Literature DB >> 29250986

Experience with telemedicine in a multi-disciplinary ALS clinic.

Marc Van De Rijn1,2, Sabrina Paganoni1,2,3,4, Mark Levine-Weinberg1,3, Katharine Campbell1,3, Amy Swartz Ellrodt1,3, Juan Estrada1,3, Adam B Cohen1,3, Lee H Schwamm1,3, James D Berry1,3.   

Abstract

OBJECTIVE: Telemedicine using video televisits is emerging as a means to provide care directly to patients. Here we report our experience using video televisits to provide follow-up care as a part of the Massachusetts General Hospital (MGH) Telemedicine for People with ALS (TelePALS) initiative.
METHODS: This was a retrospective chart review of all video televisit encounters conducted by the MGH ALS clinic between September 2014 and January 2016.
RESULTS: A total of 97 distinct ALS patients were seen using video televisits. Twenty-four percent of these patients had more than one video televisit. The median distance of the patients' primary residence to MGH was 211 miles. The average video televisit lasted 32 min (±12). About half the patients (54%) were ambulatory at the time of their video televisit. The most commonly addressed issues were medication management (89%), discussion of goals of care (74%), research (55%) and equipment use (50%). Acute care issues were rarely discussed.
CONCLUSION: Video televisits are feasible and can be a useful tool to supplement traditional clinic-based multidisciplinary ALS care.

Entities:  

Keywords:  Telemedicine; multidisciplinary; telehealth; video televisits; videoconferencing

Mesh:

Year:  2017        PMID: 29250986     DOI: 10.1080/21678421.2017.1392577

Source DB:  PubMed          Journal:  Amyotroph Lateral Scler Frontotemporal Degener        ISSN: 2167-8421            Impact factor:   4.092


  8 in total

Review 1.  Aligning mission to digital health strategy in academic medical centers.

Authors:  Adam B Cohen; Lisa Stump; Harlan M Krumholz; Margaret Cartiera; Sanchita Jain; L Scott Sussman; Allen Hsiao; Walter Lindop; Anita Kuo Ying; Rebecca L Kaul; Thomas J Balcezak; Welela Tereffe; Matthew Comerford; Daniel Jacoby; Neema Navai
Journal:  NPJ Digit Med       Date:  2022-06-02

2.  Development of an Interdisciplinary Telehealth Care Model in a Pediatric Cystic Fibrosis Center.

Authors:  Catherine Enochs; Amy G Filbrun; Courtney Iwanicki; Haley Moraniec; Julie Lehrmann; Jourdan Stiffler; Sharyn Dagher; Chris Tapley; Hanna Phan; Rebekah Raines; Samya Z Nasr
Journal:  Telemed Rep       Date:  2021-10-12

3.  Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis.

Authors:  Sabrina Paganoni; Marc van de Rijn; Kristin Drake; Katherine Burke; Michael Doyle; Amy Swartz Ellrodt; Katherine Nicholson; Nazem Atassi; Fabiola de Marchi; Suma Babu; Juan Estrada; Lee H Schwamm; James D Berry
Journal:  Muscle Nerve       Date:  2019-06-27       Impact factor: 3.217

4.  Process evaluation and exploration of telehealth in motor neuron disease in a UK specialist centre.

Authors:  Esther Hobson; Wendy Baird; Mike Bradburn; Cindy Cooper; Susan Mawson; Ann Quinn; Pamela J Shaw; Theresa Walsh; Christopher J McDermott
Journal:  BMJ Open       Date:  2019-10-22       Impact factor: 2.692

Review 5.  New technologies and Amyotrophic Lateral Sclerosis - Which step forward rushed by the COVID-19 pandemic?

Authors:  Susana Pinto; Stefano Quintarelli; Vincenzo Silani
Journal:  J Neurol Sci       Date:  2020-08-05       Impact factor: 3.181

6.  Patient preference for virtual versus in-person visits in neuromuscular clinical practice.

Authors:  Komal Hafeez; Hani Kushlaf; Husam Al-Sultani; Anny-Claude Joseph; Zoya Zaeem; Zaeem Siddiqi; Shannon Laboy; Michael Pulley; Ali A Habib; Nathaniel M Robbins; Sean Zadeh; Muhammad Ubaid Hafeez; Yessar Hussain; Alexandria Melendez-Zaidi; Charles Kassardjian; Kristin Johnson; Holly Leonhard; Suur Biliciler; Jorge E Patino Murillas; Aziz I Shaibani
Journal:  Muscle Nerve       Date:  2022-06-03       Impact factor: 3.852

7.  Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities.

Authors:  Jinsy A Andrews; James D Berry; Robert H Baloh; Nathan Carberry; Merit E Cudkowicz; Brixhilda Dedi; Jonathan Glass; Nicholas J Maragakis; Timothy M Miller; Sabrina Paganoni; Jeffrey D Rothstein; Jeremy M Shefner; Zachary Simmons; Michael D Weiss; Richard S Bedlack
Journal:  Muscle Nerve       Date:  2020-06-05       Impact factor: 3.852

Review 8.  A digital embrace to blunt the curve of COVID19 pandemic.

Authors:  Lee H Schwamm; Alistair Erskine; Adam Licurse
Journal:  NPJ Digit Med       Date:  2020-05-04
  8 in total

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