Nai-Ching Chi1, George Demiris2,3, Kenneth C Pike4, Karla Washington5, Debra Parker Oliver5. 1. 1 College of Nursing, University of Iowa, Iowa City, IA, USA. 2. 2 Department of Biobehavioral Nursing and Health Informatics, School of Nursing, University of Washington, Seattle, WA, USA. 3. 3 Department of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, USA. 4. 4 Department of Psychosocial and Community Health, School of Nursing, Universality of Washington, Seattle, WA, USA. 5. 5 Department of Family and Community Medicine, School of Medicine, University of Missouri, Columbia, MO, USA.
Abstract
BACKGROUND: Pain management is a challenging task for family caregivers in home hospice care. However, there are limited studies that examine the challenges regarding pain management in hospice care from family caregivers' perspectives. OBJECTIVES: To identify the challenges related to pain management faced by family caregivers in hospice care and to examine the validity of an existing framework that outlines pain management challenges for hospice family caregivers. DESIGN: We conducted a theory-driven, deductive content analysis of secondary data obtained from hospice family caregivers' interviews from a randomized clinical trial. SETTING/PARTICIPANTS: We included baseline interviews of 15 hospice caregivers of patients from hospice agencies in the States of Washington. The majority of the participants were white and female caregivers. They were spouse/partner or adult child living with the patient. RESULTS: The study identified 5 out of the 6 major themes in the original framework and confirmed that hospice family caregivers face a variety of challenges: caregiver-centric issues, caregiver's medication skills and knowledge, communication and teamwork, organizational skill, and patient-centric issues. A couple of the subthemes in the original framework were not present in our findings. We also expanded the original framework by adding 1 subtheme and revised 2 definitions in the original framework. CONCLUSION: The study provided an investigation on hospice family caregivers' difficulties in pain management. The results can inform health-care providers and researchers of family caregivers' challenges and provide insights for future designs of educational tools targeting pain management strategies, so that family caregivers can perform pain management effectively at home.
BACKGROUND:Pain management is a challenging task for family caregivers in home hospice care. However, there are limited studies that examine the challenges regarding pain management in hospice care from family caregivers' perspectives. OBJECTIVES: To identify the challenges related to pain management faced by family caregivers in hospice care and to examine the validity of an existing framework that outlines pain management challenges for hospice family caregivers. DESIGN: We conducted a theory-driven, deductive content analysis of secondary data obtained from hospice family caregivers' interviews from a randomized clinical trial. SETTING/PARTICIPANTS: We included baseline interviews of 15 hospice caregivers of patients from hospice agencies in the States of Washington. The majority of the participants were white and female caregivers. They were spouse/partner or adult child living with the patient. RESULTS: The study identified 5 out of the 6 major themes in the original framework and confirmed that hospice family caregivers face a variety of challenges: caregiver-centric issues, caregiver's medication skills and knowledge, communication and teamwork, organizational skill, and patient-centric issues. A couple of the subthemes in the original framework were not present in our findings. We also expanded the original framework by adding 1 subtheme and revised 2 definitions in the original framework. CONCLUSION: The study provided an investigation on hospice family caregivers' difficulties in pain management. The results can inform health-care providers and researchers of family caregivers' challenges and provide insights for future designs of educational tools targeting pain management strategies, so that family caregivers can perform pain management effectively at home.
Authors: Nancy Wells; Joseph T Hepworth; Barbara A Murphy; Debra Wujcik; Rolanda Johnson Journal: J Pain Symptom Manage Date: 2003-04 Impact factor: 3.612
Authors: Karla T Washington; Debra Parker Oliver; Jacquelyn J Benson; Abigail J Rolbiecki; Lucas A Jorgensen; Dulce M Cruz-Oliver; George Demiris Journal: J Psychosoc Oncol Date: 2019-11-06
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Authors: Dulce M Cruz-Oliver; Martha Abshire; Chakra Budhathoki; Melissa deCardi Hladek; Angelo Volandes; Lucas Jorgensen; Debra Parker Oliver Journal: Am J Hosp Palliat Care Date: 2021-02-08 Impact factor: 2.090
Authors: Virginia LeBaron; Rachel Bennett; Ridwan Alam; Leslie Blackhall; Kate Gordon; James Hayes; Nutta Homdee; Randy Jones; Yudel Martinez; Emmanuel Ogunjirin; Tanya Thomas; John Lach Journal: JMIR Form Res Date: 2020-08-26
Authors: Katie Greenfield; Simone Holley; Daniel E Schoth; Emily Harrop; Richard F Howard; Julie Bayliss; Lynda Brook; Satbir S Jassal; Margaret Johnson; Ian Wong; Christina Liossi Journal: Palliat Med Date: 2020-03-31 Impact factor: 4.762