Literature DB >> 29016789

A technology-based patient and family engagement consult service for the pediatric hospital setting.

Gretchen P Jackson1,2,3, Jamie R Robinson1,2, Ebone Ingram4, Mary Masterman5, Catherine Ivory2,6, Diane Holloway7, Shilo Anders1,8, Robert M Cronin2,3,9.   

Abstract

Objective: The Vanderbilt Children's Hospital launched an innovative Technology-Based Patient and Family Engagement Consult Service in 2014. This paper describes our initial experience with this service, characterizes health-related needs of families of hospitalized children, and details the technologies recommended to promote engagement and meet needs. Materials and
Methods: We retrospectively reviewed consult service documentation for patient characteristics, health-related needs, and consultation team recommendations. Needs were categorized using a consumer health needs taxonomy. Recommendations were classified by technology type.
Results: Twenty-two consultations were conducted with families of patients ranging in age from newborn to 15 years, most with new diagnoses or chronic illnesses. The consultation team identified 99 health-related needs (4.5 per consultation) and made 166 recommendations (7.5 per consultation, 1.7 per need). Need categories included 38 informational needs, 26 medical needs, 23 logistical needs, and 12 social needs. The most common recommendations were websites (50, 30%) and mobile applications (30, 18%). The most frequent recommendations by need category were websites for informational needs (39, 50%), mobile applications for medical needs (15, 40%), patient portals for logistical needs (12, 44%), and disease-specific support groups for social needs (19, 56%). Discussion: Families of hospitalized pediatric patients have a variety of health-related needs, many of which could be addressed by technology recommendations from an engagement consult service.
Conclusion: This service is the first of its kind, offering a potentially generalizable and scalable approach to assessing health-related needs, meeting them with technologies, and promoting patient and family engagement in the inpatient setting.
© The Author 2017. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For Permissions, please email: journals.permissions@oup.com

Entities:  

Keywords:  consumer health informatics; health information technology; information needs; patient activation; patient engagement

Mesh:

Year:  2018        PMID: 29016789      PMCID: PMC6080811          DOI: 10.1093/jamia/ocx067

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  43 in total

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4.  Use of a Patient Portal During Hospital Admissions to Surgical Services.

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7.  Using an inpatient portal to engage families in pediatric hospital care.

Authors:  Michelle M Kelly; Peter L T Hoonakker; Shannon M Dean
Journal:  J Am Med Inform Assoc       Date:  2016-06-14       Impact factor: 4.497

8.  Inpatient Experiences with MyChart Bedside.

Authors:  Erin L Winstanley; Michelle Burtchin; Yifan Zhang; Paula Campbell; Jodi Pahl; Stephen Beck; Wayne Bohenek
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Journal:  Health Aff (Millwood)       Date:  2005 Sep-Oct       Impact factor: 6.301

Review 10.  The Corbin and Strauss Chronic Illness Trajectory model: an update.

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2.  Increased Patient Activation Is Associated with Fewer Emergency Room Visits and Hospitalizations for Pain in Adults with Sickle Cell Disease.

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4.  Common Consumer Health-Related Needs in the Pediatric Hospital Setting: Lessons from an Engagement Consultation Service.

Authors:  Daniel J Lee; Robert Cronin; Jamie Robinson; Shilo Anders; Kim Unertl; Katherine Kelly; Heather Hankins; Ryan Skeens; Gretchen P Jackson
Journal:  Appl Clin Inform       Date:  2018-08-08       Impact factor: 2.342

5.  Automating the Classification of Complexity of Medical Decision-Making in Patient-Provider Messaging in a Patient Portal.

Authors:  Lina Sulieman; Jamie R Robinson; Gretchen P Jackson
Journal:  J Surg Res       Date:  2020-06-19       Impact factor: 2.192

6.  Consumer health-related needs of pregnant women and their caregivers.

Authors:  Jamie R Robinson; Shilo H Anders; Laurie L Novak; Christopher L Simpson; Lauren E Holroyd; Kelly A Bennett; Gretchen P Jackson
Journal:  JAMIA Open       Date:  2018-06-18

7.  Informatics opportunities to involve patients in hospital safety: a conceptual model.

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Journal:  J Am Med Inform Assoc       Date:  2020-02-01       Impact factor: 4.497

8.  Mobile Web-based Education: Engagement and Satisfaction with HiChart among Pregnant Women.

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  8 in total

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