Literature DB >> 29451025

Person-oriented research ethics: integrating relational and everyday ethics in research.

M Ariel Cascio1,2, Eric Racine1,2,3.   

Abstract

Research ethics is often understood by researchers primarily through the regulatory framework reflected in the research ethics review process. This regulatory understanding does not encompass the range of ethical considerations in research, notably those associated with the relational and everyday aspects of human subject research. In order to support researchers in their effort to adopt a broader lens, this article presents a "person-oriented research ethics" approach. Five practical guideposts of person-oriented research ethics are identified, as follows: (1) respect for holistic personhood; (2) acknowledgement of lived world; (3) individualization; (4) focus on researcher-participant relationships; and (5) empowerment in decision-making. These guideposts are defined and illustrated with respect to different aspects of the research process (e.g., research design, recruitment, data collection). The person-oriented research ethics approach provides a toolkit to individual researchers, research groups, and research institutions in both biomedical and social science research wishing to expand their commitment to ethics in research.

Entities:  

Keywords:  Human subjects ethics; informed consent; justice in research; public trust; research ethics; vulnerable populations

Mesh:

Year:  2018        PMID: 29451025     DOI: 10.1080/08989621.2018.1442218

Source DB:  PubMed          Journal:  Account Res        ISSN: 0898-9621            Impact factor:   2.622


  7 in total

1.  Instrumentalist analyses of the functions of ethics concept-principles: a proposal for synergetic empirical and conceptual enrichment.

Authors:  Eric Racine; M Ariel Cascio; Marjorie Montreuil; Aline Bogossian
Journal:  Theor Med Bioeth       Date:  2019-08

2.  Operationalising a real-time research ethics approach: supporting ethical mindfulness in agriculture-nutrition-health research in Malawi.

Authors:  Limbanazo Matandika; Kate Millar; Eric Umar; Edward Joy; Joseph Mfutso-Bengo
Journal:  BMC Med Ethics       Date:  2022-01-11       Impact factor: 2.652

3.  Examining study participants' decision-making and ethics-related experiences in a dietary community randomized controlled trial in Malawi.

Authors:  Limbanazo Matandika; Kate Millar; Eric Umar; Edward Joy; Gabriella Chiutsi-Phiri; Joseph Mfutso-Bengo
Journal:  BMC Med Ethics       Date:  2021-12-03       Impact factor: 2.652

Review 4.  Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework.

Authors:  Bettina M Zimmermann; Theresa Willem; Carl Justus Bredthauer; Alena Buyx
Journal:  J Med Internet Res       Date:  2022-05-03       Impact factor: 7.076

5.  Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.

Authors:  Stephanie A Kraft; Erin Rothwell; Seema K Shah; Devan M Duenas; Hannah Lewis; Kristin Muessig; Douglas J Opel; Katrina A B Goddard; Benjamin S Wilfond
Journal:  J Med Ethics       Date:  2020-10-06       Impact factor: 2.903

6.  Dual consent? Donors' and recipients' views about involvement in decision-making on the use of embryos created by gamete donation in research.

Authors:  I Baía; C de Freitas; C Samorinha; V Provoost; S Silva
Journal:  BMC Med Ethics       Date:  2019-12-02       Impact factor: 2.652

Review 7.  Personalized treatment - which interaction ingredients should be focused to capture the unconscious.

Authors:  Dagmar Steinmair; Henriette Löffler-Stastka
Journal:  World J Clin Cases       Date:  2022-03-06       Impact factor: 1.337

  7 in total

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