Literature DB >> 29132689

Raw Genomic Data: Storage, Access, and Sharing.

Mahsa Shabani1, Danya Vears2, Pascal Borry2.   

Abstract

Patients are increasingly being encouraged and supported to access and control their own medical and genomic data. We argue that well-established and transparent raw genomic data retention and returning policies are imperative to enable patients to practice their rights to access and control raw data.
Copyright © 2017 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  access rights; genomic data; patients; raw data

Mesh：

Year:  2017        PMID： 29132689     DOI： 10.1016/j.tig.2017.10.004

Source DB:  PubMed          Journal:  Trends Genet        ISSN： 0168-9525            Impact factor:   11.639


  5 in total

1.  Transformation of the Doctor-Patient Relationship: Big Data, Accountable Care, and Predictive Health Analytics.

Authors:  Seuli Bose Brill; Karen O Moss; Laura Prater
Journal:  HEC Forum       Date:  2019-12

2.  Transferring Exome Sequencing Data from Clinical Laboratories to Healthcare Providers: Lessons Learned at a Pediatric Hospital.

Authors:  Rajeswari Swaminathan; Yungui Huang; Katherine Miller; Matthew Pastore; Sayaka Hashimoto; Theodora Jacobson; Danielle Mouhlas; Simon Lin
Journal:  Front Genet       Date:  2018-02-21       Impact factor: 4.599

3.  Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe.

Authors:  Shaman Narayanasamy; Varvara Markina; Adrian Thorogood; Adriana Blazkova; Mahsa Shabani; Bartha M Knoppers; Barbara Prainsack; Robert Koesters
Journal:  Front Genet       Date:  2020-05-06       Impact factor: 4.599

4.  Systematic Review of Privacy-Preserving Distributed Machine Learning From Federated Databases in Health Care.

Authors:  Fadila Zerka; Samir Barakat; Sean Walsh; Marta Bogowicz; Ralph T H Leijenaar; Arthur Jochems; Benjamin Miraglio; David Townend; Philippe Lambin
Journal:  JCO Clin Cancer Inform       Date:  2020-03

5.  Please give me a copy of my child's raw genomic data.

Authors:  Lauren Chad; Michael J Szego
Journal:  NPJ Genom Med       Date:  2021-02-17       Impact factor: 8.617
  5 in total

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