Literature DB >> 29473207

Community counts: Evolution of a national surveillance system for bleeding disorders.

Marilyn J Manco-Johnson1, Vanessa R Byams2, Michael Recht3, Becky Dudley4, Brandi Dupervil2, Diane J Aschman4, Meredith Oakley2, Suzanne Kapica5, Mariam Voutsis6, Steven Humes7, Roshni Kulkarni8, Althea M Grant2.   

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Year:  2018        PMID： 29473207      PMCID： PMC6145085          DOI： 10.1002/ajh.25076

Source DB:  PubMed          Journal:  Am J Hematol        ISSN： 0361-8609            Impact factor:   10.047


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  5 in total

1.  Prophylaxis usage, bleeding rates, and joint outcomes of hemophilia, 1999 to 2010: a surveillance project.

Authors:  Marilyn J Manco-Johnson; J Michael Soucie; Joan Cox Gill
Journal:  Blood       Date:  2017-02-09       Impact factor: 22.113

2.  Changes in the occurrence of and risk factors for hemophilia-associated intracranial hemorrhage.

Authors:  R Nuss; J M Soucie; B Evatt
Journal:  Am J Hematol       Date:  2001-09       Impact factor: 10.047

3.  Mortality among males with hemophilia: relations with source of medical care. The Hemophilia Surveillance System Project Investigators.

Authors:  J M Soucie; R Nuss; B Evatt; A Abdelhak; L Cowan; H Hill; M Kolakoski; N Wilber
Journal:  Blood       Date:  2000-07-15       Impact factor: 22.113

4.  Limit of detection and threshold for positivity of the Centers for Disease Control and Prevention assay for factor VIII inhibitors.

Authors:  C H Miller; B Boylan; A D Shapiro; S R Lentz; B M Wicklund
Journal:  J Thromb Haemost       Date:  2017-09-14       Impact factor: 5.824

5.  Occurrence of hemophilia in the United States. The Hemophilia Surveillance System Project Investigators.

Authors:  J M Soucie; B Evatt; D Jackson
Journal:  Am J Hematol       Date:  1998-12       Impact factor: 10.047
  5 in total
  8 in total

1.  Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States.

Authors:  Connie H Miller; J Michael Soucie; Vanessa R Byams; Amanda B Payne; Robert F Sidonio; Tyler W Buckner; Christopher J Bean
Journal:  Haemophilia       Date:  2021-09-04       Impact factor: 4.263

2.  Occurrence rates of inherited bleeding disorders other than haemophilia and von Willebrand disease among people receiving care in specialized treatment centres in the United States.

Authors:  Connie H Miller; J Michael Soucie; Vanessa R Byams; Amanda B Payne; Karon Abe; Magdalena Lewandowska; Amy D Shapiro
Journal:  Haemophilia       Date:  2022-03-04       Impact factor: 4.263

3.  Validation of the chromogenic Bethesda assay for factor VIII inhibitors in hemophilia a patients receiving Emicizumab.

Authors:  Connie H Miller; Brian Boylan; Amanda B Payne; Jennifer Driggers; Christopher J Bean
Journal:  Int J Lab Hematol       Date:  2020-11-10       Impact factor: 2.877

Review 4.  Genetic causes of haemophilia in women and girls.

Authors:  Connie H Miller; Christopher J Bean
Journal:  Haemophilia       Date:  2020-12-13       Impact factor: 4.263

5.  Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres.

Authors:  John Michael Soucie; Connie H Miller; Brandi Dupervil; Binh Le; Tyler W Buckner
Journal:  Haemophilia       Date:  2020-04-24       Impact factor: 4.263

6.  Potential of the Community Counts registry to characterize rare bleeding disorders.

Authors:  Sweta Gupta; Suchitra Acharya; Christopher Roberson; Alice Lail; J Michael Soucie; Amy Shapiro
Journal:  Haemophilia       Date:  2019-09-11       Impact factor: 4.263

7.  Evaluation of anti-factor VIII antibody levels in patients with haemophilia A receiving immune tolerance induction therapy or bypassing agents.

Authors:  Brian Boylan; Glenn P Niemeyer; Bonnie Werner; Connie H Miller
Journal:  Haemophilia       Date:  2020-11-20       Impact factor: 4.263

8.  Evaluation of CDC's Hemophilia Surveillance Program - Universal Data Collection (1998-2011) and Community Counts (2011-2019), United States.

Authors:  Laura A Schieve; Vanessa R Byams; Brandi Dupervil; Meredith A Oakley; Connie H Miller; J Michael Soucie; Karon Abe; Christopher J Bean; W Craig Hooper
Journal:  MMWR Surveill Summ       Date:  2020-09-04
  8 in total

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