Literature DB >> 29156490

"The citizen is stepping into a new role"-Policy interpretations of patient and public involvement in Finland.

Marjaana Jones1, Ilkka Pietilä1.   

Abstract

Involving patients and the public in healthcare decision-making is on the policy agenda in several countries. The aim of our study was to describe and analyse the development of patient and public involvement from a policy perspective. We argue that the language of health policies can influence both the aims and the development of involvement methods. In this study health policy documents, which have guided the development of patient and public involvement in Finland have been analysed using methods of Membership Categorisation Analysis. This has enabled us to explore how health policy documents categorise patients and the wider public in relation to involvement and orientate the involvement activities in which people are able to participate. Different set of abilities, expectations, responsibilities and opportunities is attached to the categories of patient, risk group, service user, customer and expert. Health policy documents often equate involvement with choice making by service users and customers; or as involvement in service development by experts. In both of these cases, involvement is depicted as an individual activity that requires personal responsibility and specialist knowledge. Although involvement opportunities have overall increased, they are primarily available to people that are "participation ready" and able to adopt roles promoted in policies. Health policy documents produce one interpretation of involvement, nevertheless it is important that diverse groups of patients, the public and health professionals participate in the discussion and express their views, which may differ from those of policy makers.
© 2017 John Wiley & Sons Ltd.

Entities:  

Keywords:  health policy; patient participation/role; qualitative research; user involvement

Mesh:

Year:  2017        PMID: 29156490     DOI: 10.1111/hsc.12520

Source DB:  PubMed          Journal:  Health Soc Care Community        ISSN: 0966-0410


  2 in total

1.  Quantitative online survey of self-perceived knowledge and knowledge gaps of medicines research and development among Finnish general public.

Authors:  Mirjami Tran Minh; Manu Tamminen; Jenni Tamminen-Sirkiä; Muntasir Mamun Majumder; Rubina Tabassum; Tuuli Lahti
Journal:  BMJ Open       Date:  2022-05-09       Impact factor: 3.006

2.  Financial relationships between patient and consumer representatives and the health industry: A systematic review.

Authors:  Joanne Khabsa; Aline Semaan; Amena El-Harakeh; Assem M Khamis; Serena Obeid; Hussein A Noureldine; Elie A Akl
Journal:  Health Expect       Date:  2019-12-19       Impact factor: 3.377

  2 in total

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