Jenni Hislop1, Helen Mason2, Jeremy R Parr3, Luke Vale4, Allan Colver5. 1. Health Economics Group, Institute of Health and Society, Newcastle University, Newcastle upon Tyne, England, United Kingdom. Electronic address: jenni.hislop@newcastle.ac.uk. 2. Yunus Centre for Social Business and Health, Glasgow Caledonian University, Glasgow, Scotland, United Kingdom. 3. Institute of Neuroscience, Newcastle University, Newcastle upon Tyne, England, United Kingdom; Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, England, United Kingdom. 4. Health Economics Group, Institute of Health and Society, Newcastle University, Newcastle upon Tyne, England, United Kingdom. 5. Institute of Health and Society, Newcastle University, Newcastle upon Tyne, England, United Kingdom.
Abstract
PURPOSE: This study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult services. METHODS: Q methodology was used to identify young people's views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from "strongly disagree" to "strongly agree." Factor analysis was used to identify shared points of view (patterns of similarity between individual's Q-sorts). RESULTS: Four distinct views on transition were identified from young people: (1) "a laid-back view of transition;" (2) "anxiety about transition;" (3) "wanting independence and autonomy during transition;" and (4) "valuing social interaction with family, peers, and professionals to assist transition." CONCLUSIONS: Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.
PURPOSE: This study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult services. METHODS: Q methodology was used to identify young people's views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from "strongly disagree" to "strongly agree." Factor analysis was used to identify shared points of view (patterns of similarity between individual's Q-sorts). RESULTS: Four distinct views on transition were identified from young people: (1) "a laid-back view of transition;" (2) "anxiety about transition;" (3) "wanting independence and autonomy during transition;" and (4) "valuing social interaction with family, peers, and professionals to assist transition." CONCLUSIONS: Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.
Authors: Albert Farre; Victoria Wood; Janet E McDonagh; Jeremy R Parr; Debbie Reape; Tim Rapley Journal: Arch Dis Child Date: 2016-03-04 Impact factor: 3.791
Authors: Allan Colver; Tim Rapley; Jeremy R Parr; Helen McConachie; Gail Dovey-Pearce; Ann Le Couteur; Janet E McDonagh; Caroline Bennett; Gregory Maniatopoulos; Mark S Pearce; Debbie Reape; Nichola Chater; Helena Gleeson; Luke Vale Journal: Clin Med (Lond) Date: 2020-01 Impact factor: 2.659