Literature DB >> 29053983

Conceptualizing trust in community-academic research partnerships using concept mapping approach: A multi-CTSA study.

Gaurav Dave1, Leah Frerichs2, Jennifer Jones3, Mimi Kim4, Jennifer Schaal5, Stefanie Vassar6, Deepthi Varma7, Catherine Striley7, Corrine Ruktanonchai8, Adina Black2, Jennifer Hankins9, Nakita Lovelady9, Crystal Cene2, Melissa Green2, Tiffany Young2, Shristi Tiwari2, Ann Cheney10, Linda Cottler7, Greer Sullivan10, Arleen Brown6, Jessica Burke3, Giselle Corbie-Smith2.   

Abstract

OBJECTIVES: Collaborations between communities, healthcare practices and academic institutions are a strategy to address health disparities. Trust is critical in the development and maintaining of effective collaborations. The aim of this pilot study was to engage stakeholders in defining determinants of trust in community academic research partnerships and to develop a framework for measuring trust.
METHODS: The study was conducted by five collaborating National Institute of Health' Clinical and Translational Sciences Awardees. We used concept mapping to engage three stakeholders: community members, healthcare providers and academicians. We conducted hierarchical cluster analysis to assess the determinants of trust in community-academic research partnerships.
RESULTS: A total of 186 participants provided input generating 2,172 items that were consolidated into 125 unique items. A five cluster solution was defined: authentic, effective and transparent communication; mutually respectful and reciprocal relationships; sustainability; committed partnerships; and, communication, credibility and methodology to anticipate and resolve problems.
CONCLUSION: Results from this study contribute to an increasing empirical body of work to better understand and improve the underlying factors that contribute to building and sustaining trust in community academic research partnerships.
Copyright © 2017 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  CBPR; CTSA; Community Engagement; Community-Academic Partnerships; Community-Engaged Research; Concept Mapping; Evaluation; Research Outcomes; Translational Research; Trust

Mesh:

Year:  2017        PMID: 29053983      PMCID: PMC5705432          DOI: 10.1016/j.evalprogplan.2017.10.007

Source DB:  PubMed          Journal:  Eval Program Plann        ISSN: 0149-7189


  29 in total

1.  Community engagement in research: frameworks for education and peer review.

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2.  Building and maintaining trust in a community-based participatory research partnership.

Authors:  Suzanne Christopher; Vanessa Watts; Alma Knows His Gun McCormick; Sara Young
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Review 3.  Review of community-based research: assessing partnership approaches to improve public health.

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4.  Using Community-based Participatory Research (CBPR) To Target Health Disparities in Families.

Authors:  Jerica M Berge; Tai J Mendenhall; William J Doherty
Journal:  Fam Relat       Date:  2009-10-01

5.  Stakeholder Perspectives on Creating and Maintaining Trust in Community-Academic Research Partnerships.

Authors:  Leah Frerichs; Mimi Kim; Gaurav Dave; Ann Cheney; Kristen Hassmiller Lich; Jennifer Jones; Tiffany L Young; Crystal W Cene; Deepthi S Varma; Jennifer Schaal; Adina Black; Catherine W Striley; Stefanie Vassar; Greer Sullivan; Linda B Cottler; Arleen Brown; Jessica G Burke; Giselle Corbie-Smith
Journal:  Health Educ Behav       Date:  2016-07-09

6.  More than Tuskegee: understanding mistrust about research participation.

Authors:  Darcell P Scharff; Katherine J Mathews; Pamela Jackson; Jonathan Hoffsuemmer; Emeobong Martin; Dorothy Edwards
Journal:  J Health Care Poor Underserved       Date:  2010-08

7.  Trust and satisfaction with physicians, insurers, and the medical profession.

Authors:  Rajesh Balkrishnan; Elizabeth Dugan; Fabian T Camacho; Mark A Hall
Journal:  Med Care       Date:  2003-09       Impact factor: 2.983

8.  Community needs, concerns, and perceptions about health research: findings from the clinical and translational science award sentinel network.

Authors:  Linda B Cottler; Donna Jo McCloskey; Sergio Aguilar-Gaxiola; Nancy M Bennett; Hal Strelnick; Molly Dwyer-White; Deborah E Collyar; Shaun Ajinkya; Sarena D Seifer; Catina Callahan O'Leary; Catherine W Striley; Bradley Evanoff
Journal:  Am J Public Health       Date:  2013-02-14       Impact factor: 9.308

9.  A logic model for community engagement within the Clinical and Translational Science Awards consortium: can we measure what we model?

Authors:  Milton Mickey Eder; Lori Carter-Edwards; Thelma C Hurd; Bernice B Rumala; Nina Wallerstein
Journal:  Acad Med       Date:  2013-10       Impact factor: 6.893

10.  The Program Sustainability Assessment Tool: a new instrument for public health programs.

Authors:  Douglas A Luke; Annaliese Calhoun; Christopher B Robichaux; Michael B Elliott; Sarah Moreland-Russell
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Review 1.  Exploring the Multidimensionality of Trust in Participatory Health Partnerships - A Network Approach.

Authors:  Meghan Gilfoyle; Jon Salsberg; Miriam McCarthy; Anne MacFarlane; Pádraig MacCarron
Journal:  Front Public Health       Date:  2022-07-06

2.  Anticipated reactions to learning Alzheimer's disease biomarker results.

Authors:  Lindsay R Clark; Claire M Erickson; Erin M Jonaitis; Yue Ma; Nathaniel A Chin; Kristin Basche; Frederick B Ketchum; Carey E Gleason
Journal:  Alzheimers Res Ther       Date:  2022-06-22       Impact factor: 8.823

3.  The Pittsburgh Study: Learning with Communities About Child Health and Thriving.

Authors:  Terence S Dermody; Anna Ettinger; Felicia Savage Friedman; Val Chavis; Elizabeth Miller
Journal:  Health Equity       Date:  2022-05-06

4.  Building capacity for collaborative research on opioid and other substance use disorders through the Clinical and Translational Science Award Program.

Authors:  Linda B Cottler; Alan I Green; Harold Alan Pincus; Scott McIntosh; Jennifer L Humensky; Kathleen Brady
Journal:  J Clin Transl Sci       Date:  2019-11-25

5.  Improving the quality and quantity of clinical and translational research statewide: An application of group concept mapping.

Authors:  Jacquelyn Fede; Stephen J Kogut; Anthony Hayward; John F Stevenson; Cynthia Willey-Temkin; Heather Fournier; Gabrielle Stranieri; Judy A Kimberly; James Padbury
Journal:  J Clin Transl Sci       Date:  2021-01-05

Review 6.  Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review.

Authors:  Meghan Gilfoyle; Anne MacFarlane; Jon Salsberg
Journal:  Syst Rev       Date:  2022-03-06

Review 7.  A scoping review to identify and describe the characteristics of theories, models and frameworks of health research partnerships.

Authors:  B J Tittlemier; J Cooper; D Steliga; R L Woodgate; K M Sibley
Journal:  Health Res Policy Syst       Date:  2022-06-18

8.  Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.

Authors:  Stephanie A Kraft; Erin Rothwell; Seema K Shah; Devan M Duenas; Hannah Lewis; Kristin Muessig; Douglas J Opel; Katrina A B Goddard; Benjamin S Wilfond
Journal:  J Med Ethics       Date:  2020-10-06       Impact factor: 2.903

  8 in total

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