Literature DB >> 29361068

Meeting the Informational, Educational, and Psychosocial Support Needs of Persons Living With Dementia and Their Family Caregivers.

Carol J Whitlatch1, Silvia Orsulic-Jeras1.   

Abstract

Background and
Objectives: Meeting the unique and changing needs of individuals living with Alzheimer's disease and their family caregivers can be very challenging given the dynamic and often unpredictable nature of the disease. Effective programs are available to help families manage the challenges they will face. Research Design and
Methods: This article first describes the educational, information, and support needs of individuals living dementia and their family caregivers across all stages of Alzheimer's. Next, we describe the variety of services and program models targeted to the needs of individuals living with Alzheimer's disease or other types of dementia and their families.
Results: These programs can help ensure that person- and family-centered care is maintained from time of first symptoms through end-of-life. Discussion and Implications: We end with our recommendations for maintaining person- and family-centered care through the provision of targeted information, education, and support to individuals and their families.
© The Author(s) 2018. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  Alzheimer’s disease; Person-centered care; Psychosocial; Social support

Mesh:

Year:  2018        PMID: 29361068     DOI: 10.1093/geront/gnx162

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  39 in total

1.  Factors Influencing Emergency Care by Persons With Dementia: Stakeholder Perceptions and Unmet Needs.

Authors:  Gwen Costa Jacobsohn; Matthew Hollander; Aaron P Beck; Andrea Gilmore-Bykovskyi; Nicole Werner; Manish N Shah
Journal:  J Am Geriatr Soc       Date:  2019-01-09       Impact factor: 5.562

2.  The Care Ecosystem: Promoting self-efficacy among dementia family caregivers.

Authors:  Jennifer J Merrilees; Alissa Bernstein; Sarah Dulaney; Julia Heunis; Reilly Walker; Esther Rah; Jeff Choi; Katherine Gawlas; Savannah Carroll; Paulina Ong; Julie Feuer; Tamara Braley; Amy M Clark; Kirby Lee; Winston Chiong; Stephen J Bonasera; Bruce L Miller; Katherine L Possin
Journal:  Dementia (London)       Date:  2018-11-29

3.  Family caregivers for older persons with dementia offer recommendations to current caregivers: a qualitative investigation.

Authors:  Cynthia A Hovland; Christopher A Mallett
Journal:  J Res Nurs       Date:  2021-09-20

4.  Barriers to Online Dementia Information and Mitigation.

Authors:  Emma Dixon; Jesse Anderson; Diana Blackwelder; Mary Radnofsky; Amanda Lazar
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2022-04-29

5.  A race against time: couples' lived diagnostic journeys to young-onset dementia.

Authors:  Victoria A Grunberg; Sarah M Bannon; Paula Popok; Mira Reichman; Bradford C Dickerson; Ana-Maria Vranceanu
Journal:  Aging Ment Health       Date:  2021-08-26       Impact factor: 3.514

6.  A human factors and ergonomics approach to conceptualizing care work among caregivers of people with dementia.

Authors:  Nicole E Werner; Rachel A Rutkowski; Richard J Holden; Siddarth Ponnala; Andrea Gilmore-Bykovskyi
Journal:  Appl Ergon       Date:  2022-06-08       Impact factor: 3.940

7.  Discharge Communication of Dementia-Related Neuropsychiatric Symptoms and Care Management Strategies During Hospital to Skilled Nursing Facility Transitions.

Authors:  Andrea L Gilmore-Bykovskyi; Melissa Hovanes; Jacquelyn Mirr; Laura Block
Journal:  J Geriatr Psychiatry Neurol       Date:  2020-08-19       Impact factor: 2.680

8.  CommunityRx: Optimizing a Community Resource Referral Intervention for Minority Dementia Caregivers.

Authors:  Emily M Abramsohn; Kelsey M Paradise; Crystal M Glover; Maureen Benjamins; Leilani Douglas; Jessica Jerome; Maylene L Kim; Tia Kostas; David Mata; Fatima Padron; Raj C Shah; Stacy Tessler Lindau
Journal:  J Appl Gerontol       Date:  2021-04-09

9.  Expert Consensus on the Care and Management of Patients with Cognitive Impairment in China.

Authors:  Yuliang Han; Jianjun Jia; Xia Li; Yang Lv; Xuan Sun; Shanshan Wang; Yongjun Wang; Zhiwen Wang; Jintao Zhang; Jiong Zhou; Yuying Zhou
Journal:  Neurosci Bull       Date:  2019-12-02       Impact factor: 5.271

10.  Caregiver Response to an Online Dementia and Caregiver Wellness Education Platform.

Authors:  Katie Rodriguez; Madison Fugard; Shawna Amini; Glenn Smith; Deann Marasco; Julie Shatzer; Michelle Guerrero; Cynthia Garvan; Jonathan Davis; Catherine Price
Journal:  J Alzheimers Dis Rep       Date:  2021-06-01
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