Debra Jackson1,2,3, Lisa Durrant1,2, Emily Bishop4, Helen Walthall1, Ria Betteridge2, Sarah Gardner4, Wendy Coulton1, Marie Hutchinson5, Stephen Neville6, Patricia M Davidson7, Kim Usher1,8. 1. Oxford Institute for Nursing, Midwifery & Allied Health Research (OxINMAHR). The Colonnade, Oxford Brookes University, Oxford, UK. 2. Oxford University Hospitals NHS Foundation Trust, Oxford, UK. 3. Faculty of Health, University of Technology, Sydney, Australia. 4. Oxford Health NHS Foundation Trust, Oxford, UK. 5. School of Nursing, Southern Cross University, Lismore, New South Wales, Australia. 6. School of Nursing, Auckland University of Technology, Auckland, New Zealand. 7. School of Nursing, Johns Hopkins University, Baltimore, USA. 8. School of Health, University of New Zealand, Australia.
Abstract
AIMS: The aim of this study was to provide deep insights into the pain associated with pressure injuries in home-dwelling individuals using narrative accounts. BACKGROUND: Pressure injuries or pressure ulcers are burdensome and costly. Prevalence data, surveys and systematic reviews demonstrate that pain associated with pressure injury is widespread, but voices of home-dwelling patients have remained largely unheard. DESIGN: Concurrent mixed methods case study of a UK community of approximately 50,000 adults. METHODS: Qualitative interviews, conducted in 2016, of 12 home-dwelling adult participants with a current pressure injury (n = 10), or a recently healed pressure injury (n = 2). FINDINGS: Pain had an adverse impact on activities of daily living, mobility and sleep. Participants described days that were clouded in pain; a pain they felt was poorly understood and often out of control. Thematic content analysis revealed two major themes; these are: Poorly controlled pain: "I just want the pain to go away"; and, Uncertainty for the future: "it almost seems insurmountable." CONCLUSION: Findings of our study support the need to develop an appropriate assessment tool for pressure injury patients in the community to enable healthcare professionals and patients to recognize and manage pressure injury-related pain effectively.
AIMS: The aim of this study was to provide deep insights into the pain associated with pressure injuries in home-dwelling individuals using narrative accounts. BACKGROUND:Pressure injuries or pressure ulcers are burdensome and costly. Prevalence data, surveys and systematic reviews demonstrate that pain associated with pressure injury is widespread, but voices of home-dwelling patients have remained largely unheard. DESIGN: Concurrent mixed methods case study of a UK community of approximately 50,000 adults. METHODS: Qualitative interviews, conducted in 2016, of 12 home-dwelling adult participants with a current pressure injury (n = 10), or a recently healed pressure injury (n = 2). FINDINGS:Pain had an adverse impact on activities of daily living, mobility and sleep. Participants described days that were clouded in pain; a pain they felt was poorly understood and often out of control. Thematic content analysis revealed two major themes; these are: Poorly controlled pain: "I just want the pain to go away"; and, Uncertainty for the future: "it almost seems insurmountable." CONCLUSION: Findings of our study support the need to develop an appropriate assessment tool for pressure injurypatients in the community to enable healthcare professionals and patients to recognize and manage pressure injury-related pain effectively.
Authors: Victoria Team; Ayoub Bouguettaya; Catelyn Richards; Louise Turnour; Angela Jones; Helena Teede; Carolina D Weller Journal: Int Wound J Date: 2019-12-18 Impact factor: 3.315