Magi Sque1, Wendy Walker2, Tracy Long-Sutehall3, Myfanwy Morgan4, Gurch Randhawa5, Amanda Rodney6. 1. The Royal Wolverhampton NHS Trust and The University of Wolverhampton, Institute of Health, Faculty of Education, Health and Wellbeing, University of Wolverhampton, Wolverhampton WV11LY, UK. Electronic address: m.sque@wlv.ac.uk. 2. Institute of Health, Faculty of Education, Health and Wellbeing, University of Wolverhampton, Wolverhampton WV11LY, UK. Electronic address: w.m.walker@wlv.ac.uk. 3. Faculty of Health Sciences, Nightingale Building (Building 67), University of Southampton, Highfield, Southampton SO17 1BJ, UK. Electronic address: T.Long@soton.ac.uk. 4. Institute of Pharmaceutical Science, King's College London, London, UK. Electronic address: Myfanwy.morgan@kcl.ac.uk. 5. Institute for Health Research, University of Bedfordshire, Luton, UK. Electronic address: gurch.randhawa@beds.ac.uk. 6. Institute of Health, Faculty of Education, Health and Wellbeing, University of Wolverhampton, Wolverhampton WV11LY, UK. Electronic address: Amanda.Rodney@wlv.ac.uk.
Abstract
PURPOSE: To elicit bereaved families' experiences of organ and tissue donation. A specific objective was to determine families' perceptions of how their experiences influenced donation decision-making. METHODS: Retrospective, qualitative interviews were undertaken with 43 participants of 31 donor families to generate rich, informative data. Participant recruitment was via 10 National Health Service Trusts, representative of five regional organ donation services in the UK. Twelve families agreed to DBD, 18 agreed to DCD, 1 unknown. Participants' responses were contextualised using a temporal framework of 'The Past', which represented families' prior knowledge, experience, attitudes, beliefs, and intentions toward organ donation; 'The Present', which incorporated the moment in time when families experienced the potential for donation; and 'The Future', which corresponded to expectations and outcomes arising from the donation decision. RESULTS: Temporally interwoven experiences appeared to influence families' decisions to donate the organs of their deceased relative for transplantation. CONCLUSIONS: The influence of temporality on donation-decision making is worthy of consideration in the planning of future education, policy, practice, and research for improved rates of family consent to donation.
PURPOSE: To elicit bereaved families' experiences of organ and tissue donation. A specific objective was to determine families' perceptions of how their experiences influenced donation decision-making. METHODS: Retrospective, qualitative interviews were undertaken with 43 participants of 31 donor families to generate rich, informative data. Participant recruitment was via 10 National Health Service Trusts, representative of five regional organ donation services in the UK. Twelve families agreed to DBD, 18 agreed to DCD, 1 unknown. Participants' responses were contextualised using a temporal framework of 'The Past', which represented families' prior knowledge, experience, attitudes, beliefs, and intentions toward organ donation; 'The Present', which incorporated the moment in time when families experienced the potential for donation; and 'The Future', which corresponded to expectations and outcomes arising from the donation decision. RESULTS: Temporally interwoven experiences appeared to influence families' decisions to donate the organs of their deceased relative for transplantation. CONCLUSIONS: The influence of temporality on donation-decision making is worthy of consideration in the planning of future education, policy, practice, and research for improved rates of family consent to donation.
Authors: Nancy Kentish-Barnes; L A Siminoff; W Walker; M Urbanski; J Charpentier; M Thuong; A Sarti; S D Shemie; E Azoulay Journal: Intensive Care Med Date: 2019-03-06 Impact factor: 17.440
Authors: Jacob Crawshaw; Justin Presseau; Zack van Allen; Livia Pinheiro Carvalho; Kim Jordison; Shane English; Dean A Fergusson; Francois Lauzier; Alexis F Turgeon; Aimee J Sarti; Claudio Martin; Frédérick D'Aragon; Alvin Ho-Ting Li; Greg Knoll; Ian Ball; Jamie Brehaut; Karen E A Burns; Marie-Chantal Fortin; Matthew Weiss; Maureen Meade; Pierre Marsolais; Sam Shemie; Sanabelle Zaabat; Sonny Dhanani; Simon C Kitto; Michaël Chassé Journal: BMJ Open Date: 2019-12-23 Impact factor: 2.692
Authors: Spyros D Mentzelopoulos; Keith Couper; Patrick Van de Voorde; Patrick Druwé; Marieke Blom; Gavin D Perkins; Ileana Lulic; Jana Djakow; Violetta Raffay; Gisela Lilja; Leo Bossaert Journal: Notf Rett Med Date: 2021-06-02 Impact factor: 0.826