Literature DB >> 27402138

Online patient websites for electronic health record access among vulnerable populations: portals to nowhere?

Lina Tieu1, Dean Schillinger1, Urmimala Sarkar1, Mekhala Hoskote2, Kenneth J Hahn2, Neda Ratanawongsa1, James D Ralston3, Courtney R Lyles1.   

Abstract

OBJECTIVE: With the rapid rise in the adoption of patient portals, many patients are gaining access to their personal health information online for the first time. The objective of this study was to examine specific usability barriers to patient portal engagement among a diverse group of patients and caregivers.
MATERIALS AND METHODS: We conducted interviews using performance testing and think-aloud methods with 23 patients and 2 caregivers as they first attempted to use features of a newly launched patient portal.
RESULTS: In navigating the portal, participants experienced basic computer barriers (eg, difficulty using a mouse), routine computer barriers (eg, mistyping, navigation issues), reading/writing barriers, and medical content barriers. Compared to participants with adequate health literacy, participants with limited health literacy required 2 additional minutes to complete each task and were more likely to experience each type of navigational barrier. They also experienced more inaccuracies in interpreting a test result and finding a treatment plan within an after-visit summary. DISCUSSION: When using a patient portal for the first time, participants with limited health literacy completed fewer tasks unassisted, had a higher prevalence of encountering barriers, took longer to complete tasks, and had more problems accurately interpreting medical information.
CONCLUSION: Our findings suggest a strong need for tailored and accessible training and support to assist all vulnerable patients and/or caregivers with portal registration and use. Measuring the health literacy of a patient population might serve as a strong proxy for identifying patients who need the most support in using health technologies.
© The Author 2016. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For Permissions, please email: journals.permissions@oup.com

Entities:  

Keywords:  chronic disease; electronic health records; health literacy; personal health records; safety net providers

Mesh:

Year:  2017        PMID: 27402138      PMCID: PMC6080722          DOI: 10.1093/jamia/ocw098

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  34 in total

1.  Lessons learned from usability testing of the VA's personal health record.

Authors:  David A Haggstrom; Jason J Saleem; Alissa L Russ; Josette Jones; Scott A Russell; Neale R Chumbler
Journal:  J Am Med Inform Assoc       Date:  2011-10-08       Impact factor: 4.497

2.  National-scale clinical information exchange in the United Kingdom: lessons for the United States.

Authors:  Thomas H Payne; Don E Detmer; Jeremy C Wyatt; Iain E Buchan
Journal:  J Am Med Inform Assoc       Date:  2010-12-06       Impact factor: 4.497

3.  The usability of electronic personal health record systems for an underserved adult population.

Authors:  Sara J Czaja; Christina Zarcadoolas; Wendy L Vaughon; Chin Chin Lee; Maxine L Rockoff; Joslyn Levy
Journal:  Hum Factors       Date:  2014-09-05       Impact factor: 2.888

4.  The urban underserved: attitudes towards gaining full access to electronic medical records.

Authors:  Shireesha Dhanireddy; Jan Walker; Lisa Reisch; Natalia Oster; Thomas Delbanco; Joann G Elmore
Journal:  Health Expect       Date:  2012-06-28       Impact factor: 3.377

5.  Usability evaluation of a personal health record.

Authors:  Noa Segall; Jeffrey G Saville; Pete L'Engle; Boyd Carlson; Melanie C Wright; Kevin Schulman; James E Tcheng
Journal:  AMIA Annu Symp Proc       Date:  2011-10-22

6.  Impact of patient use of an online patient portal on diabetes outcomes.

Authors:  Marco Lau; Harlan Campbell; Tricia Tang; Darby J S Thompson; Tom Elliott
Journal:  Can J Diabetes       Date:  2014-02       Impact factor: 4.190

7.  The literacy divide: health literacy and the use of an internet-based patient portal in an integrated health system-results from the diabetes study of northern California (DISTANCE).

Authors:  Urmimala Sarkar; Andrew J Karter; Jennifer Y Liu; Nancy E Adler; Robert Nguyen; Andrea Lopez; Dean Schillinger
Journal:  J Health Commun       Date:  2010

8.  Association of health literacy with diabetes outcomes.

Authors:  Dean Schillinger; Kevin Grumbach; John Piette; Frances Wang; Dennis Osmond; Carolyn Daher; Jorge Palacios; Gabriela Diaz Sullivan; Andrew B Bindman
Journal:  JAMA       Date:  2002 Jul 24-31       Impact factor: 56.272

9.  Barriers and Facilitators to Online Portal Use Among Patients and Caregivers in a Safety Net Health Care System: A Qualitative Study.

Authors:  Lina Tieu; Urmimala Sarkar; Dean Schillinger; James D Ralston; Neda Ratanawongsa; Rena Pasick; Courtney R Lyles
Journal:  J Med Internet Res       Date:  2015-12-03       Impact factor: 5.428

10.  Interest in the use of computerized patient portals: role of the provider-patient relationship.

Authors:  Susan L Zickmund; Rachel Hess; Cindy L Bryce; Kathleen McTigue; Ellen Olshansky; Katharine Fitzgerald; Gary S Fischer
Journal:  J Gen Intern Med       Date:  2008-01       Impact factor: 5.128

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  54 in total

1.  Patient Engagement In Health Care Safety: An Overview Of Mixed-Quality Evidence.

Authors:  Anjana E Sharma; Natalie A Rivadeneira; Jill Barr-Walker; Rachel J Stern; Amanda K Johnson; Urmimala Sarkar
Journal:  Health Aff (Millwood)       Date:  2018-11       Impact factor: 6.301

2.  Barriers, Facilitators, and Solutions to Optimal Patient Portal and Personal Health Record Use: A Systematic Review of the Literature.

Authors:  Jane Y Zhao; Buer Song; Edwin Anand; Diane Schwartz; Mandip Panesar; Gretchen P Jackson; Peter L Elkin
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

3.  Interventions to increase patient portal use in vulnerable populations: a systematic review.

Authors:  Lisa V Grossman; Ruth M Masterson Creber; Natalie C Benda; Drew Wright; David K Vawdrey; Jessica S Ancker
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

4.  Patient characteristics associated with objective measures of digital health tool use in the United States: A literature review.

Authors:  Sarah S Nouri; Julia Adler-Milstein; Crishyashi Thao; Prasad Acharya; Jill Barr-Walker; Urmimala Sarkar; Courtney Lyles
Journal:  J Am Med Inform Assoc       Date:  2020-05-01       Impact factor: 4.497

5.  Role of provider encouragement on patient engagement via online portals.

Authors:  Sandhya V Shimoga; Yang Z Lu
Journal:  J Am Med Inform Assoc       Date:  2019-10-01       Impact factor: 4.497

6.  Home visits for uncontrolled asthma among low-income adults with patient portal access.

Authors:  Andrea J Apter; A Russell Localio; Knashawn H Morales; Xiaoyan Han; Luzmercy Perez; Alyssa N Mullen; Marisa Rogers; Heather Klusaritz; John T Howell; Maryori N Canales; Tyra Bryant-Stephens
Journal:  J Allergy Clin Immunol       Date:  2019-06-07       Impact factor: 10.793

7.  A Randomized Trial to Train Vulnerable Primary Care Patients to Use a Patient Portal.

Authors:  Courtney R Lyles; Lina Tieu; Urmimala Sarkar; Stephen Kiyoi; Shobha Sadasivaiah; Mekhala Hoskote; Neda Ratanawongsa; Dean Schillinger
Journal:  J Am Board Fam Med       Date:  2019 Mar-Apr       Impact factor: 2.657

8.  Legal, Practical, and Ethical Considerations for Making Online Patient Portals Accessible for All.

Authors:  Courtney R Lyles; Jim Fruchterman; Mara Youdelman; Dean Schillinger
Journal:  Am J Public Health       Date:  2017-08-17       Impact factor: 9.308

9.  Su salud a la mano (your health at hand): patient perceptions about a bilingual patient portal in the Los Angeles safety net.

Authors:  Alejandra Casillas; Giselle Perez-Aguilar; Anshu Abhat; Griselda Gutierrez; Tanya T Olmos-Ochoa; Carmen Mendez; Anish Mahajan; Arleen Brown; Gerardo Moreno
Journal:  J Am Med Inform Assoc       Date:  2019-12-01       Impact factor: 4.497

10.  Patients' adoption of and feature access within electronic patient portals.

Authors:  Jennifer Elston Lafata; Carrie A Miller; Deirdre A Shires; Karen Dyer; Scott M Ratliff; Michelle Schreiber
Journal:  Am J Manag Care       Date:  2018-11-01       Impact factor: 2.229

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