Literature DB >> 29286570

Identifying patient- and family-centered outcomes relevant to inpatient versus at-home management of neutropenia in children with acute myeloid leukemia.

Julia E Szymczak1,2, Kelly D Getz3,4, Rachel Madding3,4, Brian Fisher2,4,5, Elizabeth Raetz6, Nobuko Hijiya7,8, Maria M Gramatges9, Meret Henry10, Amir Mian11, Staci D Arnold12, Catherine Aftandilian13, Anderson B Collier14, Richard Aplenc2,3,4.   

Abstract

Efficacy of therapeutic strategies relative to patient- and family-centered outcomes in pediatric oncology must be assessed. We sought to identify outcomes important to children with acute myeloid leukemia and their families related to inpatient versus at-home management of neutropenia. We conducted qualitative interviews with 32 children ≥8 years old and 54 parents. Analysis revealed the impact of neutropenia management strategy on siblings, parent anxiety, and child sleep quality as being outcomes of concern across respondents. These themes were used to inform the design of a questionnaire that is currently being used in a prospective, multiinstitutional comparative effectiveness trial.
© 2017 Wiley Periodicals, Inc.

Entities:  

Keywords:  acute myeloid leukemia; neutropenia; patient-reported outcomes; qualitative methodology

Mesh：

Year:  2017        PMID： 29286570      PMCID： PMC6857179          DOI： 10.1002/pbc.26927

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN： 1545-5009            Impact factor:   3.167


  14 in total

1.  Constructing Grounded Theory: A practical guide through qualitative analysis Kathy Charmaz Constructing Grounded Theory: A practical guide through qualitative analysis Sage 224 £19.99 0761973532 0761973532 [Formula: see text].

Authors: 
Journal:  Nurse Res       Date:  2006-07-01

Review 2.  Impact of pediatric critical illness and injury on families: a systematic literature review.

Authors:  Marysia Shudy; Mary Lihinie de Almeida; Susan Ly; Christopher Landon; Stephen Groft; Tammara L Jenkins; Carol E Nicholson
Journal:  Pediatrics       Date:  2006-12       Impact factor: 7.124

3.  Psychological distress in parents of children with advanced cancer.

Authors:  Abby R Rosenberg; Veronica Dussel; Tammy Kang; J Russel Geyer; Cynthia A Gerhardt; Chris Feudtner; Joanne Wolfe
Journal:  JAMA Pediatr       Date:  2013-06       Impact factor: 16.193

4.  International variations in infection supportive care practices for paediatric patients with acute myeloid leukaemia.

Authors:  Thomas Lehrnbecher; Marie-Chantal Ethier; Theoklis Zaoutis; Ursula Creutzig; Alan Gamis; Dirk Reinhardt; Richard Aplenc; Lillian Sung
Journal:  Br J Haematol       Date:  2009-08-05       Impact factor: 6.998

5.  Parental perspectives on inpatient versus outpatient management of pediatric febrile neutropenia.

Authors:  Caroline Diorio; Julia Martino; Katherine Mary Boydell; Marie-Chantal Ethier; Chris Mayo; Richard Wing; Oliver Teuffel; Lillian Sung; Deborah Tomlinson
Journal:  J Pediatr Oncol Nurs       Date:  2011 Nov-Dec       Impact factor: 1.636

6.  Inpatient versus outpatient management of low-risk pediatric febrile neutropenia: measuring parents' and healthcare professionals' preferences.

Authors:  Lillian Sung; Brian M Feldman; Gina Schwamborn; Diana Paczesny; Ashley Cochrane; Mark L Greenberg; Anne Marie Maloney; Eleanor I Hendershot; Ahmed Naqvi; Maru Barrera; Hilary A Llewellyn-Thomas
Journal:  J Clin Oncol       Date:  2004-10-01       Impact factor: 44.544

7.  Nighttime sleep disruptions, the hospital care environment, and symptoms in elementary school-age children with cancer.

Authors:  Lauri A Linder; Becky J Christian
Journal:  Oncol Nurs Forum       Date:  2012-11       Impact factor: 2.172

8.  Concept and measurement of pediatric value.

Authors:  Christopher B Forrest; Jeffrey H Silber
Journal:  Acad Pediatr       Date:  2014 Sep-Oct       Impact factor: 3.107

9.  Health-related quality of life anticipated with different management strategies for paediatric febrile neutropaenia.

Authors:  S Cheng; O Teuffel; M C Ethier; C Diorio; J Martino; C Mayo; D Regier; R Wing; S M H Alibhai; L Sung
Journal:  Br J Cancer       Date:  2011-06-21       Impact factor: 7.640

10.  Guideline for the management of fever and neutropenia in children with cancer and/or undergoing hematopoietic stem-cell transplantation.

Authors:  Thomas Lehrnbecher; Robert Phillips; Sarah Alexander; Frank Alvaro; Fabianne Carlesse; Brian Fisher; Hana Hakim; Maria Santolaya; Elio Castagnola; Bonnie L Davis; L Lee Dupuis; Faith Gibson; Andreas H Groll; Aditya Gaur; Ajay Gupta; Rejin Kebudi; Sérgio Petrilli; William J Steinbach; Milena Villarroel; Theoklis Zaoutis; Lillian Sung
Journal:  J Clin Oncol       Date:  2012-09-17       Impact factor: 44.544
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  2 in total

Review 1.  Numbers and narratives: how qualitative methods can strengthen the science of paediatric antimicrobial stewardship.

Authors:  Charlotte Z Woods-Hill; Anping Xie; John Lin; Heather A Wolfe; Alex S Plattner; Sara Malone; Kathleen Chiotos; Julia E Szymczak
Journal:  JAC Antimicrob Resist       Date:  2022-01-22

2.  Medical Outcomes, Quality of Life, and Family Perceptions for Outpatient vs Inpatient Neutropenia Management After Chemotherapy for Pediatric Acute Myeloid Leukemia.

Authors:  Kelly D Getz; Julia E Szymczak; Yimei Li; Rachel Madding; Yuan-Shung V Huang; Catherine Aftandilian; Staci D Arnold; Kira O Bona; Emi Caywood; Anderson B Collier; M Monica Gramatges; Meret Henry; Craig Lotterman; Kelly Maloney; Amir Mian; Rajen Mody; Elaine Morgan; Elizabeth A Raetz; Jeffrey Rubnitz; Anupam Verma; Naomi Winick; Jennifer J Wilkes; Jennifer C Yu; Brian T Fisher; Richard Aplenc
Journal:  JAMA Netw Open       Date:  2021-10-01
  2 in total

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