Sarah R Martin1, Lindsey L Cohen1,2, Ifigenia Mougianis1, Anya Griffin3, Soumitri Sil2,4, Carlton Dampier2,4. 1. Department of Psychology, Georgia State University. 2. Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta. 3. Department of Anesthesia, Perioperative, and Pain Medicine, Stanford Medicine, Stanford, CA. 4. Department of Pediatrics, Emory University, Atlanta, GA.
Abstract
OBJECTIVES: Sickle cell disease (SCD) pain and hospitalizations increase during adolescence and adolescents with SCD may be at-risk for experiencing health-related stigma, which may result in poor health outcomes. This study examined relations among health-related stigma, pain interference, social support, quality of life (QOL), and hospital outcomes (ie, loneliness, pain reduction, and length of stay [LOS]) in adolescents hospitalized with SCD pain. MATERIALS AND METHODS: Twelve- to 18-year-old adolescents (N=92) hospitalized with SCD pain completed measures of stigma, pain interference, social support, QOL, and state loneliness. Reduction of pain intensity during hospitalization and LOS were collected from medical chart review. RESULTS: Higher stigma was associated with higher pain interference, lower QOL, more loneliness, and less pain reduction in the hospital. Pain interference was positively associated with LOS. DISCUSSION: These preliminary findings highlight the importance of assessing and addressing SCD-related stigma and pain interference in adolescents hospitalized for SCD pain as these factors may influence treatment outcomes.
OBJECTIVES:Sickle cell disease (SCD) pain and hospitalizations increase during adolescence and adolescents with SCD may be at-risk for experiencing health-related stigma, which may result in poor health outcomes. This study examined relations among health-related stigma, pain interference, social support, quality of life (QOL), and hospital outcomes (ie, loneliness, pain reduction, and length of stay [LOS]) in adolescents hospitalized with SCD pain. MATERIALS AND METHODS: Twelve- to 18-year-old adolescents (N=92) hospitalized with SCD pain completed measures of stigma, pain interference, social support, QOL, and state loneliness. Reduction of pain intensity during hospitalization and LOS were collected from medical chart review. RESULTS: Higher stigma was associated with higher pain interference, lower QOL, more loneliness, and less pain reduction in the hospital. Pain interference was positively associated with LOS. DISCUSSION: These preliminary findings highlight the importance of assessing and addressing SCD-related stigma and pain interference in adolescents hospitalized for SCD pain as these factors may influence treatment outcomes.
Authors: Sarah R Martin; Payal Shah; Christopher Denton; Lonnie K Zeltzer; Saranya Veluswamy; Michael C K Khoo; Thomas D Coates Journal: Complement Ther Med Date: 2020-02-15 Impact factor: 2.446
Authors: Megan M Miller; Deanna D Rumble; Adam T Hirsh; Tine Vervoort; Lori E Crosby; Avi Madan-Swain; Jeffrey Lebensburger; Anna M Hood; Zina Trost Journal: Pain Med Date: 2021-10-08 Impact factor: 3.750
Authors: Anna M Hood; Lori E Crosby; Eva Hanson; Lisa M Shook; Jeffrey D Lebensburger; Avi Madan-Swain; Megan M Miller; Zina Trost Journal: Ethn Health Date: 2020-09-08 Impact factor: 2.732