Literature DB >> 29578601

Time, trust, and transparency: Lessons learned from collecting blood biospecimens for cancer research from the Asian American community.

Julie H T Dang1, Moon S Chen2,3.   

Abstract

BACKGROUND: Biospecimens from racially diverse groups are needed to advance cancer research. The Asian American Cancer Education Study was developed to increase the number and proportion of blood biospecimen donations from Asian Americans for cancer research.
METHODS: The authors' targeted approach included 2 types of community engagement, in-reach (within institution to Asian American patients with cancer) and outreach (external to institution to the general Asian American community). Participants received in-language biospecimen education followed by the opportunity to donate blood biospecimens. Outreach participants donated through our community biospecimen blood drives, and in-reach participants consented to donating an extra tube of blood during their routine blood draws as a patient. Donated blood biospecimens were spun down to serum and plasma to be stored in a biorepository or were sent to the laboratory to test for cancer-related risk factors.
RESULTS: Three hundred eighty-eight Asian Americans donated 1127 blood biospecimens for cancer research. Four hundred twenty tubes of plasma and serum are currently being stored at the cancer center's biorepository, 39 tubes have been used for cancer genomic research, and 668 tubes were used to characterize cancer-related risk factors.
CONCLUSIONS: Building upon the past decade of the National Cancer Institute-funded Asian American Network for Cancer Awareness, Research, and Training's foundation of trust and service among Asian Americans, researchers were able to leverage relationships not only to introduce the idea of biospecimen contribution to the community but to also exceed expectations with regard to the quantity of blood biospecimens collected from Asian Americans. Cancer 2018;124:1614-21.
© 2018 American Cancer Society. © 2018 American Cancer Society.

Entities:  

Keywords:  Asian American; biobanking; biospecimen donation; cancer research; community engagement; community outreach

Mesh:

Year:  2018        PMID: 29578601      PMCID: PMC5894865          DOI: 10.1002/cncr.31168

Source DB:  PubMed          Journal:  Cancer        ISSN: 0008-543X            Impact factor:   6.860


  18 in total

1.  Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research.

Authors:  Kathleen A Culhane-Pera; MaiKia Moua; Pachia Vue; Kang Xiaaj; May Xia Lo; Robert J Straka
Journal:  J Community Genet       Date:  2016-11-07

2.  Disparities in knowledge and willingness to donate research biospecimens: a mixed-methods study in an underserved urban community.

Authors:  Chiranjeev Dash; Sherrie F Wallington; Sherieda Muthra; Everett Dodson; Jeanne Mandelblatt; Lucile L Adams-Campbell
Journal:  J Community Genet       Date:  2014-04-26

3.  Culturally appropriate education intervention on biospecimen research participation among Chinese Americans.

Authors:  Wanzhen Gao; Grace X Ma; Yin Tan; Carolyn Fang; Joellen Weaver; Ming Jin; Philip Lai; Andrew K Godwin
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2014-03       Impact factor: 4.254

4.  Impact of a biospecimen collection seminar on willingness to donate biospecimens among Chinese Americans: results from a randomized, controlled community-based trial.

Authors:  Elisa K Tong; Lei-Chun Fung; Susan L Stewart; Debora A Paterniti; Julie H T Dang; Moon S Chen
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2014-03       Impact factor: 4.254

5.  High frequency of the PNPLA3 rs738409 [G] single-nucleotide polymorphism in Hmong individuals as a potential basis for a predisposition to chronic liver disease.

Authors:  Clifford G Tepper; Julie H T Dang; Susan L Stewart; Dao M Fang; Kimberly A Wong; Stephenie Y Liu; Ryan R Davis; Doan Y Dao; Jeffrey P Gregg; Natalie J Török; Moon S Chen
Journal:  Cancer       Date:  2018-04-01       Impact factor: 6.860

Review 6.  Biobanks and personalized medicine.

Authors:  J E Olson; S J Bielinski; E Ryu; E M Winkler; P Y Takahashi; J Pathak; J R Cerhan
Journal:  Clin Genet       Date:  2014-03-27       Impact factor: 4.438

7.  Lay health educators increase colorectal cancer screening among Hmong Americans: A cluster randomized controlled trial.

Authors:  Elisa K Tong; Tung T Nguyen; Penny Lo; Susan L Stewart; Ginny L Gildengorin; Janice Y Tsoh; Angela M Jo; Marjorie L Kagawa-Singer; Angela U Sy; Charlene Cuaresma; Hy T Lam; Ching Wong; Mi T Tran; Moon S Chen
Journal:  Cancer       Date:  2016-08-26       Impact factor: 6.860

8.  Increasing hepatitis B screening for hmong adults: results from a randomized controlled community-based study.

Authors:  Moon S Chen; Dao M Fang; Susan L Stewart; May Ying Ly; Serge Lee; Julie H T Dang; Tram T Nguyen; Annette E Maxwell; Christopher L Bowlus; Roshan Bastani; Tung T Nguyen
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2013-04-23       Impact factor: 4.254

9.  2009 Biospecimen research network symposium: advancing cancer research through biospecimen science.

Authors:  Helen M Moore; Carolyn C Compton; Mark D Lim; Jimmie Vaught; Katerina N Christiansen; Joe Alper
Journal:  Cancer Res       Date:  2009-08-25       Impact factor: 12.701

10.  Diabetes Prevalence and Risk Factors in Four Asian American Communities.

Authors:  Susan L Stewart; Julie Dang; Moon S Chen
Journal:  J Community Health       Date:  2016-12
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  3 in total

Review 1.  Project PLACE: Enhancing community and academic partnerships to describe and address health disparities.

Authors:  Nadine J Barrett; Kearston L Ingraham; Kenisha Bethea; Pao Hwa-Lin; Maritza Chirinos; Laura J Fish; Schenita Randolph; Ping Zhang; Peter Le; Demetrius Harvey; Ronald L Godbee; Steven R Patierno
Journal:  Adv Cancer Res       Date:  2020-03-19       Impact factor: 6.242

2.  Factors associated with biomedical research participation within community-based samples across 3 National Cancer Institute-designated cancer centers.

Authors:  Nadine J Barrett; Elisa M Rodriguez; Ronaldo Iachan; Terry Hyslop; Kearston L Ingraham; Gem M Le; Kelly Martin; Rodney C Haring; Natalie A Rivadeneira; Deborah O Erwin; Laura J Fish; Deirdre Middleton; Robert A Hiatt; Steven R Patierno; Urmimala Sarkar; Elizabeth A Gage-Bouchard
Journal:  Cancer       Date:  2020-01-07       Impact factor: 6.860

3.  Comparison of factors influencing the willingness to donate biospecimens among guardians of children with cancer and adult cancer patients.

Authors:  Hongxiang Gao; Baige Cao; Nan Dang; Song Gu; Min Xu; Bin Ji; Yiqi Shi; Shijian Liu; Congrong Wang
Journal:  Cancer Med       Date:  2022-02-03       Impact factor: 4.452

  3 in total

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