Literature DB >> 28817324

Legal, Practical, and Ethical Considerations for Making Online Patient Portals Accessible for All.

Courtney R Lyles1, Jim Fruchterman1, Mara Youdelman1, Dean Schillinger1.   

Abstract

Largely driven by the financial incentives of the HITECH Act's Meaningful Use program as part of federal US health care reform, access to portal Web sites has rapidly expanded, allowing many patients to view their medical record information online. Despite this expansion, there is little attention paid to the accessibility of portals for more vulnerable patient populations-especially patients with limited health literacy or limited English proficiency, and individuals with disabilities. We argue that there are potential legal mandates for improving portal accessibility (e.g., the Civil Rights and the Rehabilitation Acts), as well as ethical considerations to prevent the exacerbation of existing health and health care disparities. To address these legal, practical, and ethical considerations, we present standards and broad recommendations that could greatly improve the reach and impact of portal Web sites.

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Year:  2017        PMID: 28817324      PMCID: PMC5607665          DOI: 10.2105/AJPH.2017.303933

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  11 in total

1.  Expanding access to high-quality plain-language patient education information through context-specific hyperlinks.

Authors:  Jessica S Ancker; Elizabeth Mauer; Diane Hauser; Neil Calman
Journal:  AMIA Annu Symp Proc       Date:  2017-02-10

2.  A case study examination of the impact of lawsuits on website accessibility.

Authors:  Bambang Parmanto; Stephanie R Hackett
Journal:  Disabil Rehabil Assist Technol       Date:  2010-08-25

3.  Care partners and online patient portals.

Authors:  Urmimala Sarkar; David W Bates
Journal:  JAMA       Date:  2014 Jan 22-29       Impact factor: 56.272

4.  The impact of numeracy ability and technology skills on older adults' performance of health management tasks using a patient portal.

Authors:  Jessica Taha; Joseph Sharit; Sara J Czaja
Journal:  J Appl Gerontol       Date:  2012-06-04

5.  Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access.

Authors:  Urmimala Sarkar; Andrew J Karter; Jennifer Y Liu; Nancy E Adler; Robert Nguyen; Andrea López; Dean Schillinger
Journal:  J Am Med Inform Assoc       Date:  2011-01-24       Impact factor: 4.497

6.  Patient portals and personal health information online: perception, access, and use by US adults.

Authors:  Sue Peacock; Ashok Reddy; Suzanne G Leveille; Jan Walker; Thomas H Payne; Natalia V Oster; Joann G Elmore
Journal:  J Am Med Inform Assoc       Date:  2017-04-01       Impact factor: 4.497

7.  Online patient websites for electronic health record access among vulnerable populations: portals to nowhere?

Authors:  Lina Tieu; Dean Schillinger; Urmimala Sarkar; Mekhala Hoskote; Kenneth J Hahn; Neda Ratanawongsa; James D Ralston; Courtney R Lyles
Journal:  J Am Med Inform Assoc       Date:  2017-04-01       Impact factor: 4.497

Review 8.  The effect of patient portals on quality outcomes and its implications to meaningful use: a systematic review.

Authors:  Clemens Scott Kruse; Katy Bolton; Greg Freriks
Journal:  J Med Internet Res       Date:  2015-02-10       Impact factor: 5.428

9.  Understanding and addressing racial disparities in health care.

Authors:  D R Williams; T D Rucker
Journal:  Health Care Financ Rev       Date:  2000

Review 10.  The legal framework for language access in healthcare settings: Title VI and beyond.

Authors:  Alice Hm Chen; Mara K Youdelman; Jamie Brooks
Journal:  J Gen Intern Med       Date:  2007-11       Impact factor: 5.128

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  16 in total

1.  Racial and ethnic disparities in use of a personal health record by veterans living with HIV.

Authors:  Sarah J Javier; Lara K Troszak; Stephanie L Shimada; D Keith McInnes; Michael E Ohl; Tigran Avoundjian; Taryn A Erhardt; Amanda M Midboe
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

2.  Home visits for uncontrolled asthma among low-income adults with patient portal access.

Authors:  Andrea J Apter; A Russell Localio; Knashawn H Morales; Xiaoyan Han; Luzmercy Perez; Alyssa N Mullen; Marisa Rogers; Heather Klusaritz; John T Howell; Maryori N Canales; Tyra Bryant-Stephens
Journal:  J Allergy Clin Immunol       Date:  2019-06-07       Impact factor: 10.793

3.  A Randomized Trial to Train Vulnerable Primary Care Patients to Use a Patient Portal.

Authors:  Courtney R Lyles; Lina Tieu; Urmimala Sarkar; Stephen Kiyoi; Shobha Sadasivaiah; Mekhala Hoskote; Neda Ratanawongsa; Dean Schillinger
Journal:  J Am Board Fam Med       Date:  2019 Mar-Apr       Impact factor: 2.657

4.  Is research on patient portals attuned to health equity? A scoping review.

Authors:  Marcy G Antonio; Olga Petrovskaya; Francis Lau
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

5.  Telehealth experiences of providers and patients who use augmentative and alternative communication.

Authors:  Erin Beneteau; Ann Paradiso; Wanda Pratt
Journal:  J Am Med Inform Assoc       Date:  2022-01-29       Impact factor: 4.497

6.  Examining the Relationship between Health Literacy, Health Numeracy, and Patient Portal Use.

Authors:  Gennaro Di Tosto; Daniel M Walker; Cynthia J Sieck; Lorraine Wallace; Sarah R MacEwan; Megan E Gregory; Seth Scarborough; Timothy R Huerta; Ann Scheck McAlearney
Journal:  Appl Clin Inform       Date:  2022-07-06       Impact factor: 2.762

7.  Perspectives from leadership and frontline staff on telehealth transitions in the Los Angeles safety net during the COVID-19 pandemic and beyond.

Authors:  Alejandra Casillas; Cristina Valdovinos; Elizabeth Wang; Anshu Abhat; Carmen Mendez; Griselda Gutierrez; Jennifer Portz; Arleen Brown; Courtney R Lyles
Journal:  Front Digit Health       Date:  2022-08-09

8.  Su salud a la mano (your health at hand): patient perceptions about a bilingual patient portal in the Los Angeles safety net.

Authors:  Alejandra Casillas; Giselle Perez-Aguilar; Anshu Abhat; Griselda Gutierrez; Tanya T Olmos-Ochoa; Carmen Mendez; Anish Mahajan; Arleen Brown; Gerardo Moreno
Journal:  J Am Med Inform Assoc       Date:  2019-12-01       Impact factor: 4.497

9.  Patient Portal Use Among Older Adults: What Is Really Happening Nationwide?

Authors:  Eun-Shim Nahm; Shijun Zhu; Michele Bellantoni; Linda Keldsen; Kathleen Charters; Vince Russomanno; Matt Rietschel; HyoJin Son; Leslie Smith
Journal:  J Appl Gerontol       Date:  2018-05-21

10.  Providing Access: Differences in Pediatric Portal Activation Begin at Patient Check-in.

Authors:  Ruth A Bush; Vijaya M Vemulakonda; Andrew C Richardson; Sara J Deakyne Davies; George J Chiang
Journal:  Appl Clin Inform       Date:  2019-09-11       Impact factor: 2.342

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