Literature DB >> 29273732

Decisional conflict and regret: shared decision-making about pregnancy affected by β-thalassemia major in Southeast of Iran.

Zahra Moudi1, Zenab Phanodi2, Hossein Ansari3, Mostafa Montazer Zohour3.   

Abstract

To study the effect of shared decision-making (SDM) on decisional conflict (DC) scores immediately after consultation and to assess the decisional regret (DR) scores in the first 3 months following women's decision regarding termination of pregnancy. This quasi-experimental study was conducted during August 3rd-February 20th, 2016. We included 80 women whose fetuses were diagnosed with β-thalassemia major (β-TM) through chorionic villi sampling and were referred to the only prenatal diagnosis center at Ali-Asghar Hospital, Zahedan, Iran. While the control group went through the routine procedures, the intervention group received a 90-min counseling session based on SDM. The demographic characteristics form and DC scale were filled out immediately after the consultation session. After 3 months, the women were contacted via telephone call to collect data on their level of DR. The mean DC score was significantly (P = < 0.0025) lower in the intervention group (8.47 ± 4.63) compared with the control group (44.10 ± 14.5). Moreover, the mean score of DR was significantly (P = 0.004) lower in the intervention group (9.37 ± 15.44) compared with the control group (24.37 ± 23.42). SDM consultation can help women experience significantly lower levels of DC and DR.

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Year:  2017        PMID: 29273732     DOI: 10.1038/s10038-017-0379-6

Source DB:  PubMed          Journal:  J Hum Genet        ISSN: 1434-5161            Impact factor:   3.172


  32 in total

Review 1.  Framework for teaching and learning informed shared decision making.

Authors:  A Towle; W Godolphin
Journal:  BMJ       Date:  1999-09-18

2.  Shared decision-making and evidence-based practice.

Authors:  Jared R Adams; Robert E Drake
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3.  Shared decision making: a consideration of historical and political contexts.

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4.  Attitudes towards prenatal diagnosis and abortion in a multi-ethnic country: a survey among parents of children with thalassaemia major in Malaysia.

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5.  Shared decision-making in primary care: the neglected second half of the consultation.

Authors:  G Elwyn; A Edwards; P Kinnersley
Journal:  Br J Gen Pract       Date:  1999-06       Impact factor: 5.386

6.  Decisions about testing and termination of pregnancy for different fetal conditions: a qualitative study of European White and Pakistani mothers of affected children.

Authors:  Shenaz Ahmed; Jenny Hewison; Josephine M Green; Howard S Cuckle; Janet Hirst; Jim G Thornton
Journal:  J Genet Couns       Date:  2008-10-09       Impact factor: 2.537

7.  Evaluation of the national prevention program in iran, 2007-2009: the accomplishments and challenges with reflections on the path ahead.

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8.  More primary care patients regret health decisions if they experienced decisional conflict in the consultation: a secondary analysis of a multicenter descriptive study.

Authors:  Maria-Margarita Becerra-Perez; Matthew Menear; Stephane Turcotte; Michel Labrecque; France Légaré
Journal:  BMC Fam Pract       Date:  2016-11-10       Impact factor: 2.497

Review 9.  Current and future alternative therapies for beta-thalassemia major.

Authors:  Edouard de Dreuzy; Kanit Bhukhai; Philippe Leboulch; Emmanuel Payen
Journal:  Biomed J       Date:  2016-04-06       Impact factor: 4.910

10.  Causes of new cases of major thalassemia in sistan and balouchistan province in South-East of iran.

Authors:  E Miri-Moghaddam; M Naderi; S Izadi; Ma Mashhadi
Journal:  Iran J Public Health       Date:  2012-11-01       Impact factor: 1.429

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  2 in total

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Review 2.  Reproductive options for families at risk of Osteogenesis Imperfecta: a review.

Authors:  Lidiia Zhytnik; Kadri Simm; Andres Salumets; Maire Peters; Aare Märtson; Katre Maasalu
Journal:  Orphanet J Rare Dis       Date:  2020-05-27       Impact factor: 4.123

  2 in total

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