Shoshana H Bardach1,2, Sarah D Holmes3, Gregory A Jicha4,5. 1. Graduate Center for Gerontology, College of Public Health, University of Kentucky, Lexington, KY, USA. shbardach@uky.edu. 2. Sanders-Brown Center on Aging, University of Kentucky, Lexington, KY, USA. shbardach@uky.edu. 3. University of Maryland, Baltimore, MD, USA. 4. Sanders-Brown Center on Aging, University of Kentucky, Lexington, KY, USA. 5. Department of Neurology, University of Kentucky, Lexington, KY, USA.
Abstract
BACKGROUND: Alzheimer's disease (AD) research progress is impeded due to participant recruitment challenges. This study seeks to better understand, from the perspective of individuals engaged in clinical trials (CTs), research motivations. METHODS: Participants, or their caregivers, from AD treatment and prevention CTs were surveyed about research motivators. RESULTS: The 87 respondents had a mean age of 72.2, were predominantly Caucasian, 55.2% were male, and 56.3% had cognitive impairment. An overwhelming majority rated the potential to help themselves or a loved one and the potential to help others in the future as important motivators. Relatively few respondents were motivated by free healthcare, monetary rewards, or to make others happy. CONCLUSIONS: Recruitment efforts should focus on the potential benefit for the individual, their loved ones, and others in the future rather than free healthcare or monetary rewards.
BACKGROUND:Alzheimer's disease (AD) research progress is impeded due to participant recruitment challenges. This study seeks to better understand, from the perspective of individuals engaged in clinical trials (CTs), research motivations. METHODS:Participants, or their caregivers, from AD treatment and prevention CTs were surveyed about research motivators. RESULTS: The 87 respondents had a mean age of 72.2, were predominantly Caucasian, 55.2% were male, and 56.3% had cognitive impairment. An overwhelming majority rated the potential to help themselves or a loved one and the potential to help others in the future as important motivators. Relatively few respondents were motivated by free healthcare, monetary rewards, or to make others happy. CONCLUSIONS: Recruitment efforts should focus on the potential benefit for the individual, their loved ones, and others in the future rather than free healthcare or monetary rewards.
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