Literature DB >> 28831844

Ethics Regulation in Social Computing Research: Examining the Role of Institutional Review Boards.

Jessica Vitak1, Nicholas Proferes2, Katie Shilton1, Zahra Ashktorab1.   

Abstract

The parallel rise of pervasive data collection platforms and computational methods for collecting, analyzing, and drawing inferences from large quantities of user data has advanced social computing research, investigating digital traces to understand mediated behaviors of individuals, groups, and societies. At the same time, methods employed to access these data have raised questions about ethical research practices. This article provides insights into U.S. institutional review boards' (IRBs) attitudes and practices regulating social computing research. Through descriptive and inferential analysis of survey data from staff at 59 IRBs at research universities, we examine how IRBs evaluate the growing variety of studies using pervasive digital data. Findings unpack the difficulties IRB staff face evaluating increasingly technical research proposals while highlighting the belief in their ability to surmount these difficulties. They also indicate a lack of consensus among IRB staff about what should be reviewed and a willingness to work closely with researchers.

Keywords:  IRBs; big data; ethics; institutional review boards; social computing

Mesh:

Year:  2017        PMID: 28831844     DOI: 10.1177/1556264617725200

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  8 in total

1.  Using Participatory Design to Inform the Connected and Open Research Ethics (CORE) Commons.

Authors:  John Harlow; Nadir Weibel; Rasheed Al Kotob; Vincent Chan; Cinnamon Bloss; Rubi Linares-Orozco; Michelle Takemoto; Camille Nebeker
Journal:  Sci Eng Ethics       Date:  2019-02-06       Impact factor: 3.525

2.  Ethical Issues in Social Science Research Employing Big Data.

Authors:  Mohammad Hosseini; Michał Wieczorek; Bert Gordijn
Journal:  Sci Eng Ethics       Date:  2022-06-15       Impact factor: 3.777

3.  Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community.

Authors:  Paul Wicks; Emil Chiauzzi
Journal:  J Med Internet Res       Date:  2019-02-21       Impact factor: 5.428

Review 4.  Building the case for actionable ethics in digital health research supported by artificial intelligence.

Authors:  Camille Nebeker; John Torous; Rebecca J Bartlett Ellis
Journal:  BMC Med       Date:  2019-07-17       Impact factor: 8.775

5.  How Internet Contracts Impact Research: Content Analysis of Terms of Service on Consumer Product Websites.

Authors:  Caitlin Weiger; Katherine C Smith; Joanna E Cohen; Mark Dredze; Meghan Bridgid Moran
Journal:  JMIR Public Health Surveill       Date:  2020-12-02

6.  The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study.

Authors:  Agata Ferretti; Marcello Ienca; Minerva Rivas Velarde; Samia Hurst; Effy Vayena
Journal:  J Empir Res Hum Res Ethics       Date:  2021-11-15       Impact factor: 1.742

7.  What is your definition of Big Data? Researchers' understanding of the phenomenon of the decade.

Authors:  Maddalena Favaretto; Eva De Clercq; Christophe Olivier Schneble; Bernice Simone Elger
Journal:  PLoS One       Date:  2020-02-25       Impact factor: 3.240

8.  First do no harm: An exploration of researchers' ethics of conduct in Big Data behavioral studies.

Authors:  Maddalena Favaretto; Eva De Clercq; Jens Gaab; Bernice Simone Elger
Journal:  PLoS One       Date:  2020-11-05       Impact factor: 3.240

  8 in total

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