Literature DB >> 28472603

Young Women's Perceptions Regarding Communication with Healthcare Providers About Breast Cancer, Risk, and Prevention.

Natasha Buchanan Lunsford1, Karena F Sapsis2, Betsy Smither3, Jennifer Reynolds3, Ben Wilburn3, Temeika Fairley1.   

Abstract

BACKGROUND: Women younger than 45 years old have lower rates of breast cancer, but higher risk of recurrence and mortality after a cancer diagnosis. African American women are at risk for early onset and increased mortality; Ashkenazi Jewish women are at risk for genetic mutations leading to breast and ovarian cancer. Although younger women are encouraged to talk to doctors about their family history, little is known about these discussions.
MATERIALS AND METHODS: In 2015, 167 women aged 18-44 years participated in 20 focus groups segmented by geographic location, age, race/ethnicity, and family history of breast and ovarian cancer. Transcript data were analyzed using NVivo 10 software.
RESULTS: Although the majority of women talked to their doctor about breast and ovarian cancer, these conversations were brief and unsatisfying due to a lack of detail. Topics included family history, breast cancer screening, and breast self-examination. Some women with and without family history reported that healthcare providers offered screening and early detection advice based on their inquiries. However, few women took action or changed lifestyle behaviors with the intent to reduce risk as a result of the conversations.
CONCLUSIONS: Conversations with young women revealed missed opportunities to: enhance patient-provider communication and increase knowledge about breast cancer screening and surveillance for higher risk patients. Physicians, allied health professionals, and the public health community can better assist women in getting accurate and timely information about breast and ovarian cancer, understanding their family history to determine risk, and increasing healthy behaviors.

Entities:  

Keywords:  breast cancer; ovarian cancer; providers; young women

Mesh:

Year:  2017        PMID: 28472603      PMCID: PMC6074024          DOI: 10.1089/jwh.2016.6140

Source DB:  PubMed          Journal:  J Womens Health (Larchmt)        ISSN: 1540-9996            Impact factor:   2.681


  29 in total

1.  Doctor-patient communication: a review.

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Journal:  Ochsner J       Date:  2010

2.  Healthy women with a family history of breast cancer: impact of a tailored genetic counseling intervention on risk perception, knowledge, and menopausal therapy decision making.

Authors:  Ellen T Matloff; Anne Moyer; Kristen M Shannon; Kristin B Niendorf; Nananda F Col
Journal:  J Womens Health (Larchmt)       Date:  2006-09       Impact factor: 2.681

Review 3.  Genetics, genomics, and cancer risk assessment: State of the Art and Future Directions in the Era of Personalized Medicine.

Authors:  Jeffrey N Weitzel; Kathleen R Blazer; Deborah J MacDonald; Julie O Culver; Kenneth Offit
Journal:  CA Cancer J Clin       Date:  2011-08-19       Impact factor: 508.702

4.  Toward a Better Understanding of Patient Health Literacy: A Focus on the Skills Patients Need to Find Health Information.

Authors:  Sara Champlin; Michael Mackert; Elizabeth M Glowacki; Erin E Donovan
Journal:  Qual Health Res       Date:  2016-05-12

5.  BRCA1 and BRCA2 mutations in a study of African American breast cancer patients.

Authors:  Tuya Pal; Jenny Permuth-Wey; Tricia Holtje; Rebecca Sutphen
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2004-11       Impact factor: 4.254

6.  How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States.

Authors:  Pamela Sankar; Paul Root Wolpe; Nora L Jones; Mildred Cho
Journal:  Community Genet       Date:  2006

7.  Women's clinical preventive services in the United States: who is doing what?

Authors:  Analía R Stormo; Mona Saraiya; Esther Hing; Jillian T Henderson; George F Sawaya
Journal:  JAMA Intern Med       Date:  2014-09       Impact factor: 21.873

8.  Consumer knowledge and opinions of genetic testing for breast cancer risk.

Authors:  Nancy Vuckovic; Emily L Harris; Barbara Valanis; Barbara Stewart
Journal:  Am J Obstet Gynecol       Date:  2003-10       Impact factor: 8.661

9.  Breast cancer risk communication: assessment of primary care physicians by standardized patients.

Authors:  Julie O Culver; Deborah J Bowen; Susan E Reynolds; Linda E Pinsky; Nancy Press; Wylie Burke
Journal:  Genet Med       Date:  2009-10       Impact factor: 8.822

10.  Reporting BRCA test results to primary care physicians.

Authors:  L M Sandhaus; M E Singer; N V Dawson; G L Wiesner
Journal:  Genet Med       Date:  2001 Sep-Oct       Impact factor: 8.822

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  6 in total

1.  Prevalence of Americans reporting a family history of cancer indicative of increased cancer risk: Estimates from the 2015 National Health Interview Survey.

Authors:  Marie T Kumerow; Juan L Rodriguez; Shifan Dai; Katherine Kolor; Melissa Rotunno; Lucy A Peipins
Journal:  Prev Med       Date:  2022-04-20       Impact factor: 4.637

2.  Doctor-Patient Cancer Screening Communications among Church-based Chinese Adults - The Role of Caregiver Experience and Family History.

Authors:  Su-I Hou
Journal:  Asian Pac J Cancer Prev       Date:  2021-01-01

3.  Differences Related to Cancer Screening by Minority and Rural/Urban Status in the Deep South: Population-based Survey Results.

Authors:  Casey Daniel; Salma Aly; Sejong Bae; Isabel Scarinci; Claudia Hardy; Mona Fouad; Wendy Demark-Wahnefried
Journal:  J Cancer       Date:  2021-01-01       Impact factor: 4.207

4.  Information needs on breast cancer genetic and non-genetic risk factors in relatives of women with a BRCA1/2 or PALB2 pathogenic variant.

Authors:  Anne Brédart; Antoine De Pauw; Amélie Anota; Anja Tüchler; Julia Dick; Anita Müller; Jean-Luc Kop; Kerstin Rhiem; Rita Schmutzler; Peter Devilee; Dominique Stoppa-Lyonnet; Sylvie Dolbeault
Journal:  Breast       Date:  2021-08-23       Impact factor: 4.380

5.  A regional population-based hereditary breast cancer screening tool in Italy: First 5-year results.

Authors:  Laura Cortesi; Bruna Baldassarri; Stefano Ferretti; Elisabetta Razzaboni; Mariangela Bella; Lauro Bucchi; Debora Canuti; Pierandrea De Iaco; Giorgio De Santis; Fabio Falcini; Vania Galli; Lea Godino; Maurizio Leoni; Anna Myriam Perrone; Marco Pignatti; Gianni Saguatti; Donatella Santini; Priscilla Sassoli de'Bianchi; Federica Sebastiani; Mario Taffurelli; Giovanni Tazzioli; Daniela Turchetti; Claudio Zamagni; Carlo Naldoni
Journal:  Cancer Med       Date:  2020-02-11       Impact factor: 4.452

6.  Patient and Provider Perspectives on Acceptability, Access, and Adherence to 17-Alpha-Hydroxyprogesterone Caproate for Preterm Birth Prevention.

Authors:  Stephanie M Garcia; Katherine S Kellom; Rupsa C Boelig; Xi Wang; Meredith Matone
Journal:  Womens Health Rep (New Rochelle)       Date:  2021-07-27
  6 in total

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