Literature DB >> 29400092

Partnering with parents to advance child health research.

Janet A Curran1,2, Andrea Bishop2, Jill Chorney3, Lauren MacEachern2, Rebecca Mackay2.   

Abstract

Although patient engagement in research is widely touted as an important foundation for improving the relevance and sustainability of research findings, there is little consensus on how to do it in practice. This article describes our research team's experiences working with and engaging parents throughout the entire research process to reach full partnership in the identification, management, and dissemination of research. Our report of these experiences includes lessons learned along the way regarding how healthcare and research organizations can better support researchers and patients to achieve successful partnerships.

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Year:  2018        PMID: 29400092     DOI: 10.1177/0840470417744568

Source DB:  PubMed          Journal:  Healthc Manage Forum        ISSN: 0840-4704


  5 in total

1.  Co-development and Usability Testing of Research 101: A Patient-Oriented Research Curriculum in Child Health (PORCCH) E-Learning Module for Patients and Families.

Authors:  Catharine M Walsh; Nicola L Jones; Graham A McCreath; Veronik Connan; Linda Pires; Autumn Q H Chen; Aliza Karoly; Colin Macarthur
Journal:  Front Pediatr       Date:  2022-07-06       Impact factor: 3.569

2.  Different corticosteroid induction regimens in children and young people with juvenile idiopathic arthritis: the SIRJIA mixed-methods feasibility study.

Authors:  Ashley P Jones; Dannii Clayton; Gloria Nkhoma; Frances C Sherratt; Matthew Peak; Simon R Stones; Louise Roper; Bridget Young; Flora McErlane; Tracy Moitt; Athimalaipet V Ramanan; Helen E Foster; Paula R Williamson; Samundeeswari Deepak; Michael W Beresford; Eileen M Baildam
Journal:  Health Technol Assess       Date:  2020-07       Impact factor: 4.014

3.  Partnering For Pain: a Priority Setting Partnership to identify patient-oriented research priorities for pediatric chronic pain in Canada.

Authors:  Kathryn A Birnie; Katherine Dib; Carley Ouellette; Mary Anne Dib; Kimberly Nelson; Dolores Pahtayken; Krista Baerg; Jill Chorney; Paula Forgeron; Christine Lamontagne; Melanie Noel; Patricia Poulin; Jennifer Stinson
Journal:  CMAJ Open       Date:  2019-11-07

4.  Engaging patients and the public in Health Research: experiences, perceptions and training needs among Manitoba health researchers.

Authors:  Leah K Crockett; Carolyn Shimmin; Kristy D M Wittmeier; Kathryn M Sibley
Journal:  Res Involv Engagem       Date:  2019-10-08

5.  A parent-science partnership to improve postsurgical pain management in young children: Co-development and usability testing of the Achy Penguin smartphone-based app.

Authors:  Kathryn A Birnie; Cynthia Nguyen; Tamara Do Amaral; Lesley Baker; Fiona Campbell; Sarah Lloyd; Carley Ouellette; Carl von Baeyer; Chitra Lalloo; J Ted Gerstle; Jennifer Stinson
Journal:  Can J Pain       Date:  2018-10-26
  5 in total

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