a novel system for improving chronic illness care.

Authors:  David Fore; Linda M Goldenhar; Peter A Margolis; Michael Seid
Journal:  JMIR Res Protoc       Date:  2013-10-29
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  5 in total

1.  Mixed methods study exploring parent engagement in child health research in British Columbia.

Authors:  Jennifer Smith; Ian Pike; Mariana Brussoni; Lori Tucker; Louise Mâsse; Janet W T Mah; Ainsley Boudreau; Dawn Mount; Russell Bonaguro; Stephanie Glegg; S Amed
Journal:  BMJ Open       Date:  2019-06-01       Impact factor: 2.692

2.  Measuring engagement in a collaborative learning health system: The case of ImproveCareNow.

Authors:  David M Hartley; Christian Keck; Mary Havens; Peter A Margolis; Michael Seid
Journal:  Learn Health Syst       Date:  2020-04-06

3.  Sustainable generation of patient-led resources in a learning health system.

Authors:  Jennie David; Catalina Berenblum Tobi; Samantha Kennedy; Alexander Jofriet; Madeleine Huwe; Rosa Kelekian; Melissa Neihart; Michelle Spotts; Michael Seid; Peter Margolis
Journal:  Learn Health Syst       Date:  2021-02-12

4.  Getting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning Health System.

Authors:  Christian Keck; David M Hartley; Mary Havens; Peter A Margolis; Michael Seid
Journal:  Learn Health Syst       Date:  2021-05-03

5.  A science of collaborative learning health systems.

Authors:  Michael Seid; David M Hartley; Peter A Margolis
Journal:  Learn Health Syst       Date:  2021-06-01
  5 in total

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