Jessica M Ketchum1,2, Jeffrey P Cuthbert3, Anne Deutsch4,5,6, Yuying Chen7, Susan Charlifue8, David Chen5,6, Marcel P Dijkers9,10, James E Graham11, Allen W Heinemann5,6, Daniel P Lammertse8,12, Gale G Whiteneck8. 1. Research Department, Craig Hospital, Englewood, CO, USA. jketchum@craighospital.org. 2. Traumatic Brain Injury Model Systems National Data and Statistical Center, Englewood, CO, USA. jketchum@craighospital.org. 3. Swedish Medical Center, Denver, CO, USA. 4. RTI International, Chicago, IL, USA. 5. Department of Physical Medicine and Rehabilitation, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA. 6. Center for Rehabilitation Outcomes Research, Shirley Ryan Ability Lab, Chicago, IL, USA. 7. Department of Physical Medicine and Rehabilitation, School of Medicine, University of Alabama at Birmingham, Birmingham, AL, UK. 8. Research Department, Craig Hospital, Englewood, CO, USA. 9. Department of Rehabilitation Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA. 10. Department of Physical Medicine and Rehabilitation, Wayne State University, Detroit, MI, USA. 11. Division of Rehabilitation Sciences, University of Texas Medical Branch, Galveston, TX, USA. 12. Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Aurora, CO, USA.
Abstract
STUDY DESIGN: Secondary analysis of prospectively collected observational data. OBJECTIVES: To assess the representativeness of the Spinal Cord Injury Model Systems National Database (SCIMS-NDB) of all adults aged 18 years or older receiving inpatient rehabilitation in the United States (US) for new onset traumatic spinal cord injury (TSCI). SETTING: Inpatient rehabilitation centers in the US. METHODS: We compared demographic, functional status, and injury characteristics (nine categorical variables comprising of 46 categories and two continuous variables) between the SCIMS-NDB (N = 5969) and UDS-PRO/eRehabData (N = 99,142) cases discharged from inpatient rehabilitation in 2000-2010. RESULTS: There are negligible differences (<5%) between SCIMS-NDB patients and the population for 31 of the 48 comparisons. Minor differences (5-10%) exist for age categories, sex, race/ethnicity, marital status, FIM Motor score, and time from injury to rehabilitation admission. Important differences (>10%) exist in mean age and preinjury occupational status; the SCIMS-NDB sample was younger and included a higher percentage of individuals who were employed (62.7 vs. 41.7%) and fewer who were retired (10.2 vs. 36.1%). CONCLUSIONS: Adults in the SCIMS-NDB are largely representative of the population of adults receiving inpatient rehabilitation for new onset TSCI in the US. However, users of the SCIMS-NDB may need to adjust statistically for differences in age and preinjury occupational status to improve generalizability of findings.
STUDY DESIGN: Secondary analysis of prospectively collected observational data. OBJECTIVES: To assess the representativeness of the Spinal Cord Injury Model Systems National Database (SCIMS-NDB) of all adults aged 18 years or older receiving inpatient rehabilitation in the United States (US) for new onset traumatic spinal cord injury (TSCI). SETTING: Inpatient rehabilitation centers in the US. METHODS: We compared demographic, functional status, and injury characteristics (nine categorical variables comprising of 46 categories and two continuous variables) between the SCIMS-NDB (N = 5969) and UDS-PRO/eRehabData (N = 99,142) cases discharged from inpatient rehabilitation in 2000-2010. RESULTS: There are negligible differences (<5%) between SCIMS-NDB patients and the population for 31 of the 48 comparisons. Minor differences (5-10%) exist for age categories, sex, race/ethnicity, marital status, FIM Motor score, and time from injury to rehabilitation admission. Important differences (>10%) exist in mean age and preinjury occupational status; the SCIMS-NDB sample was younger and included a higher percentage of individuals who were employed (62.7 vs. 41.7%) and fewer who were retired (10.2 vs. 36.1%). CONCLUSIONS: Adults in the SCIMS-NDB are largely representative of the population of adults receiving inpatient rehabilitation for new onset TSCI in the US. However, users of the SCIMS-NDB may need to adjust statistically for differences in age and preinjury occupational status to improve generalizability of findings.
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