Literature DB >> 29502099

Advance euthanasia directives: a controversial case and its ethical implications.

David Gibbes Miller1, Rebecca Dresser1,2, Scott Y H Kim1.   

Abstract

Authorising euthanasia and assisted suicide with advance euthanasia directives (AEDs) is permitted, yet debated, in the Netherlands. We focus on a recent controversial case in which a Dutch woman with Alzheimer's disease was euthanised based on her AED. A Dutch euthanasia review committee found that the physician performing the euthanasia failed to follow due care requirements for euthanasia and assisted suicide. This case is notable because it is the first case to trigger a criminal investigation since the 2002 Dutch euthanasia law was enacted. Thus far, only brief descriptions of the case have been reported in English language journals and media. We provide a detailed description of the case, review the main challenges of preparing and applying AEDs for persons with dementia and briefly assess the adequacy of the current oversight system governing AEDs. © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2019. All rights reserved. No commercial use is permitted unless otherwise expressly granted.

Entities:  

Keywords:  capacity; dementia; euthanasia; living wills/advance directives

Mesh:

Year:  2018        PMID: 29502099      PMCID: PMC6120810          DOI: 10.1136/medethics-2017-104644

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  15 in total

1.  The role of adaptation to disability and disease in health state valuation: a preliminary normative analysis.

Authors:  Paul Menzel; Paul Dolan; Jeff Richardson; Jan Abel Olsen
Journal:  Soc Sci Med       Date:  2002-12       Impact factor: 4.634

2.  Advance directives, dementia, and physician-assisted death.

Authors:  Paul T Menzel; Bonnie Steinbock
Journal:  J Law Med Ethics       Date:  2013       Impact factor: 1.718

3.  Advance directives, dementia, and withholding food and water by mouth.

Authors:  Paul T Menzel; M Colette Chandler-Cramer
Journal:  Hastings Cent Rep       Date:  2014 May-Jun       Impact factor: 2.683

Review 4.  Dworkin on dementia. Elegant theory, questionable policy.

Authors:  R Dresser
Journal:  Hastings Cent Rep       Date:  1995 Nov-Dec       Impact factor: 2.683

5.  On Legalizing Physician-Assisted Death for Dementia.

Authors:  Rebecca Dresser
Journal:  Hastings Cent Rep       Date:  2017-07       Impact factor: 2.683

6.  Medical decision-making capacity in patients with mild cognitive impairment.

Authors:  O Okonkwo; H R Griffith; K Belue; S Lanza; E Y Zamrini; L E Harrell; J C Brockington; D Clark; R Raman; D C Marson
Journal:  Neurology       Date:  2007-10-09       Impact factor: 9.910

7.  The unfeasibility of requests for euthanasia in advance directives.

Authors:  J J M van Delden
Journal:  J Med Ethics       Date:  2004-10       Impact factor: 2.903

8.  Decisional capacity for research participation in individuals with mild cognitive impairment.

Authors:  Angela L Jefferson; Susan Lambe; David J Moser; Laura K Byerly; Al Ozonoff; Jason H Karlawish
Journal:  J Am Geriatr Soc       Date:  2008-05-12       Impact factor: 5.562

9.  Natural progression model of cognition and physical functioning among people with mild cognitive impairment and alzheimer's disease.

Authors:  Ron L H Handels; Weili Xu; Debora Rizzuto; Barbara Caracciolo; Rui Wang; Bengt Winblad; Frans R J Verhey; Johan L Severens; Laura Fratiglioni; Manuela A Joore; Anders Wimo
Journal:  J Alzheimers Dis       Date:  2013       Impact factor: 4.472

10.  Euthanasia and physician-assisted suicide not meeting due care criteria in the Netherlands: a qualitative review of review committee judgements.

Authors:  David Gibbes Miller; Scott Y H Kim
Journal:  BMJ Open       Date:  2017-10-25       Impact factor: 2.692

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  14 in total

1.  Euthanasia and Assisted Suicide of Persons With Dementia in the Netherlands.

Authors:  Dominic R Mangino; Marie E Nicolini; Raymond G De Vries; Scott Y H Kim
Journal:  Am J Geriatr Psychiatry       Date:  2019-08-22       Impact factor: 4.105

Review 2.  Frames and counter-frames giving meaning to palliative care and euthanasia in the Netherlands.

Authors:  Baldwin Van Gorp; Gert Olthuis; Anneleen Vandekeybus; Jelle van Gurp
Journal:  BMC Palliat Care       Date:  2021-06-03       Impact factor: 3.234

3.  First prosecution of a Dutch doctor since the Euthanasia Act of 2002: what does the verdict mean?

Authors:  Eva Constance Alida Asscher; Suzanne van de Vathorst
Journal:  J Med Ethics       Date:  2019-12-05       Impact factor: 2.903

4.  Euthanasia in the case of dementia: a survey among Flemish GPs.

Authors:  Jasper Cleemput; Birgitte Schoenmakers
Journal:  BJGP Open       Date:  2019-11-26

5.  Supporting GPs around euthanasia requests from people with dementia: a qualitative analysis of Dutch nominal group meetings.

Authors:  Jaap Schuurmans; Stephanie Vos; Pim Vissers; Bram Tilburgs; Yvonne Engels
Journal:  Br J Gen Pract       Date:  2020-10-29       Impact factor: 5.386

6.  Right to Life or Right to Die in Advanced Dementia: Physician-Assisted Dying.

Authors:  Jitender Jakhar; Saaniya Ambreen; Shiv Prasad
Journal:  Front Psychiatry       Date:  2021-01-21       Impact factor: 4.157

Review 7.  Physician-Assisted Suicide in Dementia: Paradoxes, Pitfalls and the Need for Prudence.

Authors:  Ravi Philip Rajkumar
Journal:  Front Sociol       Date:  2021-12-22

8.  Assessing Public's Attitudes Towards Euthanasia and Assisted Suicide of Persons With Dementia Based on Their Advance Request: An Experimental Survey of US Public.

Authors:  Dominic R Mangino; Talia Bernhard; Paul Wakim; Scott Yh Kim
Journal:  Am J Geriatr Psychiatry       Date:  2020-07-30       Impact factor: 4.105

9.  Euthanasia requests in dementia cases; what are experiences and needs of Dutch physicians? A qualitative interview study.

Authors:  Jaap Schuurmans; Romy Bouwmeester; Lamar Crombach; Tessa van Rijssel; Lizzy Wingens; Kristina Georgieva; Nadine O'Shea; Stephanie Vos; Bram Tilburgs; Yvonne Engels
Journal:  BMC Med Ethics       Date:  2019-10-04       Impact factor: 2.652

10.  Physicians' and Public Attitudes Toward Euthanasia in People with Advanced Dementia.

Authors:  Arianne Brinkman-Stoppelenburg; Kirsten Evenblij; H Roeline W Pasman; Johannes J M van Delden; Bregje D Onwuteaka-Philipsen; Agnes van der Heide
Journal:  J Am Geriatr Soc       Date:  2020-07-11       Impact factor: 7.538

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