Stephanie Solomon Cargill1, Lauren Lyn Baker1, Susan Dorr Goold2. 1. Albert Gnaegi Center for Healthcare Ethics, Saint Louis University, 3545 Lafayette Ave, Salus Center Suite 505, Saint Louis, MO 63104, USA. 2. Center for Bioethics & Social Sciences in Medicine, University of Michigan, 2800 Plymouth road, Building 16, Ann Arbor, MI 48109, USA.
Abstract
AIM: Develop an accessible exercise to engage underserved populations about research funding priorities; analyze the criteria they use to prioritize research; contrast these criteria to those currently used by Patient Centered Outcomes Research Institute (PCORI). MATERIALS & METHODS: Academic and community partners collaborated to develop an Ipad exercise to facilitate group deliberation about PCOR funding priorities. 16 groups (n = 183) of underserved individuals in both urban and rural areas participated. Recordings were qualitatively analyzed for prioritization criteria. RESULTS: Analysis yielded ten codes, many of which were similar to PCORI criteria, but all of which challenged or illuminated these criteria. CONCLUSION: Directly involving underserved populations in determining funding criteria is both feasible and important, and can better fulfill PCORI's goal of incorporating patient priorities.
AIM: Develop an accessible exercise to engage underserved populations about research funding priorities; analyze the criteria they use to prioritize research; contrast these criteria to those currently used by Patient Centered Outcomes Research Institute (PCORI). MATERIALS & METHODS: Academic and community partners collaborated to develop an Ipad exercise to facilitate group deliberation about PCOR funding priorities. 16 groups (n = 183) of underserved individuals in both urban and rural areas participated. Recordings were qualitatively analyzed for prioritization criteria. RESULTS: Analysis yielded ten codes, many of which were similar to PCORI criteria, but all of which challenged or illuminated these criteria. CONCLUSION: Directly involving underserved populations in determining funding criteria is both feasible and important, and can better fulfill PCORI's goal of incorporating patient priorities.
Entities:
Keywords:
decision-making; minority groups; patient-centered outcomes research; public deliberation; research priorities; resource allocation; underserved populations