Eline W M Scholten1, Anneroos Kieftenbelt1, Chantal F Hillebregt1, Sonja de Groot2,3, Marjolijn Ketelaar1, Johanna M A Visser-Meily1,4, Marcel W M Post5,6. 1. Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht, University Utrecht and De Hoogstraat Rehabilitation, Utrecht, The Netherlands. 2. Amsterdam Rehabilitation Research Center Reade, Amsterdam, The Netherlands. 3. University of Groningen, University Medical Center Groningen, Center for Human Movement Sciences, Groningen, The Netherlands. 4. Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center Rudolf Magnus, University Medical Center Utrecht, Utrecht, The Netherlands. 5. Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht, University Utrecht and De Hoogstraat Rehabilitation, Utrecht, The Netherlands. m.post@dehoogstraat.nl. 6. University of Groningen, University Medical Center Groningen, Center for Rehabilitation, Department of Rehabilitation Medicine, Groningen, The Netherlands. m.post@dehoogstraat.nl.
Abstract
STUDY DESIGN: Cross-sectional study. OBJECTIVES: To describe type and regularity of support given by partners for individuals with paraplegia versus tetraplegia 5 years after discharge from first inpatient rehabilitation; to describe perceived caregiver burden, mental health and life satisfaction among partners; and to analyse determinants of perceived burden and the partner's mental health and life satisfaction. SETTING: The Netherlands. METHODS: Participants were partners of persons with spinal cord injury (SCI) 5 years after discharge from first inpatient rehabilitation (N = 67). Participants completed a self-report questionnaire. Provided support was assessed with an existing scale consisting of 25 activities for which partners could indicate how often they provide support to the patient. Caregiver burden was assessed with the Caregiver Strain Index. Mental health was measured with the Short-Form Health Survey 36 (mental health subscale), and life satisfaction was measured with the Life Satisfaction Questionnaire. RESULTS: Five years after inpatient rehabilitation, partners provided support with a large variety of activities. How often and in which activities partners provided support was associated with lesion level. About 43% of the partners experienced high levels of caregiver burden. Provided support was related to perceived burden (rS = 0.58) and life satisfaction (rS = -0.24), and burden was negatively related to mental health (rS = -0.47) and life satisfaction (rS = -0.67). CONCLUSIONS: High levels of perceived burden among partners and the associations between higher burden with lower well-being show the importance to prevent caregiver overload in partners of individuals with SCI. Monitoring burden during regular rehabilitation visits may help to early detect burden.
STUDY DESIGN: Cross-sectional study. OBJECTIVES: To describe type and regularity of support given by partners for individuals with paraplegia versus tetraplegia 5 years after discharge from first inpatient rehabilitation; to describe perceived caregiver burden, mental health and life satisfaction among partners; and to analyse determinants of perceived burden and the partner's mental health and life satisfaction. SETTING: The Netherlands. METHODS:Participants were partners of persons with spinal cord injury (SCI) 5 years after discharge from first inpatient rehabilitation (N = 67). Participants completed a self-report questionnaire. Provided support was assessed with an existing scale consisting of 25 activities for which partners could indicate how often they provide support to the patient. Caregiver burden was assessed with the Caregiver Strain Index. Mental health was measured with the Short-Form Health Survey 36 (mental health subscale), and life satisfaction was measured with the Life Satisfaction Questionnaire. RESULTS: Five years after inpatient rehabilitation, partners provided support with a large variety of activities. How often and in which activities partners provided support was associated with lesion level. About 43% of the partners experienced high levels of caregiver burden. Provided support was related to perceived burden (rS = 0.58) and life satisfaction (rS = -0.24), and burden was negatively related to mental health (rS = -0.47) and life satisfaction (rS = -0.67). CONCLUSIONS: High levels of perceived burden among partners and the associations between higher burden with lower well-being show the importance to prevent caregiver overload in partners of individuals with SCI. Monitoring burden during regular rehabilitation visits may help to early detect burden.
Authors: Willeke J Kruithof; Marcel W M Post; Maria L van Mierlo; Geertrudis A M van den Bos; Janneke M de Man-van Ginkel; Johanna M A Visser-Meily Journal: Patient Educ Couns Date: 2016-04-11
Authors: Marcel W M Post; Annet J Dallmeijer; Edmond L D Angenot; Floris W A van Asbeck; Lucas H V van der Woude Journal: J Rehabil Res Dev Date: 2005 May-Jun
Authors: Christel M C van Leeuwen; Marcel W M Post; Floris W A van Asbeck; Helma M H Bongers-Janssen; Lucas H V van der Woude; Sonja de Groot; Eline Lindeman Journal: Disabil Rehabil Date: 2011-08-26 Impact factor: 3.033
Authors: James W Middleton; Grahame K Simpson; Annelies De Wolf; Ruth Quirk; Joseph Descallar; Ian D Cameron Journal: Arch Phys Med Rehabil Date: 2014-04-04 Impact factor: 3.966
Authors: Eline W M Scholten; Julia D H P Simon; Tijn van Diemen; Chantal F Hillebregt; Marjolijn Ketelaar; Kees Hein Woldendorp; Rutger Osterthun; Johanna M A Visser-Meily; Marcel W M Post Journal: BMC Psychol Date: 2020-05-20
Authors: Pernille Langer Soendergaard; Mia Moth Wolffbrandt; Fin Biering-Sørensen; Malin Nordin; Trine Schow; Juan Carlos Arango-Lasprilla; Anne Norup Journal: Trials Date: 2019-11-27 Impact factor: 2.279