Literature DB >> 28529932

Alzheimer's Prevention Education: If We Build It, Will They Come? www.AlzU.org.

R S Isaacson1, N Haynes1, A Seifan2, D Larsen3, S Christiansen1, J C Berger1, J E Safdieh1, A M Lunde4, A Luo1, M Kramps1, M McInnis5, C N Ochner6.   

Abstract

BACKGROUND: Internet-based educational interventions may be useful for impacting knowledge and behavioral change. However, in AD prevention, little data exists about which educational tools work best in terms of learning and interest in participating in clinical trials.
OBJECTIVES: Primary: Assess effectiveness of interactive webinars vs. written blog-posts on AD prevention learning. Secondary: Evaluate the effect of AD prevention education on interest in participating in clinical trials; Assess usability of, and user perceptions about, an online AD education research platform; Classify target populations (demographics, learning needs, interests).
DESIGN: Observational.
SETTING: Online. PARTICIPANTS: Men/Women, aged 25+, recruited via facebook.com. INTERVENTION: Alzheimer's Universe (www.AlzU.org) education research platform. MEASUREMENTS: Pre/post-test performance, self-reported Likert-scale ratings, completion rates.
RESULTS: Over two-weeks, 4268 visits were generated. 503 signed-up for a user account (11.8% join rate), 196 participated in the lessons (39.0%) and 100 completed all beta-testing steps (19.9%). Users randomized to webinar instruction about AD prevention and the stages of AD demonstrated significant increases (p=0.01) in pre vs. post-testing scores compared to blog-post intervention. Upon joining, 42% were interested in participating in a clinical trial in AD prevention. After completing all beta-test activities, interest increased to 86%. Users were primarily women and the largest category was children of AD patients. 66.3% joined to learn more about AD prevention, 65.3% to learn more about AD treatment.
CONCLUSIONS: Webinar-based education led to significant improvements in learning about AD prevention and the stages of AD. AlzU.org participation more than doubled interest in AD prevention clinical trial participation. Subjects were quickly and cost-effectively recruited, and highly satisfied with the AD education research platform. Based on these data, we will further refine AlzU.org prior to public launch and aim to study the effectiveness of 25 interactive webinar-based vs. blog-post style lessons on learning and patient outcomes, in a randomized, within-subjects design trial.

Entities:  

Keywords:  Alzheimer’s education; Alzheimer’s patient education; Alzheimer’s prevention education; neurology education research

Year:  2014        PMID: 28529932      PMCID: PMC5434756     

Source DB:  PubMed          Journal:  J Prev Alzheimers Dis        ISSN: 2274-5807


  21 in total

1.  Knowledge about Alzheimer's disease among Norwegian psychologists: the Alzheimer's disease knowledge scale.

Authors:  Inger Hilde Nordhus; Børge Sivertsen; Ståle Pallesen
Journal:  Aging Ment Health       Date:  2011-11-30       Impact factor: 3.658

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Review 3.  Time and learning efficiency in Internet-based learning: a systematic review and meta-analysis.

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4.  Know thy avatar: the unintended effect of virtual-self representation on behavior.

Authors:  Gunwoo Yoon; Patrick T Vargas
Journal:  Psychol Sci       Date:  2014-02-05

5.  Effectiveness of a modified Continuum curriculum for medical students: a randomized trial.

Authors:  Richard S Isaacson; Joseph E Safdieh; Christopher N Ochner
Journal:  Neurology       Date:  2011-01-11       Impact factor: 9.910

6.  The draft "National Plan" to address Alzheimer's disease - National Alzheimer's Project Act (NAPA).

Authors:  Zaven S Khachaturian; Ara S Khachaturian; William Thies
Journal:  Alzheimers Dement       Date:  2012-05       Impact factor: 21.566

7.  Effects of emotion on associative recognition: valence and retention interval matter.

Authors:  Benton H Pierce; Elizabeth A Kensinger
Journal:  Emotion       Date:  2011-02

8.  AMPA workshop on challenges faced by investigators conducting Alzheimer's disease clinical trials.

Authors:  Bruno Vellas; Alain Pesce; Philippe H Robert; Paul S Aisen; Sonia Ancoli-Israel; Sandrine Andrieu; Jesse Cedarbaum; Bruno Dubois; Eric Siemers; Jean-Paul Spire; Michael W Weiner; Thomas S May
Journal:  Alzheimers Dement       Date:  2011-07       Impact factor: 21.566

9.  Developing dementia prevention trials: baseline report of the Home-Based Assessment study.

Authors:  Mary Sano; Susan Egelko; Michael Donohue; Steven Ferris; Jeffrey Kaye; Tamara L Hayes; James C Mundt; Chung-Kai Sun; Silvia Paparello; Paul S Aisen
Journal:  Alzheimer Dis Assoc Disord       Date:  2013 Oct-Dec       Impact factor: 2.703

Review 10.  Adaptive e-learning to improve dietary behaviour: a systematic review and cost-effectiveness analysis.

Authors:  J Harris; L Felix; A Miners; E Murray; S Michie; E Ferguson; C Free; K Lock; J Landon; P Edwards
Journal:  Health Technol Assess       Date:  2011-10       Impact factor: 4.014

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  9 in total

1.  Education Research: Online Alzheimer education for high school and college students: A randomized controlled trial.

Authors:  Nabeel Saif; Kellyann Niotis; Moises Dominguez; John F Hodes; Michael Woodbury; Yasmin Amini; George Sadek; Olivia Scheyer; Emily Caesar; Hollie Hristov; Newman Knowlton; Paige Lee; Mark McInnis; Richard S Isaacson
Journal:  Neurology       Date:  2020-07-14       Impact factor: 9.910

2.  The BrainHealthRegistry.org: Using the Internet for identification, assessment, screening, recruitment, and longitudinal monitoring of subjects for neuroscience and Alzheimer's disease studies.

Authors:  M W Weiner
Journal:  J Prev Alzheimers Dis       Date:  2014-09

3.  Is Alzheimer's Prevention Possible Today?

Authors:  Richard Isaacson
Journal:  J Am Geriatr Soc       Date:  2017-08-28       Impact factor: 5.562

4.  Individualized clinical management of patients at risk for Alzheimer's dementia.

Authors:  Richard S Isaacson; Hollie Hristov; Nabeel Saif; Katherine Hackett; Suzanne Hendrix; Juan Melendez; Joseph Safdieh; Matthew Fink; Madhav Thambisetty; George Sadek; Sonia Bellara; Paige Lee; Cara Berkowitz; Aneela Rahman; Josefina Meléndez-Cabrero; Emily Caesar; Randy Cohen; Pei-Lin Lu; Samuel P Dickson; Mu Ji Hwang; Olivia Scheyer; Monica Mureb; Matthew W Schelke; Kellyann Niotis; Christine E Greer; Peter Attia; Lisa Mosconi; Robert Krikorian
Journal:  Alzheimers Dement       Date:  2019-10-31       Impact factor: 21.566

5.  Using social media to disseminate education about Alzheimer's prevention & treatment: a pilot study on Alzheimer's universe (www.AlzU.org).

Authors:  Richard S Isaacson; Alon Seifan; Candace L Haddox; Monica Mureb; Aneela Rahman; Olivia Scheyer; Katherine Hackett; Emily Caesar; Jaclyn L Chen; Jon Isaacson; Mark McInnis; Lisa Mosconi; Joseph Safdieh
Journal:  J Commun Healthc       Date:  2018-05-05

6.  The clinical practice of risk reduction for Alzheimer's disease: A precision medicine approach.

Authors:  Richard S Isaacson; Christine A Ganzer; Hollie Hristov; Katherine Hackett; Emily Caesar; Randy Cohen; Robert Kachko; Josefina Meléndez-Cabrero; Aneela Rahman; Olivia Scheyer; Mu Ji Hwang; Cara Berkowitz; Suzanne Hendrix; Monica Mureb; Matthew W Schelke; Lisa Mosconi; Alon Seifan; Robert Krikorian
Journal:  Alzheimers Dement       Date:  2018-11-13       Impact factor: 21.566

7.  Exploring the Cost of eLearning in Health Professions Education: Scoping Review.

Authors:  Edward Meinert; Jessie Eerens; Christina Banks; Stephen Maloney; George Rivers; Dragan Ilic; Kieran Walsh; Azeem Majeed; Josip Car
Journal:  JMIR Med Educ       Date:  2021-03-11

Review 8.  Precision Medicine for Alzheimer's Disease Prevention.

Authors:  Cara L Berkowitz; Lisa Mosconi; Olivia Scheyer; Aneela Rahman; Hollie Hristov; Richard S Isaacson
Journal:  Healthcare (Basel)       Date:  2018-07-13

9.  Effectiveness of online education for recruitment to an Alzheimer's disease prevention clinical trial.

Authors:  Nabeel Saif; Cara Berkowitz; Susmit Tripathi; Olivia Scheyer; Emily Caesar; Hollie Hristov; Katherine Hackett; Aneela Rahman; Newman Knowlton; George Sadek; Paige Lee; Mark McInnis; Richard S Isaacson
Journal:  Alzheimers Dement (N Y)       Date:  2020-03-16
  9 in total

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