OBJECTIVE: A child's pediatric intensive care unit (PICU) admission may have wide-ranging family implications. We assessed nonmedical out-of-pocket expenses (NMOOPEs) and disruptions in work and normal life for parents with a child admitted to the PICU for at least 2 days with acute, new onset, or exacerbation of a critical condition. DESIGN: We conducted a prospective, single-center study; administered a daily verbal response survey on NMOOPEs; stratified families by annual income (<$50 999, $51-99 000, >$100 000); and calculated daily expenditures (DEs), estimated daily budgets (DBs), and percentage of NMOOPEs (%DE/DB). We used a modified caregiver version of the Work Productivity and Activity Impairment Scale to assess the impact of PICU admission on work-related and normal life activities. SETTING: The PICU in an academic, tertiary medical center in the United States. PATIENTS: Patients admitted to PICU. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: The study included 38 families, with median length of PICU stay of 3 days (range 3-13). The mean total NMOOPE was $127 ± $107 (range $5-$511). Financial impact of DB in the 3 annual income groups ranged from 0% to 136% (median 36%), 5% to 18% (median 10%), and 4% to 39% (median 16%), respectively. Total work absenteeism for cohort was 78 days. High levels of distraction were reported in working families, and normal daily activities were interrupted or suspended. CONCLUSIONS: PICU hospitalization results in a range of direct NMOOPEs of varying burden on families and additional work productivity impact. Further research to understand the array of financial implications on families and additional mitigation strategies are needed.
OBJECTIVE: A child's pediatric intensive care unit (PICU) admission may have wide-ranging family implications. We assessed nonmedical out-of-pocket expenses (NMOOPEs) and disruptions in work and normal life for parents with a child admitted to the PICU for at least 2 days with acute, new onset, or exacerbation of a critical condition. DESIGN: We conducted a prospective, single-center study; administered a daily verbal response survey on NMOOPEs; stratified families by annual income (<$50 999, $51-99 000, >$100 000); and calculated daily expenditures (DEs), estimated daily budgets (DBs), and percentage of NMOOPEs (%DE/DB). We used a modified caregiver version of the Work Productivity and Activity Impairment Scale to assess the impact of PICU admission on work-related and normal life activities. SETTING: The PICU in an academic, tertiary medical center in the United States. PATIENTS: Patients admitted to PICU. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: The study included 38 families, with median length of PICU stay of 3 days (range 3-13). The mean total NMOOPE was $127 ± $107 (range $5-$511). Financial impact of DB in the 3 annual income groups ranged from 0% to 136% (median 36%), 5% to 18% (median 10%), and 4% to 39% (median 16%), respectively. Total work absenteeism for cohort was 78 days. High levels of distraction were reported in working families, and normal daily activities were interrupted or suspended. CONCLUSIONS: PICU hospitalization results in a range of direct NMOOPEs of varying burden on families and additional work productivity impact. Further research to understand the array of financial implications on families and additional mitigation strategies are needed.
Authors: Elizabeth M Sinclair; Matthew T Santore; Maneesha Agarwal; Jamie Kitzman; Cary G Sauer; Erica L Riedesel Journal: J Pediatr Gastroenterol Nutr Date: 2022-02-01 Impact factor: 2.839
Authors: Kevin Hummel; Angela P Presson; Morgan M Millar; Gitte Larsen; Howard Kadish; Lenora M Olson Journal: Pediatr Crit Care Med Date: 2020-10 Impact factor: 3.971
Authors: Erin F Carlton; John P Donnelly; Hallie C Prescott; Lisa A Asaro; Ryan P Barbaro; R Scott Watson; Martha A Q Curley Journal: JAMA Netw Open Date: 2021-12-01