Literature DB >> 28681328

Diagnosis, narrative identity, and asymptomatic disease.

Mary Jean Walker1, Wendy A Rogers2,3.   

Abstract

An increasing number of patients receive diagnoses of disease without having any symptoms. These include diseases detected through screening programs, as incidental findings from unrelated investigations, or via routine checks of various biological variables like blood pressure or cholesterol. In this article, we draw on narrative identity theory to examine how the process of making sense of being diagnosed with asymptomatic disease can trigger certain overlooked forms of harm for patients. We show that the experience of asymptomatic disease can involve 'mismatches' between one's beliefs about one's health status on the one hand, and bodily sensations or past experience on the other. Patients' attempts to integrate these diagnoses into their self-narratives often involve either forming inaccurate beliefs about bodily sensations and/or past experience, or coming to believe that feelings and experience do not necessarily track or predict health status, leading to an ongoing sense of vulnerability to ill health. These resulting alterations in self-understanding can sometimes be considered harmful, in view of their implications for ascriptions of responsibility and ongoing anxiety.

Entities:  

Keywords:  Diagnosis; Disease; Illness; Labelling; Narrative; Overdiagnosis; Personal identity

Mesh:

Year:  2017        PMID: 28681328     DOI: 10.1007/s11017-017-9412-1

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN: 1386-7415


  31 in total

1.  Risk, significance and biomedicalisation of a new population: older women's experience of osteoporosis screening.

Authors:  Charlotte Ingrid Salter; Amanda Howe; Lisa McDaid; Jeanette Blacklock; Elizabeth Lenaghan; Lee Shepstone
Journal:  Soc Sci Med       Date:  2011-07-21       Impact factor: 4.634

2.  Creating the 'dis-ease' of high cholesterol: a sociology of diagnosis reception analysis.

Authors:  Maja Jovanovic
Journal:  Soc Sci Med       Date:  2013-11-16       Impact factor: 4.634

3.  Significant increases of pituitary tumors and resections from 1993 to 2011.

Authors:  Jennifer A Villwock; Mark Villwock; Eric Deshaies; Parul Goyal
Journal:  Int Forum Allergy Rhinol       Date:  2014-08-22       Impact factor: 3.858

4.  Changing disease definitions: implications for disease prevalence. Analysis of the Third National Health and Nutrition Examination Survey, 1988-1994.

Authors:  L M Schwartz; S Woloshin
Journal:  Eff Clin Pract       Date:  1999 Mar-Apr

5.  A crisis of visibility: The psychological consequences of false-positive screening mammograms, an interview study.

Authors:  Mary Bond; Ruth Garside; Christopher Hyde
Journal:  Br J Health Psychol       Date:  2015-05-06

6.  Making the invisible body visible. Bone scans, osteoporosis and women's bodily experiences.

Authors:  Susanne Dalsgaard Reventlow; Lotte Hvas; Kirsti Malterud
Journal:  Soc Sci Med       Date:  2005-12-13       Impact factor: 4.634

7.  Getting clearer on overdiagnosis.

Authors:  Wendy A Rogers; Yishai Mintzker
Journal:  J Eval Clin Pract       Date:  2016-05-06       Impact factor: 2.431

8.  Long-term psychosocial consequences of false-positive screening mammography.

Authors:  John Brodersen; Volkert Dirk Siersma
Journal:  Ann Fam Med       Date:  2013 Mar-Apr       Impact factor: 5.166

Review 9.  The converged experience of risk and disease.

Authors:  Robert A Aronowitz
Journal:  Milbank Q       Date:  2009-06       Impact factor: 4.911

10.  Expanding disease definitions in guidelines and expert panel ties to industry: a cross-sectional study of common conditions in the United States.

Authors:  Raymond N Moynihan; Georga P E Cooke; Jenny A Doust; Lisa Bero; Suzanne Hill; Paul P Glasziou
Journal:  PLoS Med       Date:  2013-08-13       Impact factor: 11.069

View more
  6 in total

1.  Defining disease in the context of overdiagnosis.

Authors:  Mary Jean Walker; Wendy Rogers
Journal:  Med Health Care Philos       Date:  2017-06

2.  Understanding disease and illness.

Authors:  Jeremy R Simon; Havi Carel; Alexander Bird
Journal:  Theor Med Bioeth       Date:  2017-08

3.  Understanding kidney disease in rural central Uganda - Findings from a qualitative study.

Authors:  Janet Seeley; Elizabeth Kabunga; Joseph Ssembatya; Laurie A Tomlinson; June Fabian; Liam Smeeth; Moffat Nyirenda; Robert Newton; Robert Kalyesubula; Dominic Bukenya
Journal:  Glob Public Health       Date:  2020-04-30

Review 4.  Investigating the feasibility and ethical implications of phenotypic screening using stem cell-derived tissue models to detect and manage disease.

Authors:  Alexander R Harris; Mary Jean Walker; Frederic Gilbert; Patrick McGivern
Journal:  Stem Cell Reports       Date:  2022-04-28       Impact factor: 7.294

5.  How medical technologies shape the experience of illness.

Authors:  Bjørn Hofmann; Fredrik Svenaeus
Journal:  Life Sci Soc Policy       Date:  2018-02-03

6.  Consequences of health condition labelling: protocol for a systematic scoping review.

Authors:  Rebecca Sims; Luise Kazda; Zoe A Michaleff; Paul Glasziou; Rae Thomas
Journal:  BMJ Open       Date:  2020-10-26       Impact factor: 2.692

  6 in total

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