PURPOSE: We examined the psychological adjustment of parents of children born with moderate to severe genital atypia 12 months after their child underwent genitoplasty. MATERIALS AND METHODS: Parents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret. RESULTS: Compared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified. CONCLUSIONS: Overall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor's level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications.
PURPOSE: We examined the psychological adjustment of parents of children born with moderate to severe genital atypia 12 months after their child underwent genitoplasty. MATERIALS AND METHODS: Parents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret. RESULTS: Compared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified. CONCLUSIONS: Overall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor's level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications.
Authors: Ellen A Lipstein; Daniel J Lovell; Lee A Denson; Sandra C Kim; Charles Spencer; Richard F Ittenbach; Maria T Britto Journal: J Pediatr Gastroenterol Nutr Date: 2016-12 Impact factor: 2.839
Authors: Marianne Skreden; Hans Skari; Ulrik F Malt; Guttorm Haugen; Are H Pripp; Anne Faugli; Ragnhild Emblem Journal: Am J Med Genet A Date: 2010-09 Impact factor: 2.802
Authors: Jamie C Brehaut; Annette M O'Connor; Timothy J Wood; Thomas F Hack; Laura Siminoff; Elisa Gordon; Deb Feldman-Stewart Journal: Med Decis Making Date: 2003 Jul-Aug Impact factor: 2.583
Authors: Alexandria M Delozier; Kaitlyn L Gamwell; Christina Sharkey; Dana M Bakula; Megan N Perez; Cortney Wolfe-Christensen; Paul Austin; Laurence Baskin; Kerlly J Bernabé; Yee-Ming Chan; Earl Y Cheng; David A Diamond; Rebecca E H Ellens; Allyson Fried; Denise Galan; Saul Greenfield; Thomas Kolon; Bradley Kropp; Yegappan Lakshmanan; Sabrina Meyer; Theresa Meyer; Natalie J Nokoff; Kristy J Reyes; Blake Palmer; Dix P Poppas; Alethea Paradis; Amy C Tishelman; Elizabeth B Yerkes; John M Chaney; Amy B Wisniewski; Larry L Mullins Journal: Arch Sex Behav Date: 2019-05-29
Authors: Rachel S Fisher; Hannah C Espeleta; Laurence S Baskin; Cindy L Buchanan; Yee-Ming Chan; Earl Y Cheng; Douglas E Coplen; David A Diamond; Natalie J Nokoff; Blake W Palmer; Dix P Poppas; Kristy J Scott Reyes; Amy Tishelman; Cortney Wolfe-Christensen; Larry L Mullins; Amy B Wisniewski Journal: J Pediatr Urol Date: 2021-10-25 Impact factor: 1.830
Authors: E Coleman; A E Radix; W P Bouman; G R Brown; A L C de Vries; M B Deutsch; R Ettner; L Fraser; M Goodman; J Green; A B Hancock; T W Johnson; D H Karasic; G A Knudson; S F Leibowitz; H F L Meyer-Bahlburg; S J Monstrey; J Motmans; L Nahata; T O Nieder; S L Reisner; C Richards; L S Schechter; V Tangpricha; A C Tishelman; M A A Van Trotsenburg; S Winter; K Ducheny; N J Adams; T M Adrián; L R Allen; D Azul; H Bagga; K Başar; D S Bathory; J J Belinky; D R Berg; J U Berli; R O Bluebond-Langner; M-B Bouman; M L Bowers; P J Brassard; J Byrne; L Capitán; C J Cargill; J M Carswell; S C Chang; G Chelvakumar; T Corneil; K B Dalke; G De Cuypere; E de Vries; M Den Heijer; A H Devor; C Dhejne; A D'Marco; E K Edmiston; L Edwards-Leeper; R Ehrbar; D Ehrensaft; J Eisfeld; E Elaut; L Erickson-Schroth; J L Feldman; A D Fisher; M M Garcia; L Gijs; S E Green; B P Hall; T L D Hardy; M S Irwig; L A Jacobs; A C Janssen; K Johnson; D T Klink; B P C Kreukels; L E Kuper; E J Kvach; M A Malouf; R Massey; T Mazur; C McLachlan; S D Morrison; S W Mosser; P M Neira; U Nygren; J M Oates; J Obedin-Maliver; G Pagkalos; J Patton; N Phanuphak; K Rachlin; T Reed; G N Rider; J Ristori; S Robbins-Cherry; S A Roberts; K A Rodriguez-Wallberg; S M Rosenthal; K Sabir; J D Safer; A I Scheim; L J Seal; T J Sehoole; K Spencer; C St Amand; T D Steensma; J F Strang; G B Taylor; K Tilleman; G G T'Sjoen; L N Vala; N M Van Mello; J F Veale; J A Vencill; B Vincent; L M Wesp; M A West; J Arcelus Journal: Int J Transgend Health Date: 2022-09-06
Authors: Katherine A Traino; Marissa N Baudino; Jacob D Kraft; Nathan L Basile; Taylor M Dattilo; Morgan P Davis; Cindy Buchanan; Earl Y Cheng; Dix P Poppas; Amy B Wisniewski; Larry L Mullins Journal: Stigma Health Date: 2021-11
Authors: Michael J Sadighian; Isabelle E Allen; Kathryn Quanstrom; Benjamin N Breyer; Anne M Suskind; Nima Baradaran; Hillary L Copp; Lindsay A Hampson Journal: Urology Date: 2021-04-02 Impact factor: 2.633
Authors: Avi Baskin; Amy B Wisniewski; Christopher E Aston; Paul Austin; Yee-Ming Chan; Earl Y Cheng; David A Diamond; Allyson Fried; Thomas Kolon; Yegappan Lakshmanan; Pierre Williot; Sabrina Meyer; Theresa Meyer; Bradley Kropp; Natalie Nokoff; Blake Palmer; Alethea Paradis; Dix Poppas; Brian VanderBrink; Kristy J Scott Reyes; Amy Tishelman; Cortney Wolfe-Christensen; Elizabeth Yerkes; Larry L Mullins; Laurence Baskin Journal: J Pediatr Urol Date: 2020-06-01 Impact factor: 1.921
Authors: Christopher J Long; Jason Van Batavia; Amy B Wisniewski; Christopher E Aston; Laurence Baskin; Earl Y Cheng; Yegappan Lakshmanan; Theresa Meyer; Bradley Kropp; Blake Palmer; Natalie J Nokoff; Alethea Paradis; Brian VanderBrink; Kristy J Scott Reyes; Elizabeth Yerkes; Dix P Poppas; Larry L Mullins; Thomas F Kolon Journal: J Pediatr Urol Date: 2021-02-19 Impact factor: 1.921
Authors: Caroline M Roberts; Christina M Sharkey; Dana M Bakula; Megan N Perez; Alexandria J Delozier; Paul F Austin; Laurence S Baskin; Yee-Ming Chan; Earl Y Cheng; David A Diamond; Allyson J Fried; Bradley Kropp; Yegappan Lakshmanan; Sabrina Z Meyer; Theresa Meyer; Natalie J Nokoff; Blake W Palmer; Alethea Paradis; Kristy J Scott Reyes; Amy Tishelman; Pierre Williot; Cortney Wolfe-Christensen; Elizabeth B Yerkes; Christopher Aston; Amy B Wisniewski; Larry L Mullins Journal: J Pediatr Psychol Date: 2020-10-01