Literature DB >> 28753054

Parents' Perception of Receiving Family-Centered Care for Their Children with Physical Disabilities: A Meta-Analysis.

Nihad A Almasri1, Mihee An2, Robert J Palisano2.   

Abstract

AIMS: Understanding parent perceptions of family-centered care (FCC) is important to improve processes and outcomes of children's services.
OBJECTIVE: A systematic review and meta-analysis of research on the Measures of Processes of Care (MPOC-20) were performed to determine the extent parents of children with physical disabilities perceive they received FCC.
METHODS: A comprehensive literature search was conducted using four databases. A total of 129 studies were retrieved; 15 met the criteria for the synthesis. Meta-analysis involving 2,582 mothers and fathers of children with physical disabilities mainly cerebral palsy was conducted for the five scales of the MPOC-20.
RESULTS: Aggregated mean ratings varied from 5.0 to 5.5 for Providing Specific Information about the Child; Coordinated and Comprehensive Care; and Respectful and Supportive Care (relational behaviors) and Enabling and Partnership (participatory behaviors) indicating that, on average, parents rated FCC as having been provided to "a fairly great extent." The aggregated mean rating was 4.1 for Providing General Information, indicating FCC was provided "to a moderate extent."
CONCLUSIONS: Service providers are encouraged to focus on child and family needs for general information. Research is needed to better understand parent perspectives of service provider participatory behaviors which are important for engaging families in intervention processes.

Entities:  

Keywords:  Children with physical disabilities; family-centered care; measure of processes of care (MPOC-20); meta-analysis; systematic review

Mesh:

Year:  2017        PMID: 28753054     DOI: 10.1080/01942638.2017.1337664

Source DB:  PubMed          Journal:  Phys Occup Ther Pediatr        ISSN: 0194-2638            Impact factor:   2.360


  11 in total

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2.  Family-centred care in early intervention: Examining caregiver perceptions of family-centred care and early intervention service use intensity.

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3.  Electronic health record and patterns of care for children with cerebral palsy.

Authors:  Brad G Kurowski; Kelly Greve; Amy F Bailes; Janet Zahner; Jilda Vargus-Adams; Mary A Mcmahon; Bruce J Aronow; Alexis Mitelpunkt
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4.  Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection.

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Journal:  Int J Environ Res Public Health       Date:  2018-05-29       Impact factor: 3.390

5.  Rapid-Cycle Evaluation in an Early Intervention Program for Children With Developmental Disabilities in South India: Optimizing Service Providers' Quality of Work-Life, Family Program Engagement, and School Enrollment.

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Journal:  Front Public Health       Date:  2020-11-30

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7.  Parents' Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study.

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8.  Effectiveness of instrumented gait analysis in interdisciplinary interventions on parents' perception of family-centered service and on gross motor function in children with cerebral palsy: a randomized controlled trial.

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9.  Family-centeredness of services for young children with Down syndrome: an observational study from Turkey

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Journal:  Turk J Med Sci       Date:  2021-02-26       Impact factor: 0.973

Review 10.  Physical rehabilitation interventions in children with acquired brain injury: a scoping review.

Authors:  Christiaan Gmelig Meyling; Olaf Verschuren; Ingrid R Rentinck; Raoul H H Engelbert; Jan Willem Gorter
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