Literature DB >> 29375883

Trust and the Ethical Conduct of Community-Engaged Research.

Dmitry Khodyakov1, Lisa Mikesell2, Elizabeth Bromley3.   

Abstract

Community-engaged research (CEnR), which emphasizes equal participation of academic and community partners in research, seeks to improve public trust in science. Unfortunately, there is a dearth of rigorous empirical research on trust as a core component of ethical conduct of CEnR. Drawing on data collected from a project on the ethics of CEnR, this commentary discusses benefits and risks of trust and uses the concept of embeddedness to explain how public trust in science may be increased. We argue that in developing and maintaining trust, partners must balance scientific rigor with community relevance and cultural appropriateness of research. They must strike a balance between working with the same limited pool of trusted partners, which can speed research but slow wider acceptance of science, and extending their trust to new partners, which can broaden acceptance of science but slow research. Practitioners may facilitate the development of trust in science by gradually expanding the pool of partners they choose their collaborators from.

Entities:  

Keywords:  Community-Engaged Research; Embeddedness; Research Ethics; Trust

Year:  2017        PMID: 29375883      PMCID: PMC5785932          DOI: 10.5750/ejpch.v5i4.1263

Source DB:  PubMed          Journal:  Eur J Pers Cent Healthc        ISSN: 2052-5648


  13 in total

1.  Distrust, race, and research.

Authors:  Giselle Corbie-Smith; Stephen B Thomas; Diane Marie M St George
Journal:  Arch Intern Med       Date:  2002-11-25

2.  Community-Based Participatory Research Conceptual Model: Community Partner Consultation and Face Validity.

Authors:  Lorenda Belone; Julie E Lucero; Bonnie Duran; Greg Tafoya; Elizabeth A Baker; Domin Chan; Charlotte Chang; Ella Greene-Moton; Michele A Kelley; Nina Wallerstein
Journal:  Qual Health Res       Date:  2014-10-31

3.  Building and maintaining trust in a community-based participatory research partnership.

Authors:  Suzanne Christopher; Vanessa Watts; Alma Knows His Gun McCormick; Sara Young
Journal:  Am J Public Health       Date:  2008-06-12       Impact factor: 9.308

4.  Attitudes and beliefs of African Americans toward participation in medical research.

Authors:  G Corbie-Smith; S B Thomas; M V Williams; S Moody-Ayers
Journal:  J Gen Intern Med       Date:  1999-09       Impact factor: 5.128

5.  Human subjects protections in community-engaged research: a research ethics framework.

Authors:  Lainie Friedman Ross; Allan Loup; Robert M Nelson; Jeffrey R Botkin; Rhonda Kost; George R Smith; Sarah Gehlert
Journal:  J Empir Res Hum Res Ethics       Date:  2010-03       Impact factor: 1.742

6.  From subject to participant: ethics and the evolving role of community in health research.

Authors:  Elizabeth Bromley; Lisa Mikesell; Felica Jones; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2015-03-19       Impact factor: 9.308

7.  Trust in health research relationships: accounts of human subjects.

Authors:  Michael McDonald; Anne Townsend; Susan M Cox; Natasha Damiano Paterson; Darquise Lafrenière
Journal:  J Empir Res Hum Res Ethics       Date:  2008-12       Impact factor: 1.742

8.  On using ethical principles of community-engaged research in translational science.

Authors:  Dmitry Khodyakov; Lisa Mikesell; Ron Schraiber; Marika Booth; Elizabeth Bromley
Journal:  Transl Res       Date:  2015-12-19       Impact factor: 7.012

Review 9.  Ethical community-engaged research: a literature review.

Authors:  Lisa Mikesell; Elizabeth Bromley; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

10.  Forging a new legacy of trust in research with Alaska Native college students using CBPR.

Authors:  Ellen D S Lopez; Dinghy Kristine B Sharma; Deborah Mekiana; Alaina Ctibor
Journal:  Int J Circumpolar Health       Date:  2012-09-25       Impact factor: 1.228

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1.  Citizen science to further precision medicine: from vision to implementation.

Authors:  Carolyn Petersen; Robin R Austin; Uba Backonja; Hugo Campos; Arlene E Chung; Eric B Hekler; Pei-Yun S Hsueh; Katherine K Kim; Anthony Pho; Liz Salmi; Anthony Solomonides; Rupa S Valdez
Journal:  JAMIA Open       Date:  2019-12-03

2.  Researcher and study participants' perspectives of consent in clinical studies in four referral hospitals in Vietnam.

Authors:  Jennifer Ilo Van Nuil; Thi Thanh Thuy Nguyen; Thanh Nhan Le Nguyen; Van Vinh Chau Nguyen; Mary Chambers; Thi Dieu Ngan Ta; Laura Merson; Thi Phuong Dung Nguyen; Minh Tu Van Hoang; Michael Parker; Susan Bull; Evelyne Kestelyn
Journal:  BMC Med Ethics       Date:  2020-01-10       Impact factor: 2.652

3.  Call to Action for Enhanced Equity and Inclusion in Cannabis Research.

Authors:  Renée Martin-Willett; L Cinnamon Bidwell
Journal:  Cannabis Cannabinoid Res       Date:  2021-04-15

4.  Challenges and Lessons Learned in the Development of a Participatory Learning and Action Intervention to Tackle Antibiotic Resistance: Experiences From Northern Vietnam.

Authors:  Huong Thien Ngoc Cai; Hang Thi Tran; Yen Hong Thi Nguyen; Giao Quynh Thi Vu; Thao Phuong Tran; Phuong Bich Bui; Huong Thi Thu Nguyen; Thai Quang Pham; Anh Tuan Lai; Jennifer Ilo Van Nuil; Sonia Lewycka
Journal:  Front Public Health       Date:  2022-07-26

5.  Advancing health equity through integrated biology and population health research: A community-based sample cortisol feasibility and exploratory study.

Authors:  Robin Ortiz; Joshua J Joseph; Charlie C Branas; John M MacDonald; Max Jordan Nguemeni Tiako; Kehinde Oyekanmi; Eugenia C South
Journal:  Compr Psychoneuroendocrinol       Date:  2022-05-28
  5 in total

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