Literature DB >> 29214603

Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder.

Daniel Shepherd1,2, Rita Csako3,4, Jason Landon3,4, Sonja Goedeke3,4, Kelly Ty3,4.   

Abstract

Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child's symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers.

Entities:  

Keywords:  ASD; Autism; Intervention choice; Parent decision making

Mesh:

Year:  2018        PMID: 29214603     DOI: 10.1007/s10803-017-3395-7

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  22 in total

1.  Predictors of care-giver stress in families of preschool-aged children with developmental disabilities.

Authors:  K M Plant; M R Sanders
Journal:  J Intellect Disabil Res       Date:  2007-02

2.  Increasing health-care options: the perspectives of parents who use complementary and alternative medicines.

Authors:  Maree O'Keefe; Suzette Coat
Journal:  J Paediatr Child Health       Date:  2010-03-29       Impact factor: 1.954

3.  GPs' confidence in caring for their patients on the autism spectrum: an online self-report study.

Authors:  Silvana Unigwe; Carole Buckley; Laura Crane; Lorcan Kenny; Anna Remington; Elizabeth Pellicano
Journal:  Br J Gen Pract       Date:  2017-05-08       Impact factor: 5.386

4.  The association between bullying and the psychological functioning of children with autism spectrum disorders.

Authors:  Benjamin Zablotsky; Catherine P Bradshaw; Connie Anderson; Paul A Law
Journal:  J Dev Behav Pediatr       Date:  2013-01       Impact factor: 2.225

5.  A consideration of medicalisation: choice, engagement and other responsibilities of parents of children with autism spectrum disorder.

Authors:  Kylie Valentine
Journal:  Soc Sci Med       Date:  2010-06-23       Impact factor: 4.634

6.  Treatments for autism: parental choices and perceptions of change.

Authors:  Anne Bowker; Nadia M D'Angelo; Robin Hicks; Kerry Wells
Journal:  J Autism Dev Disord       Date:  2011-10

Review 7.  A systematic review of early intensive intervention for autism spectrum disorders.

Authors:  Zachary Warren; Melissa L McPheeters; Nila Sathe; Jennifer H Foss-Feig; Allison Glasser; Jeremy Veenstra-Vanderweele
Journal:  Pediatrics       Date:  2011-04-04       Impact factor: 7.124

8.  Complementary and alternative treatment use for autism spectrum disorders.

Authors:  Sarah E Hall; Cynthia A Riccio
Journal:  Complement Ther Clin Pract       Date:  2012-06-26       Impact factor: 2.446

9.  Internet survey of treatments used by parents of children with autism.

Authors:  Vanessa A Green; Keenan A Pituch; Jonathan Itchon; Aram Choi; Mark O'Reilly; Jeff Sigafoos
Journal:  Res Dev Disabil       Date:  2006 Jan-Feb

10.  Beliefs held by parents of autistic children.

Authors:  J H Elder
Journal:  J Child Adolesc Psychiatr Nurs       Date:  1994 Jan-Mar
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  11 in total

1.  Evaluation of a Brief Family-Centered Service Provision Model for Treating Children's Severe Behavior: A Retrospective Consecutive Case Series Analysis.

Authors:  Collin Shepley; Sally B Shepley; R Allan Allday; Melanie Tyner-Wilson; Daniel Larrow
Journal:  Behav Anal Pract       Date:  2020-09-22

2.  The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done.

Authors:  Anders Nordahl-Hansen; Logan Hart; Roald A Øien
Journal:  J Autism Dev Disord       Date:  2018-04

3.  Brief Report: Parent's Assessments of Their Care-Related Stress and Child's ASD Symptoms in Relation to Their child's Intervention History.

Authors:  Daniel Shepherd; Rita Csako; Jason Landon; Sonja Goedeke; Kelly Ty
Journal:  J Autism Dev Disord       Date:  2018-08

4.  Developing the Parent-Coaching Assessment, Individualization, and Response to Stressors (PAIRS) Tool for Behavior Analysts.

Authors:  Cressida Pacia; Ciara Gunning; Aoife McTiernan; Jennifer Holloway
Journal:  J Autism Dev Disord       Date:  2022-06-29

5.  Autism Spectrum Disorder: When There is no Cure, There are Countless of Treatments.

Authors:  Dincer Saral; Seray Olcay; Halil Ozturk
Journal:  J Autism Dev Disord       Date:  2022-10-12

6.  Early Intervention Delivery Methods for New Zealand Children with Autism: Current Practices Versus Parental Preferences.

Authors:  Carla Wallace-Watkin; Andrew J O Whitehouse; Hannah Waddington
Journal:  J Autism Dev Disord       Date:  2020-11-16

7.  The Role of Choice and Control in the Impact of Autism Waiver Services on Family Quality of Life and Child Progress.

Authors:  Karen Goldrich Eskow; Gregory S Chasson; Jean Ann Summers
Journal:  J Autism Dev Disord       Date:  2019-05

8.  Complementary and Alternative Medicine Use in Children with a Developmental Disability and Co-occurring Medical Conditions.

Authors:  Corina R Zisman; Marisa A Patti; Luther G Kalb; Emma K Stapp; Kathryn Van Eck; Heather Volk; Calliope Holingue
Journal:  Complement Ther Med       Date:  2020-07-30       Impact factor: 3.335

9.  Culturally diverse families of young children with ASD in Sweden: Parental explanatory models.

Authors:  Rano Zakirova-Engstrand; Tatja Hirvikoski; Mara Westling Allodi; Lise Roll-Pettersson
Journal:  PLoS One       Date:  2020-07-27       Impact factor: 3.240

10.  Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder.

Authors:  Susann Arnell; Kajsa Jerlinder; Lars-Olov Lundqvist
Journal:  Autism       Date:  2020-07-25
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