Literature DB >> 29516852

Relational use of an electronic quality of life and practice support system in hospital palliative consult care: A pilot study.

Marian Krawczyk1, Richard Sawatzky1.   

Abstract

OBJECTIVES: This study is part of an overarching research initiative on the development and integration of an electronic Quality of Life and Practice Support System (QPSS) that uses patient-reported outcome and experience measures in clinical practice. The current study focused on palliative nurse consultants trialing the QPSS with older hospitalized adults receiving acute care. The primary aim of the study was to better understand consultants' and patients' experiences and perspectives of use.
METHOD: The project involved two nurse specialists within a larger palliative outreach consult team (POCT) and consenting older adult patients (age 55+) in a large tertiary acute care hospital in western Canada. User-centered design of the QPSS was informed by three focus groups with the entire POCT team, and implementation was evaluated by direct observation as well as interviews with the POCT nurses and three patients. Thematic analysis of interviews and field notes was informed by theoretical perspectives from social sciences. Result Over 9 weeks, the POCT nurses used the QPSS at least once with 20 patients, for a total of 47 administrations. The nurses most often assisted patients in using the QPSS. Participants referenced three primary benefits of relational use: enhanced communication, strengthened therapeutic relations, and cocreation of new insights about quality of life and care experiences. The nurses also reported increased visibility of quality of life concerns and positive development as relational care providers. Significance of results Participants expressed that QPSS use positively influenced relations of care and enhanced practices consistent with person-centered care. Results also indicate that electronic assessment systems may, in some instances, function as actor-objects enabling new knowledge and relations of care rather than merely as a neutral technological platform. This is the first study to examine hospital palliative consult clinicians' use of a tablet-based system for routine collection of patient-reported outcome and experience measures.

Entities:  

Keywords:  Relational care; boundary objects; palliative consult care; person-centered care; quality of life assessment

Year:  2018        PMID: 29516852     DOI: 10.1017/S1478951518000020

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  6 in total

1.  Interpretation and use of patient-reported outcome measures through a philosophical lens.

Authors:  Jae Yung Kwon; Sally Thorne; Richard Sawatzky
Journal:  Qual Life Res       Date:  2018-11-19       Impact factor: 4.147

2.  A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases.

Authors:  Olalekan Lee Aiyegbusi; Devika Nair; John Devin Peipert; Kara Schick-Makaroff; Istvan Mucsi
Journal:  Ther Adv Chronic Dis       Date:  2021-05-24       Impact factor: 5.091

3.  Design and introduction of a quality of life assessment and practice support system: perspectives from palliative care settings.

Authors:  Richard Sawatzky; Esther Laforest; Kara Schick-Makaroff; Kelli Stajduhar; Sheryl Reimer-Kirkham; Marian Krawczyk; Joakim Öhlén; Barbara McLeod; Neil Hilliard; Carolyn Tayler; S Robin Cohen
Journal:  J Patient Rep Outcomes       Date:  2018-08-22

Review 4.  Key methodological considerations for usability testing of electronic patient-reported outcome (ePRO) systems.

Authors:  Olalekan Lee Aiyegbusi
Journal:  Qual Life Res       Date:  2019-10-18       Impact factor: 4.147

5.  Voicing Individual Concerns for Engagement in Hemodialysis (VOICE-HD): A Mixed Method, Randomized Pilot Trial of Digital Health in Dialysis Care Delivery.

Authors:  Stephanie Thompson; Kara Schick-Makaroff; Aminu Bello; Marcello Tonelli; Natasha Wiebe; Robert Buzinski; Mark Courtney; Susan Szigety; Nikhil Shah; Clara Bohm
Journal:  Can J Kidney Health Dis       Date:  2021-07-27

Review 6.  How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis.

Authors:  Joanne Greenhalgh; Kate Gooding; Elizabeth Gibbons; Sonia Dalkin; Judy Wright; Jose Valderas; Nick Black
Journal:  J Patient Rep Outcomes       Date:  2018-09-15
  6 in total

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