Literature DB >> 29082333

Understanding Online Resource Use by Transgender Youth and Caregivers: A Qualitative Study.

Yolanda N Evans1,2, Samantha J Gridley3, Julia Crouch2, Alicia Wang4, Megan A Moreno1,2, Kym Ahrens1,2, David J Breland1,2.   

Abstract

Purpose: This study assessed what online resources transgender youth and their caregivers use to acquire information about transgender health.
Methods: Through a variety of settings, including subspecialty clinics, support groups, and online solicitation, we recruited caregivers of transgender youth aged 22 years or younger and self-identified transgender youth aged 14-22 years. We used a mixed methods approach of conducting in-person focus groups, interviews in person or through phone, and an online survey that allowed for increased flexibility for participants and to triangulate key themes from multiple data sources. Scripts were semistructured, and prompts were focused on resources accessed by transgender youth and their caregivers.
Results: We had a total of 65 participants, including 50 caregivers and 15 youth. Five main themes emerged from participants on why they sought out information on the Internet and what they found in their online searches. These themes include (1) exploring gender identity, (2) filling knowledge gaps, (3) seeking support networks, (4) finding transgender-friendly providers, and (5) encountering misinformation.
Conclusion: Our findings demonstrate the need for reliable trustworthy content online, the importance of the virtual community to support both youth and caregivers, and the challenge of navigating misinformation that is often faced by transgender youth as they navigate online resources. We propose partnering with professional organizations, such as the American Academy of Pediatrics or World Professional Association of Transgender Health, to promote evidence-based guidelines, position statements, and online information on healthcare for transgender youth.

Entities:  

Keywords:  Internet; adolescents; health information; online resource; social network; transgender

Year:  2017        PMID: 29082333      PMCID: PMC5628561          DOI: 10.1089/trgh.2017.0011

Source DB:  PubMed          Journal:  Transgend Health        ISSN: 2380-193X


  13 in total

1.  New mothers and media use: associations between blogging, social networking, and maternal well-being.

Authors:  Brandon T McDaniel; Sarah M Coyne; Erin K Holmes
Journal:  Matern Child Health J       Date:  2012-10

2.  Information on the World Wide Web--how useful is it for parents?

Authors:  Nurain Z Sim; Lara Kitteringham; Lewis Spitz; Agostino Pierro; Edward Kiely; David Drake; Joe Curry
Journal:  J Pediatr Surg       Date:  2007-02       Impact factor: 2.545

3.  Lesbian, Gay, Bisexual, and Transgender Health Disparities: Executive Summary of a Policy Position Paper From the American College of Physicians.

Authors:  Hilary Daniel; Renee Butkus
Journal:  Ann Intern Med       Date:  2015-07-21       Impact factor: 25.391

4.  Psychiatric comorbidity in gender dysphoric adolescents.

Authors:  Annelou L C de Vries; Theo A H Doreleijers; Thomas D Steensma; Peggy T Cohen-Kettenis
Journal:  J Child Psychol Psychiatry       Date:  2011-06-14       Impact factor: 8.982

5.  Youth and Caregiver Perspectives on Barriers to Gender-Affirming Health Care for Transgender Youth.

Authors:  Samantha J Gridley; Julia M Crouch; Yolanda Evans; Whitney Eng; Emily Antoon; Melissa Lyapustina; Allison Schimmel-Bristow; Jake Woodward; Kelly Dundon; RaNette Schaff; Carolyn McCarty; Kym Ahrens; David J Breland
Journal:  J Adolesc Health       Date:  2016-05-24       Impact factor: 5.012

6.  Children and adolescents with gender identity disorder referred to a pediatric medical center.

Authors:  Norman P Spack; Laura Edwards-Leeper; Henry A Feldman; Scott Leibowitz; Francie Mandel; David A Diamond; Stanley R Vance
Journal:  Pediatrics       Date:  2012-02-20       Impact factor: 7.124

Review 7.  Practice parameter on gay, lesbian, or bisexual sexual orientation, gender nonconformity, and gender discordance in children and adolescents.

Authors:  Stewart L Adelson
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2012-09       Impact factor: 8.829

8.  Mothers whose children have ADD/ADHD discuss their children's medication use: an investigation of blogs.

Authors:  Juanne N Clarke; Laura Lang
Journal:  Soc Work Health Care       Date:  2012

9.  Analysis of Patient Narratives in Disease Blogs on the Internet: An Exploratory Study of Social Pharmacovigilance.

Authors:  Shinichi Matsuda; Kotonari Aoki; Shiho Tomizawa; Masayoshi Sone; Riwa Tanaka; Hiroshi Kuriki; Yoichiro Takahashi
Journal:  JMIR Public Health Surveill       Date:  2017-02-24

10.  Social media use in the United States: implications for health communication.

Authors:  Wen-ying Sylvia Chou; Yvonne M Hunt; Ellen Burke Beckjord; Richard P Moser; Bradford W Hesse
Journal:  J Med Internet Res       Date:  2009-11-27       Impact factor: 5.428

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  8 in total

1.  Synthesizing a Special Issue on Parenting Adolescents in an Increasingly Diverse World.

Authors:  Andrea Hussong; Deborah J Jones; Michaeline Jensen
Journal:  J Res Adolesc       Date:  2018-09

2.  Bridging the gap: Identifying diverse stakeholder needs and barriers to accessing evidence and resources for children's pain.

Authors:  Nicole E MacKenzie; Christine T Chambers; Jennifer A Parker; Erin Aubrey; Isabel Jordan; Dawn P Richards; Justina Marianayagam; Samina Ali; Fiona Campbell; G Allen Finley; Emily Gruenwoldt; Bonnie Stevens; Jennifer Stinson; Kathryn A Birnie
Journal:  Can J Pain       Date:  2022-05-17

Review 3.  mHealth for transgender and gender-expansive youth: harnessing gender-affirmative cross-disciplinary innovations to advance HIV prevention and care interventions.

Authors:  Simone J Skeen; Demetria Cain; Kristi E Gamarel; Lisa Hightow-Weidman; Cathy J Reback
Journal:  Mhealth       Date:  2021-04-20

4.  Recommendations from Transgender Healthcare Consumers in Rural Areas.

Authors:  Douglas Knutson; Meredith A Martyr; Travis A Mitchell; Tori Arthur; Julie M Koch
Journal:  Transgend Health       Date:  2018-06-01

5.  Parent Participation in a Support Group for Families with Transgender and Gender-Nonconforming Children: "Being in the Company of Others Who Do Not Question the Reality of Our Experience".

Authors:  Amy Hillier; Elisabeth Torg
Journal:  Transgend Health       Date:  2019-08-12

6.  The Real-World Characteristics of Gender-Affirming Hormonal Use Among Transgender People in Thailand.

Authors:  Sakditat Ittiphisit; Salin Amponnavarat; Natnicha Manaboriboon; Sira Korpaisarn
Journal:  Sex Med       Date:  2022-04-12       Impact factor: 2.523

7.  Development of a WebPortal to Advance and Mobilize Knowledge Relevant to Trans-Affirming Care for Sexual Assault Survivors in Ontario, Canada.

Authors:  Janice Du Mont; Sarah Daisy Kosa; Joseph Friedman Burley; Sheila Macdonald
Journal:  Transgend Health       Date:  2022-08-01

8.  Embodying Transgender: An Analysis of Trans Women in Online Forums.

Authors:  Pranee Liamputtong; Kyja Noack-Lundberg; Tinashe Dune; Brahmaputra Marjadi; Virginia Schmied; Jane Ussher; Janette Perz; Alexandra Hawkey; Jessica Sekar; Eloise Brook
Journal:  Int J Environ Res Public Health       Date:  2020-09-09       Impact factor: 3.390

  8 in total

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