Literature DB >> 29177566

Introduction to special section: measuring what matters.

Steven I Blum1, Sara Ahmed2, Emuella Flood3, Frans J Oort4, Carolyn E Schwartz5,6.   

Abstract

Year:  2018        PMID： 29177566     DOI： 10.1007/s11136-017-1743-x

Source DB:  PubMed          Journal:  Qual Life Res        ISSN： 0962-9343            Impact factor:   4.147


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  8 in total

1.  Development of a care guidance index based on what matters to patients.

Authors:  John H Wasson; Laura Soloway; L Gordon Moore; Paul Labrec; Lynn Ho
Journal:  Qual Life Res       Date:  2017-04-11       Impact factor: 4.147

2.  Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development.

Authors:  Hilary Wilson; Ebony Dashiell-Aje; Milena Anatchkova; Karin Coyne; Asha Hareendran; Nancy Kline Leidy; Colleen A McHorney; Kathy Wyrwich
Journal:  Qual Life Res       Date:  2017-04-19       Impact factor: 4.147

3.  Moving from significance to real-world meaning: methods for interpreting change in clinical outcome assessment scores.

Authors:  Cheryl D Coon; Karon F Cook
Journal:  Qual Life Res       Date:  2017-06-15       Impact factor: 4.147

4.  Prioritizing research topics: a comparison of crowdsourcing and patient registry.

Authors:  Anjali R Truitt; Sarah E Monsell; Andrew L Avins; David R Nerenz; Sarah O Lawrence; Zoya Bauer; Bryan A Comstock; Todd C Edwards; Donald L Patrick; Jeffrey G Jarvik; Danielle C Lavallee
Journal:  Qual Life Res       Date:  2017-04-05       Impact factor: 4.147

5.  How the Patient-Centered Outcomes Research Institute is engaging patients and others in shaping its research agenda.

Authors:  Rachael Fleurence; Joe V Selby; Kara Odom-Walker; Gail Hunt; David Meltzer; Jean R Slutsky; Clyde Yancy
Journal:  Health Aff (Millwood)       Date:  2013-02       Impact factor: 6.301

6.  Measuring what matters MOST: validation of the Measure of Ovarian Symptoms and Treatment, a patient-reported outcome measure of symptom burden and impact of chemotherapy in recurrent ovarian cancer.

Authors:  Madeleine T King; Martin R Stockler; Rachel L O'Connell; Luke Buizen; Florence Joly; Anne Lanceley; Felix Hilpert; Aikou Okamoto; Eriko Aotani; Jane Bryce; Paul Donnellan; Amit Oza; Elisabeth Avall-Lundqvist; Jonathan S Berek; Jalid Sehouli; Amanda Feeney; Dominique Berton-Rigaud; Daniel S J Costa; Michael L Friedlander
Journal:  Qual Life Res       Date:  2017-12-16       Impact factor: 4.147

7.  Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium.

Authors:  Kirstie Haywood; Jo Brett; Sam Salek; Nancy Marlett; Colin Penman; Svetlana Shklarov; Colleen Norris; Maria Jose Santana; Sophie Staniszewska
Journal:  Qual Life Res       Date:  2014-09-07       Impact factor: 4.147

8.  Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute.

Authors:  Laura Forsythe; Andrea Heckert; Mary Kay Margolis; Suzanne Schrandt; Lori Frank
Journal:  Qual Life Res       Date:  2017-05-12       Impact factor: 4.147
  8 in total

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