Literature DB >> 29339892

Care for Adults with Spina Bifida: Current State and Future Directions.

Shubhra Mukherjee1, Jacqueline Pasulka2.   

Abstract

The care for adults with spina bifida is an important area to study. As increasing numbers of patients with spina bifida survive into adulthood, they expect to thrive and receive the best possible care into adulthood to maintain their health. Understanding the health needs in this emerging and changing population will help clinicians provide the best anticipatory care for adults with spina bifida and continue to improve outcomes. This will also impact pediatric care by improving the ability to determine preventive methods from early on and understand the impacts of pediatric care and decisions over the lifespan.

Entities:  

Keywords:  adult; myelomeningocele; spina bifida; transition

Mesh:

Year:  2017        PMID: 29339892      PMCID: PMC5672883          DOI: 10.1310/sci2302-155

Source DB:  PubMed          Journal:  Top Spinal Cord Inj Rehabil        ISSN: 1082-0744


  72 in total

1.  Sleep-disordered breathing in children with myelomeningocele.

Authors:  K A Waters; P Forbes; A Morielli; C Hum; A M O'Gorman; O Vernet; G M Davis; T L Tewfik; F M Ducharme; R T Brouillette
Journal:  J Pediatr       Date:  1998-04       Impact factor: 4.406

2.  Executive functions and parenting behaviors in association with medical adherence and autonomy among youth with spina bifida.

Authors:  Lauren K O'Hara; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2013-02-21

3.  Hospitalizations of adults with spina bifida and congenital spinal cord anomalies.

Authors:  Brad E Dicianno; Richard Wilson
Journal:  Arch Phys Med Rehabil       Date:  2010-04       Impact factor: 3.966

4.  Hospitalization for urinary tract infections and the quality of preventive health care received by people with spina bifida.

Authors:  Brian S Armour; Lijing Ouyang; Judy Thibadeau; Scott D Grosse; Vincent A Campbell; David Joseph
Journal:  Disabil Health J       Date:  2009-07       Impact factor: 2.554

Review 5.  Sexuality, pre-conception counseling and urological management of pregnancy for young women with spina bifida.

Authors:  Daniela Visconti; Giuseppe Noia; Silvia Triarico; Tomasella Quattrocchi; Marcella Pellegrino; Brigida Carducci; Marco De Santis; Alessandro Caruso
Journal:  Eur J Obstet Gynecol Reprod Biol       Date:  2012-04-28       Impact factor: 2.435

6.  Prevalence and trends of metabolic syndrome in the adult U.S. population, 1999-2010.

Authors:  Hiram Beltrán-Sánchez; Michael O Harhay; Meera M Harhay; Sean McElligott
Journal:  J Am Coll Cardiol       Date:  2013-06-27       Impact factor: 24.094

7.  Sleep-disordered breathing in children with Chiari malformation type II and myelomeningocele.

Authors:  Muslim M Alsaadi; Shaikh M Iqbal; Essam A Elgamal; David Gozal
Journal:  Pediatr Int       Date:  2012-07-19       Impact factor: 1.524

Review 8.  The impact of neuropathic pain on health-related quality of life: review and implications.

Authors:  Mark P Jensen; Marci J Chodroff; Robert H Dworkin
Journal:  Neurology       Date:  2007-04-10       Impact factor: 9.910

Review 9.  Adult patients with spina bifida cystica: genetic counselling, pregnancy and delivery.

Authors:  C C Rietberg; D Lindhout
Journal:  Eur J Obstet Gynecol Reprod Biol       Date:  1993-11       Impact factor: 2.435

10.  Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services.

Authors:  Jenni Hislop; Helen Mason; Jeremy R Parr; Luke Vale; Allan Colver
Journal:  J Adolesc Health       Date:  2016-06-08       Impact factor: 5.012

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  6 in total

1.  Cognitive and motor function in adults with spina bifida myelomeningocele: a pilot study.

Authors:  Joan Mary Jasien; Mohamad A Mikati; Michaela Kolarova; Brian Smith; Stephanie Thera; Pierre Lee
Journal:  Childs Nerv Syst       Date:  2020-11-13       Impact factor: 1.475

Review 2.  Early Vs. Expectant Management of Spina Bifida Patients-Are We All Talking About a Risk Stratified Approach?

Authors:  Angelena B Edwards; Micah Jacobs
Journal:  Curr Urol Rep       Date:  2019-11-16       Impact factor: 3.092

3.  Racial and Ethnic Inequities in Use of Preventive Services Among Privately Insured Adults With a Pediatric-Onset Disability.

Authors:  Lauren Groskaufmanis; Paul Lin; Neil Kamdar; Anam Khan; Mark D Peterson; Michelle Meade; Elham Mahmoudi
Journal:  Ann Fam Med       Date:  2022 Sep-Oct       Impact factor: 5.707

4.  Pediatric Spina Bifida and Spinal Cord Injury.

Authors:  Joslyn Gober; Sruthi P Thomas; David R Gater
Journal:  J Pers Med       Date:  2022-06-17

5.  Resilience and associated characteristics in adults with spina bifida.

Authors:  Amy E Showen; Hillary L Copp; Isabel E Allen; Lindsay A Hampson
Journal:  Dev Med Child Neurol       Date:  2021-05-14       Impact factor: 4.864

Review 6.  Psychological Interventions for Individuals With Acquired Brain Injury, Cerebral Palsy, and Spina Bifida: A Scoping Review.

Authors:  Morgan Jefferies; Taylor Peart; Laure Perrier; Andrea Lauzon; Sarah Munce
Journal:  Front Pediatr       Date:  2022-03-21       Impact factor: 3.418

  6 in total

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